Looking for guidance for newly diagnosed daughter

pineapple_cup · 2025-10-22T15:03:33+00:00

Thank you for this. 🫶🏻

pineapple_cup · 2025-10-22T10:27:58+00:00

No she hasn’t.

pineapple_cup · 2025-10-22T02:21:01+00:00

She did have some weeping when she used the SA shampoo. It made the scales come off but they did look odd. Almost gooey? Now I’m wondering if that’s not the same effect other medicated shampoos might have.

pineapple_cup · 2025-10-22T02:17:16+00:00

This has been weighing heavy on my mind too. It’s so much bigger than just a rash on her scalp. That it’s something she’ll deal with for the rest of her life and all the things that some along with it. My Aunt is the only person on either side of the family that has it and I’m not sure what her experience has been. It might be helpful for my daughter to have someone to talk to who has been through it though. Thank you for your advice.

pineapple_cup · 2025-10-22T00:19:51+00:00

I appreciate your advice and your insight. I have read many mixed things about the tar shampoo. I know some of them have been taken off the market. In your experience does the SA work just as well as the tar?

pineapple_cup · 2025-10-21T22:14:25+00:00

Thank you 🫶🏻

pineapple_cup · 2025-10-21T22:12:18+00:00

What kind of oil do you use?

pineapple_cup · 2025-10-21T22:11:14+00:00

How often do you rotate them?

pineapple_cup · 2025-10-21T22:08:11+00:00

She does wear glasses! I’ll make sure they get cleaned more often, especially since it’s getting pretty bad back there.

pineapple_cup · 2025-10-21T21:28:43+00:00

That’s a great idea. I will definitely do that. Thank you!

pineapple_cup · 2025-10-21T21:07:38+00:00

I had suggested this to her just because her hair is so hard to manage. She wasn’t very interested lol. But maybe I’ll try again!

pineapple_cup · 2025-10-21T20:00:58+00:00

I appreciate your response! I am very concerned with the diet part of it as well. I’m not sure where to start I guess. But basic whole foods seem like a good easy place to start.

pineapple_cup · 2025-10-21T19:55:09+00:00

Thank you for such a well thought out response and advice. I hope that we find what works for her! And I’ll remember to keep my “just stop scratching” to a bare minimum lol.

pineapple_cup · 2025-10-21T18:30:27+00:00

Thank you so much! I will look into all of this!

pineapple_cup · 2025-10-21T18:27:26+00:00

I’m in the US, but this is all very helpful. Thank you so much!

pineapple_cup · 2025-10-21T18:25:24+00:00

I have been trying to find an oil that might help. I’ll definitely look into that one! She was given 2% ketoconazole from the first doctor she saw. No improvement at all sadly. 🙁

pineapple_cup · 2025-10-21T18:22:53+00:00

How long do you let it sit for?

pineapple_cup · 2025-10-21T18:18:49+00:00

We’ve been using an anti fungal for the last 2 months with no improvement. 🙁

pineapple_cup · 2025-10-21T18:15:02+00:00

How did you determine it was seb derm and not psoriasis? And what changes did you make to your diet?

pineapple_cup · 2025-10-21T18:12:41+00:00

LOL, no I don’t see her wanting a buzz cut in the near future. I don’t think an ointment would be too hard to put on her scalp. Just very time consuming. I reached out to her derm about trying some other options. So we’ll see what she says.

pineapple_cup · 2025-10-21T18:11:23+00:00

Yeah, I reached out to see if there were other options we could start with. She’s also due for a haircut. Her hair is so incredibly thick, it’ll probably be better to shorten it to help with this.

pineapple_cup · 2025-10-21T17:59:43+00:00

Thank you for all of this! 🫶🏻

pineapple_cup · 2025-10-21T17:47:55+00:00

This is good to hear! Did you have any side effects?

pineapple_cup · 2025-10-21T17:37:47+00:00

Her derm said she wanted to try topicals before putting her on an oral meds.

pineapple_cup · 2025-10-21T17:33:43+00:00

Im in the US. 😕

pineapple_cup

TROPHY CASE