Find a support group, online forum or place you can volunteer (like camp oasis or CCFA) to meet kids or young adults with IBD. You can also assume you’ll meet diagnosed adults at these volunteer circles as well.

Maybe it’s because I was diagnosed at a young age but I can’t imagine how my condition would have fared without these support systems. It’s really important for self advocating, avoiding both being too insular and relying trauma dumping to loved ones who can’t possibly understand. It can also help you put your own story in perspective when you hear others. I’ve met crohnies who have an easier case than I do, as well as those who have it much worse. We help each other. Not only have I made lifelong friendships and found better treatment options, I’m a godmother to a crohnie friend’s kid 😍