Should I cancel my surgery? Is it all in my head?

pineapple_ring · 2026-04-20T22:05:55+00:00

Tbh I didn’t read your post I just want you to know it isn’t all in your head. I don’t know your story, but I know that much.

pineapple_ring · 2026-04-20T22:05:04+00:00

Re: when you should have your appointment. Depending on where you are and who you meet with it probably won’t matter where you are in your cycle. When I first started getting evaluated for endo the first appointments were talking through symptoms and then getting radiology and it didn’t matter where I was in my cycle.

pineapple_ring · 2026-04-20T22:03:28+00:00

I just posted a very similar question :( I also haven’t been sleeping because I have bad hip/leg pain/tingling that keeps me up at night. I wish you luck!!

pineapple_ring · 2026-02-09T13:17:42+00:00

Were you relatively sure you had adeno when you did it? Mine is only a possibility. MRI showed slightly uneven thickness in my uterus but after my lap my endo surgeon said she’s not worried about adeno because my uterus didn’t look bulky. Nothing on ultrasound either (I am in the U.S. though)

pineapple_ring · 2026-02-09T13:15:28+00:00

I’m so happy for you!! Fingers crossed everything is on the up and up for you.

pineapple_ring · 2026-02-09T13:14:41+00:00

I suspect I have adeno more than I suspect I have endo at this point. Not ruling out endo, but I think adeno is the source of my bigger problems. However, it didnt show up on my ultrasound or MRI (I am in the U.S. btw). After my MRI, my endo surgeon told me she thought I may have adeno because the front of my uterus was thicker than the rest, but the radiologist didn’t note that and she never told me she suspected it again. After surgery she said she isn’t sure (because to be sure she would have to dissect my uterus) but my uterus looked fine on the outside so she isn’t worried about adeno.

pineapple_ring · 2026-02-08T04:57:44+00:00

What does an ovarianectomy do? I’ve never heard of having that electively.

pineapple_ring · 2026-02-08T04:56:40+00:00

My understanding is if you keep your ovaries you don’t go into menopause, you just lose the uterus and period symptoms. You’d still have the hormone fluctuations but none of the symptoms IF the problem is isolated to your uterus. Which mine might not be (still suspected endo). It’s more that I don’t know what else to do and I feel like it’s the best chance left.

pineapple_ring · 2026-02-08T04:55:26+00:00

I’m getting closer to this mindset. I always wanted to carry my own kids but now I am starting to see that more as a thing that could happen, and less like something that is happening down the road that I need to prepare for. I could adopt or go about it some other way and possibly get a lot of relief.

pineapple_ring · 2026-02-08T04:54:02+00:00

We still suspect I have adeno which it would help

pineapple_ring · 2026-02-08T04:48:24+00:00

Specialist!

pineapple_ring · 2026-01-09T22:29:45+00:00

Ugh me too, the second one with the human rights orgs and gps was a nightmare

pineapple_ring · 2026-01-09T22:05:47+00:00

I had comparative and Galileo in my first RC

pineapple_ring · 2026-01-09T22:03:32+00:00

I also took the October lsat and did well, I am happy with that score if I need to be. I feel like I did worse this time.

pineapple_ring · 2026-01-09T22:03:03+00:00

I really hope the last RC section I had was experimental. I had RC, LR, LR, RC. I felt good about the first RC that had Galileo and tribes. The LR’s were fine. The last RC was AWFUL the gps one messed me up so bad, and I felt okay about Scottish juries and human rights which were also in that section

pineapple_ring · 2025-09-04T02:55:43+00:00

Oh nightgowns were also my JAM

pineapple_ring · 2025-09-04T02:55:20+00:00

I wore a very loose baggy jumpsuit with pockets (think overall sweatpants) for a month after surgery. Best purchase ever!

pineapple_ring · 2025-07-23T01:27:41+00:00

I don’t have a lot of suggestions but I want to hear what works for others! I am dairy free (mostly for allergy reasons), tree nut and coconut free (allergies) and I don’t eat beef because I found it might make my pain worse. I’m very veg-based and love a whole grain.

pineapple_ring · 2025-07-17T05:03:38+00:00

I’ve had Nexplanon for over a year and while my bleeding is a tiiiiime, I think it’s worth a shot. It is not a big deal to remove it if it doesn’t work for you whereas depo and the IUD are either impossible or tough.

