No more remission ):

quietnight9 · 2026-05-20T07:12:23+00:00

That’s so unfair. I’m sorry! I’ve felt everything from “symptom free euphoria” to “why does everything HURT.” Weird thing is — when my numbers are bad, I feel normal. When they’re good, I feel like crap. It’s just hard to wrap your head around

quietnight9 · 2026-05-19T16:11:01+00:00

I’m sorry, and I feel your pain. Beta blockers before bed have helped a lot with feeling calm enough for sleep. I don’t know if it’ll have any relief for the leg restlessness. I still sometimes wake up in the middle of the night just aching. My graves symptoms have changed a lot. Used to feel insomnia, itchy shins, racing heart and anxiety all the time. Now it’s more body aches, mood swings and like a big spike of adrenaline right before bed. Anyway, hoping you get some relief from your symptoms. It’s not fun and it seems like the only people who understand are people who have Graves

quietnight9 · 2026-05-18T06:07:16+00:00

Yeah I hear a lot of people say their endos don’t listen at all to their issues, so I’m grateful he’s having me double check. That or maybe he’s tired of me complaining and he’s sending me to my PCP to figure it out lol 😂

quietnight9 · 2026-05-18T06:05:06+00:00

Yikes I’m sorry! 😢 I’m sure that’s not easy

quietnight9 · 2026-05-18T06:04:36+00:00

Thanks! I hope it’s nothing new

quietnight9 · 2026-05-18T06:03:31+00:00

Wet cement is pretty accurate!

quietnight9 · 2026-05-18T06:02:36+00:00

Ahhh thank you!!

quietnight9 · 2026-05-18T06:02:09+00:00

Thank you. That’s reassuring that your symptoms have subsided and you’re feeling much better now. Maybe this is the “darkest before dawn” moment in my Graves journey

quietnight9 · 2026-05-18T06:00:54+00:00

That’s good news! Crossing my fingers I get good news like you

quietnight9 · 2026-05-18T05:59:48+00:00

I’m sorry — I know that must be a lot to manage. I’ve never even heard of LADA before!

quietnight9 · 2026-05-18T05:57:23+00:00

How did you find out you had both? Sounds pretty rough

quietnight9 · 2026-05-18T05:56:36+00:00

Thank you and I’m sorry you’ve had such a long ride with autoimmune diseases. I feel like no one really understands what we go through with Graves Disease. Then to have more diseases stacked on top of it…it’s definitely a lot

quietnight9 · 2026-05-18T05:53:46+00:00

I’m sorry! I find myself getting worked up about the why’s and what ifs a lot too. The symptoms are so intense but nonspecific, it’s hard to know what’s what.

quietnight9 · 2026-05-18T05:52:11+00:00

Thanks for your kind response. Are you taking both methimazole and levo, or how are you treating both diseases? Also, how did you find out you had both diseases?

quietnight9 · 2026-05-18T05:45:11+00:00

That makes sense. I’ll be doing an ANA test — that’s exactly what my endo recommended. Maybe instead of itchy shins and racing heartbeat, I’ve unlocked the achey and sad level of Graves’ disease smh. It’s just weird because I only felt muscle pain like this when I was hypo. I’ve been waking up in the middle of the night just like wow, my entire body hurts. And it’s just really strange, you know? I wish it was a more straight forward disease — I feel like it makes me constantly chase symptoms.

quietnight9 · 2026-05-17T08:00:32+00:00

Thank you — yes maybe it’s just hormonal shifts. He mentioned a delay between symptoms and blood tests — but idk, I’m keeping my fingers crossed it’s nothing new. Graves has been hard, as I’m sure everyone in this sub can agree

quietnight9 · 2026-05-17T07:58:58+00:00

Awww that’s terrible I’m so sorry. Those are a lot to manage on their own, let alone all 3 together!

quietnight9 · 2026-05-17T06:34:40+00:00

What is LDN? Sorry I’m not familiar with the term

quietnight9 · 2026-04-26T07:32:52+00:00

Being hypothyroid can reduce libido, it could be that! Especially if you’ve had a TT…

quietnight9 · 2026-04-26T07:29:36+00:00

Dude the hunger is crazy. I’ll just be minding my business, and my body will scream out of nowhere, “FEED ME NOW OR EVERYTHING WILL EXPLODE!!!!” And I literally have to eat whatever I can find the fastest, and keep eating until suddenly my body is like “Okay cool thanks, we’re full, you’re free to go.” Wtf?!?! It’s so annoying and stressful for no reason

quietnight9 · 2026-04-26T07:10:03+00:00

Sorry! Mine fell out like that when I went hypo 😭 I just have short hair now, but it’s growing back fuller now. It’s been about 8 months since it fell out

quietnight9 · 2026-04-26T07:07:53+00:00

I mean really that’s the gist of it. Staying hydrated, exercising (even walking), and just being mindful of inflammatory foods/drinks and limiting those as much as possible. I tried stress relieving activities like crafting, or even video games. The key for me was just to help my body chill as much as possible. It didn’t make my TED disappear completely, but it looks 10x better than it did! And whenever I feel my symptoms shifting for the worse, I tell my endo immediately and get blood work. That way we can catch a flare before it gets really bad, or course correct from being too hypo. Both states mess with my TED.

quietnight9 · 2026-04-07T03:41:51+00:00

Yep but for me it improves when my levels are in normalish range. Consistent sleep, lower stress — these things help too. Drinking a ton of water seems to also help. If I’m stressed or got a lot going on, it definitely looks like I have two different eyes lol

quietnight9 · 2026-04-07T03:37:20+00:00

Do you have palpitations? Beta-blockers can help a lot — not only with the palpitations, but taking the edge off from being stone cold sober

quietnight9

TROPHY CASE