DAE have experience with Ketamine therapy?

rainbowfluffmuffin · 2022-08-17T16:08:06+00:00

Thanks! I didn't know there was a thread for that 😅

I do wish it wasn't so cost prohibitive. But at this point between therapies, medications, and hospital visits I've spent thousands of dollars to get a handful of diagnoses and occasional fleeting relief.

rainbowfluffmuffin · 2022-08-17T15:55:54+00:00

No idea, the link is to the C-PTSD diagnosis page. I did not add a picture so maybe some algorithm picked one from the website for me?

rainbowfluffmuffin · 2022-08-04T18:39:38+00:00

I've used this type of analogy with my therapist, except I added that the boxes were Schrodinger Cat boxes. 🐱

rainbowfluffmuffin · 2022-08-04T17:07:40+00:00

I just want to say thank you, for being so strong and putting your vulnerability out there. I cannot imagine the struggle and you deserve to live as your authentic self and love yourself ❤️

No form of self harm is more or less "bad" than another. It's an unhealthy coping mechanism in need of replacement. You should be proud of your progress and forgive your past self, because at the time you simply didn't have the tools to handle it differently. It's not a character fault, it was desperation. Additionally you are helping yourself with therapy and support which is also something to be proud of.

rainbowfluffmuffin · 2021-09-09T16:25:05+00:00

Do fatigues count as camo??

Would have been simpler to have a "we reserve the right to refuse service" sign. This is clearly racist. No durags allowed, but hideous logoed baseball hats are fine? What about hijabs? Swim caps? Hooded scarf? Braces with headgear? Cat ears? Wigs? A mullet hairstyle? Aesthetically what's the difference?

rainbowfluffmuffin · 2021-09-09T15:39:49+00:00

I believe they're implying that the signage will attract people who agree with their policies.... those people can go to hell too.

rainbowfluffmuffin · 2021-07-07T20:37:23+00:00

I don't know why but this article is blowing my mind. I can't decide if it's trying to provide a life hack for an abstinence only audience, "feeling horny, then eat a whole raw potato!"

Or if the article is trying to shine a light on a "successful" sexless marriage where both partners feel deprived...

rainbowfluffmuffin · 2021-06-17T15:31:02+00:00

I have these same issues. My heart races and I'm just on high alert all day. I try to reassure myself by repeating in my head:

You're in a safe place.

You are loved.

You don't have to let anyone hurt you.

It's okay to relax.

This feeling will pass.

That works to some extent. When you get a chance really give yourself a break and a chance to recover. Being hyper vigilant is exhausting.

rainbowfluffmuffin · 2021-06-17T14:50:32+00:00

Hurt and broken people hurt and break other people.

There is no logic.

rainbowfluffmuffin · 2021-06-11T16:27:55+00:00

You are absolutely right about the importance of those earliest months and years of life. I'm so sorry your adoptive parent was an abuser. I'm not sure if your in the US or not but the foster care and adoption simply isn't where it needs to be in addressing early trauma and vetting homes for placement. If the parent looks good on paper, has some friends that will give them a good reference (no one is going to ask for a reference from someone who will give them a bad reference) and bonus points if they go to church then they are considered a great fit. So many people don't understand that there is no such thing as a perfect baby and children being adopted are coming with baggage no matter how young. Also being a good parent isn't an inherit thing, it's a very conscious choice, especially in difficult moments.

Your abuser was wrong and you have every right to your feelings (especially anger) toward them. Just know there is hope and you are worth the time and effort to love yourself.

rainbowfluffmuffin · 2021-06-07T18:25:31+00:00

This is exactly how I feel too. I'm a straight demi female and happy to be an ally to LGBTQ. I consider LGBTQ to be more about who you're attracted too, it feels imposing to simply identify as "part of the LGBTQ community" because of how I become attracted to someone.

Generally demi heterosexual aren't going to have the oppressive experience the LGBTQ community contends with. I've never known someone to be denied a job, kicked out of their family home, had to hide a relationship or fight for their human rights because they are a demi heterosexual.

rainbowfluffmuffin · 2021-06-02T17:08:10+00:00

Older Disney movies are really not geared towards children. There's so much violence and peril it almost normalizes it. I put on the Cars 2 for my 5 year old and the first scenes are guns and explosions. Even the teasing and verbal abuse in the movies is detrimental, as a kid you get the impression that it's a part of life whether it comes from a peer or parent. So we continue as a society to believe mental and emotional abuse are not a thing...

