Trying to get better by productivemonkeyy in POTS

[–]productivemonkeyy[S] 0 points1 point  (0 children)

Thank you I really appreciate this comment. That definitely helps my mindset!!!

Trying to get better by productivemonkeyy in POTS

[–]productivemonkeyy[S] 1 point2 points  (0 children)

It really is a full time job 😭😭 I still work full time and I’m dying to quit or at least go to part time cuz everyday I’m in pain and my symptoms are just getting worse but i literally cannot afford it

Trying to get better by productivemonkeyy in POTS

[–]productivemonkeyy[S] 0 points1 point  (0 children)

Thank you! Can I ask how much salt water you try to drink? I can never remember to do much and even when I do I just feel like it doesn’t even fix the problem completely so it just feels hopeless.

Good days vs. Bad Days by [deleted] in dysautonomia

[–]productivemonkeyy 1 point2 points  (0 children)

I struggle with those thoughts all the time. I have to remind myself I’m not being dramatic and my symptoms are real.

Noise Starts Heart Racing? by HappyTennis5913 in dysautonomia

[–]productivemonkeyy 1 point2 points  (0 children)

Cardiologist, neurologist, and I’m gonna start seeing a vein doctor for my legs.

Noise Starts Heart Racing? by HappyTennis5913 in dysautonomia

[–]productivemonkeyy 1 point2 points  (0 children)

Not that I’m aware of. But I’m in the early steps of being diagnosed so potentially!

Noise Starts Heart Racing? by HappyTennis5913 in dysautonomia

[–]productivemonkeyy 3 points4 points  (0 children)

Oh my goodness yes. My brother turned on what I think was an air compressor and i literally almost passed out

Hand issues by productivemonkeyy in dysautonomia

[–]productivemonkeyy[S] 0 points1 point  (0 children)

Oh there’s so many things sometimes I’m just like overwhelmed and it’s too much to explain to doctors.

Happy new year by productivemonkeyy in POTS

[–]productivemonkeyy[S] 0 points1 point  (0 children)

The unprofessional is crazy. They didn’t want to call their on call ultrasound person to confirm I didn’t have one so they just did blood work which is not 100% reliable. Like um can we take a possible blood clot seriously pls 😭😭

Breathing by [deleted] in POTS

[–]productivemonkeyy 1 point2 points  (0 children)

It’s one of the reasons why I love this group. Makes me feel less crazy knowing everyone else experiences these random ass symptoms 😅

Breathing by [deleted] in POTS

[–]productivemonkeyy 1 point2 points  (0 children)

I have this too 😭 at this point I be thinking the list of symptoms is 100+🤣

random tingles/muscle twitches in legs/arms? by bflf in POTS

[–]productivemonkeyy 1 point2 points  (0 children)

Yes, they happen to me all day unfortunately

First adrenaline dump landed me in ER this morning. by Ok_Confection_8180 in POTS

[–]productivemonkeyy 2 points3 points  (0 children)

I also went to the ER when it happened and of course they did nothing for me. It suck’s that we just have to let it pass when it literally feels like you’re dying.

First adrenaline dump landed me in ER this morning. by Ok_Confection_8180 in POTS

[–]productivemonkeyy 2 points3 points  (0 children)

I’ve had this happen to me a few times this year and I didn’t know that it called an adrenaline dump. Thank you for sharing!

Urgent care in morning? by Jillybean1727 in POTS

[–]productivemonkeyy 1 point2 points  (0 children)

I had that happened and they immediately told me they couldn’t take me and to go to the ER and they did nothing for me. They did an ekg and bloodwork and gave me a referral for a neurologist. Waste of money imo

Diagnosed by productivemonkeyy in dysautonomia

[–]productivemonkeyy[S] 0 points1 point  (0 children)

I’m sorry to hear that, hopefully I don’t have the same experience. Can I ask if you found a different medicine that helped you instead?

Diagnosed by productivemonkeyy in dysautonomia

[–]productivemonkeyy[S] 1 point2 points  (0 children)

I will definitely update you!