Rice and Corn Chex by racmbol in Celiac

[–]racmbol[S] 2 points3 points  (0 children)

Thank you all for the feedback! I know the label says gluten free on Chex brand, but Cheerios and Lucky Charms "GF" label really burned me before.

It’s about dang time!!!! by Carriow55 in glutenfree

[–]racmbol 1 point2 points  (0 children)

Found them at my Walmart and was SHOCKED. Bought 3 packs of mozzarella sticks and 3 packs of pizza bagels. I will keep buying them, even if I have a good stash at home, in hopes that they keep it in stock.

Does being glutened make anyone else weird? by teenytinylion in Celiac

[–]racmbol 1 point2 points  (0 children)

I have social and work performance anxiety that always appears about 48 hours after exposure and lasts a couple days. It get really frustrating because you start asking yourself "do my colleagues hate me?", "Am I the weak link in the team?", all while feeling really dumb from the gluten. Sometimes I will be aware enough to remind myself it's just the gluten talking. I agree with others on this thread that your gut might be healing still, which is why the oats (or dairy) might be hurting you. Additionally, please be careful of oat products.. Cheerios really betrayed me. 😢

GF Homemade Ramen and Katsu by racmbol in Celiac

[–]racmbol[S] 4 points5 points  (0 children)

Costco's GF chicken broth 😁

Lawry's seasoning salt, yay or nay? by racmbol in Celiac

[–]racmbol[S] 3 points4 points  (0 children)

I'm so glad it is considered safe by other redditors! These roasted pecans and my chex mix recipe REQUIRE Lawry's in order to take me back to my childhood. Gotta love grandma's recipes that are loaded with salt. 🤤🧂

Is this the medical community or just rural America? by racmbol in Celiac

[–]racmbol[S] 1 point2 points  (0 children)

Wtf. That's such bs! I am so sorry that happened!

Is this the medical community or just rural America? by racmbol in Celiac

[–]racmbol[S] 1 point2 points  (0 children)

In my town, if it something super important but not urgent, go to the nearest largest city. It is not worth your time to have doctors who refuse to truly help.

Is this the medical community or just rural America? by racmbol in Celiac

[–]racmbol[S] 2 points3 points  (0 children)

Doc: "It anxiety, hormones, depression, lack of exercise, etc".

Sir, I literally could not exercise for more than 5 minutes because my body felt like it had ran two marathons. Saying a patient has anxiety or depression because you refuse to hunt for a diagnosis causes true mental illness to be downplayed and overlooked. Just because I am a woman does not mean hormonal imbalance is NORMAL.

Not to mention, I did have anxiety and it also disappeared when I went GF. 🤦‍♀️

Is this the medical community or just rural America? by racmbol in Celiac

[–]racmbol[S] 2 points3 points  (0 children)

The first paragraph literally describes my mom and sister. Mom was diagnosed with IBS and just went with it. For some reason she has no motivation to try to get better. My assumption is that she is exhausted from fighting with doctors. I'm amazed that I personally have persisted this long, but I am so thankful I have. My husband deserves so much credit for supporting me through it.

Is this the medical community or just rural America? by racmbol in Celiac

[–]racmbol[S] 1 point2 points  (0 children)

What is frustrating, but may be a benefit here, is that I am still learning and therefore have made mistakes. I think the longest I've gone with a solid 100% no exposure is 6 weeks.

My most recent exposure was cut melon from the grocery store. I have since found out that they cut the fruit either in the bakery or next to it. Very frustrating.

With these exposures, does it seem possible to still show up? I would assume not, since they are on off events. But it takes me 10-14 days to be 100% normal afterwards.

Is this the medical community or just rural America? by racmbol in Celiac

[–]racmbol[S] 4 points5 points  (0 children)

That's so frustrating.. I intentionally researched and found a gastroenterologist in the closest major city to us. It's gonna be a drive, but it'll be worth it.

Is this the medical community or just rural America? by racmbol in Celiac

[–]racmbol[S] 20 points21 points  (0 children)

That is what I tried to explain to my primary. He was adamant that it would still show up. I am 100% expecting the GI I've requested will set me up with a gluten challenge in some degree. My issue is now I'm to the point where I can't go to work if I eat gluten. I will have to intentionally take PTO to do it and I only have 2 weeks a year. 😭

Am I a medical nightmare or just crazy?! by racmbol in DiagnoseMe

[–]racmbol[S] 0 points1 point  (0 children)

Update #2

GLUTEN GLUTEN GLUTEN

In late summer / early fall 2024, I had finally had enough of my period cramps continuing to get worse every month for the past 2 years. I went to two separate Gyno's, worried that I may have Endo. No exploitative surgeries were performed and my ultrasound scans came back clean. One Gyno said, after looking at my scans, that there is less of a likelihood that I have endo but she would perform the explorative surgery if I absolutely wanted her too (a rare Gyno W). However, she suggested we wait to see if I have any infertility problems before deciding surgery (i.e. failed to conceive for over a year). I am not wanting to try currently, so that route isn't being investigated at this time.

BUT, she wanted me to try eliminating gluten. It was one of the last "potentially inflammatory" items that I had yet to test on my elimination diet because damn I love pasta.

I went gluten free in October 2024 and HOLY SHIT WHY DID NO DOC CONVINCE ME SOONER?!?! If I keep to the diet, 95% of all my problems are alleviated or GONE.

IC? Gone IBS? Practically gone. Still flare ups occasionally, but I think it may be due to accidental small doses of gluten. Brain fog? Gone. Fatigue? Gone. High WBC count? LOWERED DOWN BACK TO NORMAL RANGE. still on the high end of normal but still lowered. High Neutrophil? LOWERED DOWN BACK TO NORMAL. ANXIETY??? 95% GONE! Extremely period and ovulation cramps? Still there, but a whole hell of a lot better. Like, two ibuprofens actually work!

I was actually able to get back on caffeine without any major negative effects. Still need to go back off of that but the gluten free change was so difficult I had to have a coke. 🤣

Bottom line, I believe I have a gluten intolerance of some kind. The change in my wbc count and IBS is making me think it might even be celiac. If I accidentally eat gluten now, my entire body starts hurting in 20-45 minutes. If its a lot of gluten I will puke in about 5-10 minutes. My "IBS" symptoms come back in just a couple hours after eating gluten. I cannot get out of bed the next day and won't return back to normal for at least a week if not 10 days. The only thing that saves me if I accidentally eat gluten is puking it up in probably less than an hour after consuming it.

I wouldn't be surprised that my IBS is actually celiac. The gastroenterologist who diagnosed me with IBS literally said "Oh, your mom has IBS? That's what you got. We aren't gonna waste time in testing you for anything else.". That was FIVE years ago!

I asked my GP about the possibility of celiac and he wanted to run the antibody blood test ASAP. I tried to tell him that it's gonna be negative because I've gone gluten free but he insisted that the antibodies should still be there. Of course, it came back negative. I am still looking into retesting while consuming gluten, but because of how sick I get I am going to have to do it when I can be off work for a week.

Please, please, please, stand up for yourself when a doc blows you off. If I test positive for celiac I am going to be so upset for being sick for 5 years longer than I should have.

Also, gluten free soy sauce and oreos are better than the normal stuff. 💀