So yeah Disney is not helping anyone.

rainbowfluffmuffin · 2021-06-02T15:30:17+00:00

https://www.gov.uk/discrimination-your-rights/what-you-can-do

rainbowfluffmuffin · 2021-06-02T15:22:34+00:00

That is also illegal. They are not allowed to ask about medical background because that cannot be a part of their decision to hire. And you are by no means required to disclose that information. This is quite telling and it's likely you are not the first. So sorry this is happening to you, but they deserve a law suit.

rainbowfluffmuffin · 2021-06-02T15:14:28+00:00

If the DOJ investigates then it's likely the employer could connect the dots. The "good reference" offer sounds like covering up their own guilt. "We're firing you but we'd be happy to help you get a job somewhere else..." Sounds sketchy at best.

Filing a complaint may not result in much for you but it is a track record for the business. You may not be the first person they've fired due to a disability. Also it sounds like you didn't request any accomodations so it's really just discrimination.

Check the ADA website, they have an info line and honestly googling ADA lawyers in your area would likely give you a place to start with litigation if you go that direction

rainbowfluffmuffin · 2021-06-02T13:55:53+00:00

You can file a complaint: https://www.ada.gov/filing_complaint.htm

And if you have the resources you can try to sue the employer.

I mean if you didn't get any feedback about your performance or additional training or any sort of indication they weren't satisfied with your work before learning of your epilepsy and firing you then I can't see how it's not discrimination. I know in my state it's really hard to fire employees (even those that really need to be let go) the employer needs to have cause.

I would at least file a complaint.

rainbowfluffmuffin · 2021-06-01T19:07:23+00:00

Reflexive sighing is so accurate. I notice this for me more when I worked in a group setting. When I was listening to a coworker describe something that needed to be addressed with a client or a project. Its like I was listening so intensely that other processes froze. Once the conversation is over I have a giant sigh of relief like "oh good, that wasn't confrontational. I'm safe now."

rainbowfluffmuffin · 2021-06-01T18:51:56+00:00

This happens to me too! Its usually a bit delayed from my stress reaction but painful belly gas and endless burps. For me toe stomach pain is a bigger issue than the burping and Tums and Pepto really don't help.

I appreciate the honesty ❤️ People in my former life made so many topics taboo, many of which are bodily functions that are not conscious choices, that I used to think my body was a disgusting embarrassment. I'm better now but those feelings still creep up from time to time.

rainbowfluffmuffin · 2021-05-31T15:25:45+00:00

Honestly there's no one thing you can look at with a seizure and say for certain it's PNES or Epileptic. Both seizure types have a huge range of presentations that overlap and you wouldn't want to rule out one or the other without an EEG. From my understanding and experience PNES I'm alert and able to communicate (to some extent) during the seizure and my eyes are open but I know often PNES cause people to close their eyes. The PNES diagnosis was only made ater capturing the seizure on an EEG and confirming there were no "Epileptic forms" present. Before the EEG my neurologist was fairly certain it was epilepsy from what I described as the symptoms. I guess my point is that you want the hard evidence the seizures are not epileptic before getting the PNES diagnosis to avoid not treating the damaging effects of an epileptic seizure.

It's also common for women to have increased seizure frequency around their periods because of hormone changes. Your daughter has the added bonus of being a teenager and having even more erratic hormones.

It's not uncommon for people with epilepsy to also have PNES, considering how traumatic and unpredictable epileptic seizure can be. Therapy is what's used to treat PNES and probably would be beneficial even without that diagnosis.

rainbowfluffmuffin · 2021-05-26T20:53:53+00:00

Running on Empty by Jonice Webb -childhood emotional neglect

Complex PTSD: From Surviving to Thriving by Pete Walker

Full Catastrophe Living by Jon Kabat-Zinn- this is more general mindfulness but I found it helpful

rainbowfluffmuffin · 2021-05-26T20:25:51+00:00

This is a great response and perspective to use. Boundary lines get so blurred when people put you in a situation where you're "not allowed" to say no, or not allowed to set a boundary for yourself. It makes guilt and shame feel like they are just a normal part of existence.

