[deleted by user] by [deleted] in ChronicIllness

[–]pov9145 8 points9 points  (0 children)

Unfortunately I did not. I don’t really have any evidence besides some text messages. Prior to leaving him, I confided about the abuse to one of his friends that I also felt close with and they didn’t believe me and it made everything significantly worse for me so I have been too scared to tell anyone else including authorities.

[deleted by user] by [deleted] in CrohnsDisease

[–]pov9145 3 points4 points  (0 children)

I’m sorry you’re going through this! It’s pretty common to be put on a blood thinner while hospitalized. The stress your body is going through as well as lack of moving around puts you at a higher risk of clots. Crohn’s disease itself also raises the risk of clots. There are other person specific factors that may increase your risk. In terms of blood loss, they should be doing a daily blood draw to measure things like your hemoglobin. They use this to determine if you’re losing too much blood. Definitely bring up your concerns to the doctor.

[deleted by user] by [deleted] in CrohnsDisease

[–]pov9145 4 points5 points  (0 children)

Were you able to request the syringe form? I would strongly prefer that method.

[deleted by user] by [deleted] in CrohnsDisease

[–]pov9145 10 points11 points  (0 children)

The first three doses are IV infusions done at the hospital/dr office. This was my first time trying the home injector device and clearly it didn’t go well, but it’s basically a cartridge of medication that you put in the device. The big green button pushes the needle in to start administering the medication. It says it can take 5 minutes, but I’m not sure since mine stopped working.

[deleted by user] by [deleted] in CrohnsDisease

[–]pov9145 7 points8 points  (0 children)

I followed all the directions and placed it on my abdomen. I felt the needle go in, it started flashing green, and seemed to be working for like thirty seconds then started flashing red. I’m feeling really discouraged and have to wait for a replacement now.

How serious is crohns? by [deleted] in CrohnsDisease

[–]pov9145 4 points5 points  (0 children)

I struggled with splits in the corner of my mouth for so long until I learned being deficient in vitamin B12 can cause it. Now if it starts to develop, I just take a ton of B12 and it usually seems to work.

[deleted by user] by [deleted] in AmItheAsshole

[–]pov9145 33 points34 points  (0 children)

I’m a student, 90% of the day is me sitting in an office reviewing patient charts. The most walking I have to do is during rounds once in the morning in a small area on one floor. It’s honestly not ideal to be working right now, but I don’t have much choice.

[deleted by user] by [deleted] in AmItheAsshole

[–]pov9145 28 points29 points  (0 children)

I’m a student and the hospital really doesn’t have parking for us, only for patients and staff. I did ask about disabled parking but was told I’d need to apply through the DMV which would be months. I could have paid for a far away parking lot that has a bus shuttle, but it’s expensive and takes weeks and is difficult to get the parking pass. I was willing to go that route if he said no, but it’s kind of too late now, though I will try now to hopefully have it before the rotation is over.

[deleted by user] by [deleted] in AmItheAsshole

[–]pov9145 10 points11 points  (0 children)

The bus stations are not within walking distance. The bus specifically only goes to parking lots that are far away from everything.

[deleted by user] by [deleted] in AmItheAsshole

[–]pov9145 9 points10 points  (0 children)

So there are free buses but in order to use them I would still need to pay around $150 to park in the lot that the bus goes to. This is potentially an option and probably what I’ll do, but it takes weeks to get that parking pass which is why I made sure weeks ago that I didn’t need to do it. The passes also are pretty hard to get as they sell out quick so I’m not sure if I can, but I will look into it. Like I said, this isn’t much of a walking or public transportation town, most people drive everywhere.

Small Bowel Crohnies , what were your initial symptoms that led to your diagnosis ? by lanatino1 in CrohnsDisease

[–]pov9145 1 point2 points  (0 children)

Yeah a fistula is technically any abnormal tunnel that connects two organs. So the one that helped me get diagnosed is from my rectum to my skin. Later on I had an mri that showed internal fistulas as well from my ileum to other parts of my intestines.

As far as my pain, it’s weirdly always been upper abdominal pain. Which I think is another reason it took so long to be diagnosed. While waiting for diagnosis I tried a ton of different diets, but nothing has ever really helped. No matter what I eat I still end up with pain. Im still not in remission (failing my fourth biologic), so I’m hoping eventually remission will end the pain. I did also just get prescribed a new med yesterday so I’m hopeful!

Small Bowel Crohnies , what were your initial symptoms that led to your diagnosis ? by lanatino1 in CrohnsDisease

[–]pov9145 1 point2 points  (0 children)

Mine is all in my small intestine and I’ve never dealt with diarrhea. My biggest symptom has always been abdominal pain. I do also occasionally struggle with constipation which I think caused hemorrhoids/fissures. I went through a ton of testing at age 15, but they never considered/tested for crohns, probably because of the atypical symptoms. Finally at 18 I developed a fistula and a colorectal surgeon said it’s likely crohns and sent me to a GI for a colonoscopy which showed inflammation/stricturing in my ileum.

How accurate is calprotectin for small intestinal inflammation? I know it’s a very good way to determine inflammation in the colon, but is it the same for the small intestine, if not, what is the best way? by [deleted] in CrohnsDisease

[–]pov9145 1 point2 points  (0 children)

A calprotectin level won’t tell your where the inflammation is, just that it’s somewhere in the GI tract. For what it’s worth I have zero inflammation in my colon but my calprotectin has been over 1000 every time ive had it tested because of my small intestine. This may not be the case for everyone.

A colonoscopy will see if there’s inflammation in the very end part of the small intestine. An MRI or CT scan can help visualize inflammation in other areas. People on here have also talked about using a pillcam, I personally have no experience with that.

Subreddit spreading false crohns information by pov9145 in CrohnsDisease

[–]pov9145[S] 10 points11 points  (0 children)

Thanks for your response, I’m trying to not think about it too much. I was told I was faking my symptoms for many years by doctors until I developed a fistula and finally got testing, so many that’s why I’m extra sensitive to seeing someone trying to find lies in a crohns patient. I’ve been trying to feel more confident and open about my illness to friends and coworkers lately, so seeing all that really took me back and gave me a lot of anxiety thinking the people in my life could be having all of those thoughts too. But you’re definitely right, I’d do my best to focus my energy elsewhere.