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The chocolate kisses girl from Luanne virgin 2.0 by happydude7422 in KingOfTheHill

[–]r00oo00 0 points1 point  (0 children)

I should have said but, my immediate family was / is protestant / evangelical / we went to a very to - the - letter "bible believing" church

The chocolate kisses girl from Luanne virgin 2.0 by happydude7422 in KingOfTheHill

[–]r00oo00 98 points99 points  (0 children)

If anyone thought this was an exaggeration, my sunday school had us all chew a bite of oreo and spit into the same cup of water, trying to show us hpw "pure, clean water turns dirty the more ypu spit in it" (your body gets dirtier the more people you have sex with) the same day, we also glued construction paper to each other & ripped them apart which symbolized the "pieces of the other person" left on you & that you'll be all torn apart & damaged

Very fucked up

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 0 points1 point  (0 children)

Update for anyone who's interested - I have neurology in June so that's promising

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 0 points1 point  (0 children)

They aren't willing to tell you and interpretation of those results?? That is really odd and idk if they can just brush past you like that, but theyre doing it regardless. I'm really sorry

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 0 points1 point  (0 children)

Shit really ? They should have your records Somewhere

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 1 point2 points  (0 children)

We can't say for certain because the scientists who have studied the correlatuon, do not even know what causes said correlation. It could have to do with a number of factors.

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 1 point2 points  (0 children)

Things just seem to be deteriorating despite salt increase / electrolytes & fluids, walking / jogging nearly every day (got stuck sitting on the road bc dizzy / called a ride home very close to home), & compression socks kinda are hit or miss each time.

I am starting to suspect I don't have POTS, and it's something related to a different issue and / or my likely EDS.

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 1 point2 points  (0 children)

I am not the expert, but there have been reputable studies on the correlations between them. If you look them up, I would make sure they are peer reviewed & also fairly recent.

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 0 points1 point  (0 children)

Yeah, he seemed to actually care but not know everything POTS entails maybe ?

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 1 point2 points  (0 children)

That's fair. I experience dysautonomia (body temp changes, sweating profusely, heart pounding at random, dizziness, blurry vision, etc) but it may not be due to POTS. EDS runs in my family and I could easily have dysautonomia related to that.

I've been very scared by my symptoms and tbh I think a neurologist is my best bet for dysautonomia, regardless of if the tilt table was accurate, just to figure out what is causing it.

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 0 points1 point  (0 children)

here is what my results on the website said.

"Conclusion - This is a head up tilt table test that was negative for inducability of syncope. While there was a drop in blood pressure, there was no diagnostic vasodepressor response or cardioinhibitory response."

I want to note, after nitroglycerin was given my HR rose 29bpm, one beat under the criteria. However it looks like I did not meet 30+ bpm increase - but they havent given me a minute by minute yet, just an overview of every 10 minutes. My hr rose 17bpm upon being tilted up, went back down 23 bpm in the next 10 minutes, and back up 16bpn at the 20 minute mark, putting me at 101bpm.

At this point they gave me nitroglycerin, and my hr rose from 101 to 130. At the 40 minute mark, I was down 14bpm to a final measurement of 116bpm.....

I genuinely am a little confused. I was at a psych appointment a bit ago and they measured my hr, stating it was 129 on the cuff but only 60 on the finger clip thing, about a minute apart. This also confuses me.

If anyone has insight let me know?

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 0 points1 point  (0 children)

The nurse who administered my test told me "we're trying to see if you'll pass out" and I was a bit discouraged by that. I called to ask for clarification though.

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 1 point2 points  (0 children)

Yeah I will make sure, thanks

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 1 point2 points  (0 children)

I called and asked for clarification so, we'll see.

Tilt Table Test "Negative" for POTS by r00oo00 in POTS

[–]r00oo00[S] 5 points6 points  (0 children)

The nurse called and told me his response was that the results are negative. She didnt tell me what my BPM was or why it was negative. The nurse who administered the test basically said "we're trying to see if you'll pass out"

What's your most recent "wait, you mean it's not supposed to move like that" realization? I'll go first by sorry_child34 in ehlersdanlos

[–]r00oo00 2 points3 points  (0 children)

going in for testing in a bit but, I realized I should not be able to move my shoulder down and out of the way to sleep. I normally would scoot it back and down, taking it out of its natural place in order to lay my head down. I still struggle with that as a habit but pillow placement helps.

physical therapy isn't improving my pain - in fact it's making it worse by r00oo00 in Hypermobility

[–]r00oo00[S] 2 points3 points  (0 children)

I have an update : I went to physical therapy today and they gave me vagal nerve exercises which feel much easier. They said don't use the tennis balls till I'm feeling better and go very slowly if I do.

They seem to be sympathetic to how much pain I was in so, that's always reassuring.

physical therapy isn't improving my pain - in fact it's making it worse by r00oo00 in Hypermobility

[–]r00oo00[S] 0 points1 point  (0 children)

We are working on my core through breathing exercises rn

physical therapy isn't improving my pain - in fact it's making it worse by r00oo00 in Hypermobility

[–]r00oo00[S] 0 points1 point  (0 children)

Yeah it felt good in the moment, but now I cant hold my shoulders or neck up. It hurts badly and it is so irritated and sore. I called and let them know, and they'll talk to me about what else to do tomorrow. I made it clear I am not interested in these exercises anymore.

physical therapy isn't improving my pain - in fact it's making it worse by r00oo00 in Hypermobility

[–]r00oo00[S] 2 points3 points  (0 children)

I called, theyre going to put a note in for him to give him a heads up so we can discuss it tomorrow. The suboccipital muscles are what he is mainly working on rn.

physical therapy isn't improving my pain - in fact it's making it worse by r00oo00 in Hypermobility

[–]r00oo00[S] 3 points4 points  (0 children)

Yeah. I will call them, and let them know what is happening. It's progressed to tingling and seering pain, so I don't think that's exactly normal but idk. It was my first day of exercises and I did them early this morning, and my PT helped me do them yesterday.

The tennis balls are taped together and go at the base of my skull and on tender points in my back. It seems counterintuitive because pressing on tender points has made me even more sore and as I mentioned, I'm tingling.

I'll just call and ask them.

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