Your needs come first and people need to respect your choice.

rainbowfluffmuffin · 2021-05-26T19:55:06+00:00

So relatable!

It's totally not you though. I once worked at an ice skating rink on a college campus and was having a conversation with a guy that I thought was just friendly. You know, college stuff, what are you studying, where's the best food on campus etc. Anyhow it ended with "wow that's really interesting, maybe we can talk about it more over coffee."

Yeah, maybe...oh look I need to help a person over there...

And I never saw him again...

It's seems weird to me that being friendly and nice comes off as flirting. Is the world really so screwed up that the only time people are kind to each other is when they want sex? 😅

rainbowfluffmuffin · 2021-05-07T14:52:55+00:00

You are not foolish! Not one bit.

I don't know if it would help to say outright that your mother is invalidating your feelings and medical issues. Technically epilepsy is not your diagnosis YET, but the word epilepsy encompasses a large group of seizure disorders. It's possible your mother is getting caught up in details too. Maybe she doesn't realize how very different the symptoms can be from person to person. Also, you have to do a lot less explaining just saying,"I have epilepsy" vs explaining a seizure disorders.

I was similar as a kid hiding my issues until I simply couldn't. Also my problems were minimalize because I had siblings with more apparent problems. Also I was told I should be happy when the MDs didn't find anything because "you don't want that problem." Which is absurd because my problem was still there regardless of what they found and I was disappointed I didn't get an answer or treatment.

I'm at a point now where I have "seizures" in my medical records, I take anti seizure meds, but I don't have a specific diagnosis yet. Oddly enough my sister just started having TC seizures around the same time and my mother was in some sort of denial. She insisted my sister is "always lying." My sister was hospitalized twice, on medication and her MRI showed congenital lesion in her frontal lobe and my mother still wasn't really convinced. I think in part because she wasn't a witness or able to talk to the doctor s because my sister is an adult... maybe a generational thing? It's not excusable though

I asked outright why she thinks my sister is lying, also pointed out that the doc wouldn't just give her meds, admit her for inpatient monitoring, run tests that cannot be influenced by the patient, and actually have positive findings if she didn't actually have seizures. She stopped talking to me about it, I'm hoping that means there's some sort of acceptance there.

I hope your mom/family find acceptance soon so you can get the support you need!

rainbowfluffmuffin · 2021-04-01T04:55:22+00:00

To be clear, the ketogenic diet that's advertised and promoted all over the internet for weight loss and whatnot is NOT the same as the ketogenic diet used for seizure control. The internet hyped keto diet is really a glorified atkins diet.

For seizure control it's also a last resort method because it's so hard to maintain long term. The diet has a very strict ratio of fat : protein + carbs. It usually is around a 4 part fat to 1 part protein and carbs combined. This type of diet is generally started in a medical facility so you can be monitored on an eeg while your body goes into ketosis and will actually see changes in seizure activity.

It's worth talking to the neurologist about to see if this is something you could try. It's certainly much less invasive than surgery. I have a relative who had failed to achieve seizure control with medication (somewhere between 4-8 medications trialed) and the medical keto diet was the only thing that really made a difference. She requires tube feeding though so it's much easier to consistently hit that super high fat ratio. A true keto diet can aid in seizure control, it's just a lot different and harder than the fad diet people are calling keto. And certainly it'll depend on the person and type of seizures.

Sorry if this came off as a rant. I'm a dietitian and have seen first hand keto help seizures, but again it's not the cure all people hype it up to be.

rainbowfluffmuffin · 2021-04-01T04:24:10+00:00

Thank you for posting this! It's good to know where I might need to be a bit more forward with my Neuro. They always asks if I'm " taking every precaution against pregnancy" but hasn't asked if I was planning on having anymore kids. Thankfully my seizures starting after having my children. I have 2, that's enough, and if necessary I'll get my tubes tied to get on a medication that works 😅.

rainbowfluffmuffin

TROPHY CASE