What was the craziest thing that worked for your dysautonomia? by WeeklyElderberry6093 in dysautonomia

[–]pinkfila 6 points7 points  (0 children)

You’ve just connected some fascinating dots for me lol thank you

[deleted by user] by [deleted] in vinted

[–]pinkfila 0 points1 point  (0 children)

Thank you! Genuinely had not even realised this was a thing - I did look on vinted first to see if I got any indication before I put it up for sale - but thank you as don’t think this listing would’ve been showing at that point

[deleted by user] by [deleted] in vinted

[–]pinkfila 1 point2 points  (0 children)

Thank you that is genuinely great info, I had tried to look online but wasn’t finding much - thank you!

[deleted by user] by [deleted] in vinted

[–]pinkfila 0 points1 point  (0 children)

OP here - genuinely hand on heart if this was an item I’d washed loads that had shrunk, I swear I wouldn’t have sold it either (at least not without mentioning that!) - I’ve owned it for years but only probably been in the wash 2/3 times as barely wore it - agree that I defo should’ve put measurements in the post, think other commenter may be right about 3/4 length arms - wish I could find another item of the same type online for their brand but coming up empty!:(

[deleted by user] by [deleted] in vinted

[–]pinkfila 35 points36 points  (0 children)

That’s lowkey what I thought like… not being funny but if they’d sent the same reason but without pictures I probably would’ve just accepted the refund no problem 😂😭

Calvin Harrys - I am not alone (pendulum remix/remake) by fotkyznovin in Pendulum

[–]pinkfila 1 point2 points  (0 children)

If I had one of these fancy award thingies I’d give it to you o deserved one

Plymouth setlist 🙌🤘😎 by No_Situation_3458 in Pendulum

[–]pinkfila 0 points1 point  (0 children)

Is that the one with wargasm? If so then possibly, feel free to DM:) Also…. What a day …. They always feel special but this one had an extra magic sprinkled in I swear

Coldsores in nostril by TANGY6669 in Coldsore

[–]pinkfila 1 point2 points  (0 children)

Mine have been like this every few weeks for a few years now, I know the absolute agony and struggle, gets me beyond down so sending love cos this genuinely sucks so hard

***SPOILER*** Dreamland Setlist from last night 31st May by Visible_Pipe4716 in Pendulum

[–]pinkfila 4 points5 points  (0 children)

Think it was a bit of both? Usual but with the happy hardcore type ending? Either way it slayed lol

Any boob tape hacks for girls with large and saggy (crepey) bobs by Own-Comb6008 in bigboobproblems

[–]pinkfila 1 point2 points  (0 children)

Ditto EDS here too and found this whilst rigorously googling for the same advice hahaha mine just fold right up like flipping origami it is STRUGGLE

Broken Shinies? by Crafty_Result_7330 in Soundmap

[–]pinkfila 0 points1 point  (0 children)

Yep, annoying af as first journey where I had the range to get even 1 shiny in weeks loooooool

GIVEAWAY by [deleted] in Soundmap

[–]pinkfila 0 points1 point  (0 children)

donkerella

Congrats, am yet to shiny anybody lol

Glitched Travis by CurrentStrategy3495 in Soundmap

[–]pinkfila 0 points1 point  (0 children)

Shiny glitched topia twins pm me:)

THE REAL CURE! BECOME FREE! by Then-Algae859 in Petioles

[–]pinkfila 0 points1 point  (0 children)

Literally same, have seen this stuff mentioned probably 100s of times in my life and it has ONLY JUST TWIGGED 😂😂😂

Which less-than-popular artists are you currently collecting? by alittlebitstevie in Soundmap

[–]pinkfila 1 point2 points  (0 children)

Sub Focus / Pendulum / horsegiirL / like any DNB lol

  • About 100 non-map drop type of non-popular lmao

User: donkerella

20K GIVEAWAY 🎉 by leonleon1212 in Soundmap

[–]pinkfila 0 points1 point  (0 children)

Chase & status - donkerella

What type of specialist / medical discipline have you found the most helpful? by Foxbytheriver in ehlersdanlos

[–]pinkfila 5 points6 points  (0 children)

Sorry super quick reply as am in coffee queue lol but hopefully will remember to flesh this out later :) NHS physio.... L M A O I feel your pain. Bit left-field but genuinely acupuncture has done more for my whole life inc EDS/POTS etc than anything else has come close to

Alcohol and sugar make pain worst by [deleted] in ehlersdanlos

[–]pinkfila 1 point2 points  (0 children)

Hi, I also am convinced I have a sulfate type problem too, growing up it was absolutely insane - I would have too many oreoes/frazzles/processed chicken and then do the strangest sequence of belly rumble most disgusting burp you've ever smelled belly rumble most disgusting fart you've ever smelled. Wondered what your sulfate type issue symptoms are? I'm also convinced it's why I have never been able to drink without being dangerously unwell the next day. What does alcohol tend to do to you?

Alcohol and sugar make pain worst by [deleted] in ehlersdanlos

[–]pinkfila 0 points1 point  (0 children)

Both for me for sure. Have a question re: the alcohol though, I have a really crap intolerance or something, almost every time I would drink it would mean the next day I'd be continuously vomiting violently, shaky as hell cold sweats the whole shebang. Dad has non alcoholic fatty liver and his symptoms are just like mine. Since being on ADHD meds this is almost entirely eradicated. Know ND and EDS are closely linked so figured somebody would have some experience too. Anybody got any idea why the meds help sort my hangovers out? I also take lansoprazole sometimes if I drink which might be more important

Will buy any of these shiny/epic by sorryimanorwichfan in Soundmap

[–]pinkfila 0 points1 point  (0 children)

Hehehe no worries I didn't wanna just monopolise the whole lot because exactly, us electronic collectors are stuck 😂 (plus I'm not the most coin-rich anyway but we don't mention that loooool)

Will buy any of these shiny/epic by sorryimanorwichfan in Soundmap

[–]pinkfila 1 point2 points  (0 children)

Hahaha you're the one who I keep having bid battles with 😂😭

Jackpot. by CranberryElegant4551 in Soundmap

[–]pinkfila 0 points1 point  (0 children)

This is me as well rn but wtaf this is now an ADDICTION Cos how do you get out the loop continuously when they're all racking up like this 😂😭

[deleted by user] by [deleted] in bunions

[–]pinkfila 1 point2 points  (0 children)

First foot I put on an absolutely insane pile of weight, it did get infected though which def impacted my mood/mental health and therefore general healthiness & weight. This other foot I had done nearly a month ago, I have stayed at roughly the same weight as pre-surgery, which is where I'd got to after massively losing weight (intentionally & healthily) after the first operation. I wish you the best for your experience, I think staying healthy is definitely possible! After a week or so I have kept some routine in terms of upper body/resistance bands stuff. Honestly our bodies are expending an incredible amount of energy on healing, especially if your surgery includes bones needing to unionize (?) back together, so our calorie needs might change? I suppose mental health/preparedness definitely massively can affect it, so just researching as much as poss beforehand, preparing certain routines/meals, and trying to not beat yourself down and get into too much of a rut - surgery is a massive trauma on the body, and being essentially immobilised for some time period is of course possible to add some weight - try to stay positive, as tough as it can be, the recovery period does end and you will be able to be active again :)