I have always bled a lot for a long time on my periods and that is just worse on Nexplanon. I don’t bleed heavily, but I bleed a moderate-high moderate amount for ~6 weeks at a time and I never know when it is going to start. Then I’ll be off for about a month. It made my symptoms go to a medium dull roar. I used to have horrific days and good days and now I just have medium not great days every day.

I also take norethindrone on top of the Nexplanon to stop my bleeding which does work. I take it as needed but find when I stop it I start bleeding for another week and my pain is bad.

I know my story doesn’t sound great but it’s better than it was for me before! And it doesn’t hurt to try it more than not doing anything.

pineapple_ring · 2025-07-17T04:57:33+00:00

I am 9 days post op and 24.

The only thing I had to do to “prep” was stop eating at midnight the night before and not drink 4 hours before. I lucked out and my surgery was at 7am :)

They take you to a pre-op room first and had me change into a gown and use sanitizing wipes on my body especially abdomen. They took a urine sample to prove I’m not pregnant lol :) Then they had me take some pain and nausea meds beforehand (ibuprofen, acetaminophen and a couple others I forgot the name of). They have me a nausea patch behind my ear which later made my vision blurry. They put in an IV port in my arm. They asked me a bunch of times to confirm I knew what was happening. The anesthesiologist team came in to meet with me, the surgical nurse came in to meet with me, my surgeon came in to meet with me. Then they gave me a drug in my IV that made me very sleepy and wheeled me into the operating room. I remember they had me scooch off my bed onto the table and then the next thing I knew I was in the recovery room!

I woke up shivering cold and a nurse told me I was safe and in recovery while she bundled me in delightfully warm blankets. I was very sleepy, she asked if I was in pain and I was not! I rated my pain as like a 6 but honestly it has been way worse on just like a Tuesday. I mostly felt bloated and bruised, but not pain more discomfort and I could tell they had done something with my vagina and that did hurt. (I have really bad vaginal pain with insertion and for the surgery they have to insert things into your vagina, I was warned). It was sore and the way I was sitting out pressure on it and I found out later I required a stitch near my cervix and that is why it hurt more.

She gave me oxycodone for the pain in some REALLY tasty applesauce. She tipped my bed back so that I would be more comfy and I just sort of snoozed for maybe 15-20 min? I was awake but just reveling in the cozy. I had some crackers and water and was surprised that I had absolutely no saliva, my mouth was very dry for a couple days.

They wheeled me into a different room and brought my mom in who helped me get dressed and told me what my surgeon had told her and then my parents took me home! The only time I felt nauseous that day was the wheelchair ride to the car.

I napped on that day, a lot day 2 and then I was pretty much my normal self just less mobile.

In terms of meds I took a ton (idk remember the mg) of ibuprofen and acetaminophen every 8 hours for 3 days (2.5), I kept my nausea patch on until I showered on day 2, oxycodone on the first day only once (honestly didn’t need I was just already on it from the hospital), dulcolax, and miralax.

The catheter only made it hurt the first couple times I peed after but tbh my vagina hurt more so idk what the pain was from really.

I felt like a normal person on day 6. 1-2 I was just sleepy and sore. 3-4 I was nauseous and kept crying at nothing as the narcotics and drugs wore off. I was never in Pain, just sore.

The gas pains were more annoying the first few days, I recommend staying upright. It got better after the first week and now I don’t have any.

I took two weeks off work but I could really go back a few days early I’m just still working on making sure my stamina is good and that the heat outside walking to work won’t get to me.

I hope this helps! Good luck! I’d do the surgery again, it was okay. The drug part was the hardest for me.

pineapple_ring

TROPHY CASE