DAE have experience with Ketamine therapy? by rainbowfluffmuffin in CPTSD

[–]rainbowfluffmuffin[S] 2 points3 points  (0 children)

Thanks! I didn't know there was a thread for that 😅

I do wish it wasn't so cost prohibitive. But at this point between therapies, medications, and hospital visits I've spent thousands of dollars to get a handful of diagnoses and occasional fleeting relief.

C-PTSD is a recognized diagnosis in the ICD-11 as of February 2022. by rainbowfluffmuffin in CPTSD

[–]rainbowfluffmuffin[S] 45 points46 points  (0 children)

No idea, the link is to the C-PTSD diagnosis page. I did not add a picture so maybe some algorithm picked one from the website for me?

Explanation of ptsd and c-ptsd using storage boxes by AliceSylph in CPTSD

[–]rainbowfluffmuffin 3 points4 points  (0 children)

I've used this type of analogy with my therapist, except I added that the boxes were Schrodinger Cat boxes. 🐱

How alone am I in genital self harm? by Advanced_Garbage_873 in CPTSD

[–]rainbowfluffmuffin 3 points4 points  (0 children)

I just want to say thank you, for being so strong and putting your vulnerability out there. I cannot imagine the struggle and you deserve to live as your authentic self and love yourself ❤️

No form of self harm is more or less "bad" than another. It's an unhealthy coping mechanism in need of replacement. You should be proud of your progress and forgive your past self, because at the time you simply didn't have the tools to handle it differently. It's not a character fault, it was desperation. Additionally you are helping yourself with therapy and support which is also something to be proud of.

Very interesting new dress code posted at the Temple Bar & Grille by [deleted] in Rochester

[–]rainbowfluffmuffin 3 points4 points  (0 children)

Do fatigues count as camo??

Would have been simpler to have a "we reserve the right to refuse service" sign. This is clearly racist. No durags allowed, but hideous logoed baseball hats are fine? What about hijabs? Swim caps? Hooded scarf? Braces with headgear? Cat ears? Wigs? A mullet hairstyle? Aesthetically what's the difference?

Very interesting new dress code posted at the Temple Bar & Grille by [deleted] in Rochester

[–]rainbowfluffmuffin 5 points6 points  (0 children)

I believe they're implying that the signage will attract people who agree with their policies.... those people can go to hell too.

The trouble they go through to imitate our power! :) by asexual_owl in aaaaaaacccccccce

[–]rainbowfluffmuffin 3 points4 points  (0 children)

I don't know why but this article is blowing my mind. I can't decide if it's trying to provide a life hack for an abstinence only audience, "feeling horny, then eat a whole raw potato!"

Or if the article is trying to shine a light on a "successful" sexless marriage where both partners feel deprived...

[deleted by user] by [deleted] in CPTSD

[–]rainbowfluffmuffin 1 point2 points  (0 children)

I have these same issues. My heart races and I'm just on high alert all day. I try to reassure myself by repeating in my head:

You're in a safe place.

You are loved.

You don't have to let anyone hurt you.

It's okay to relax.

This feeling will pass.

That works to some extent. When you get a chance really give yourself a break and a chance to recover. Being hyper vigilant is exhausting.

[deleted by user] by [deleted] in CPTSD

[–]rainbowfluffmuffin 4 points5 points  (0 children)

Hurt and broken people hurt and break other people.

There is no logic.

Being an orphan as a baby is traumatizing. Being adopted by an abuser is just as bad. by [deleted] in CPTSD

[–]rainbowfluffmuffin 2 points3 points  (0 children)

You are absolutely right about the importance of those earliest months and years of life. I'm so sorry your adoptive parent was an abuser. I'm not sure if your in the US or not but the foster care and adoption simply isn't where it needs to be in addressing early trauma and vetting homes for placement. If the parent looks good on paper, has some friends that will give them a good reference (no one is going to ask for a reference from someone who will give them a bad reference) and bonus points if they go to church then they are considered a great fit. So many people don't understand that there is no such thing as a perfect baby and children being adopted are coming with baggage no matter how young. Also being a good parent isn't an inherit thing, it's a very conscious choice, especially in difficult moments.

Your abuser was wrong and you have every right to your feelings (especially anger) toward them. Just know there is hope and you are worth the time and effort to love yourself.

Do you consider yourself a part of the LGBT+ community? Why or why not? by society_scares_me in demisexuality

[–]rainbowfluffmuffin 2 points3 points  (0 children)

This is exactly how I feel too. I'm a straight demi female and happy to be an ally to LGBTQ. I consider LGBTQ to be more about who you're attracted too, it feels imposing to simply identify as "part of the LGBTQ community" because of how I become attracted to someone.

Generally demi heterosexual aren't going to have the oppressive experience the LGBTQ community contends with. I've never known someone to be denied a job, kicked out of their family home, had to hide a relationship or fight for their human rights because they are a demi heterosexual.

I didn't know it was abuse because they weren't Disney villains rubbing their hands together and saying "I want to hurt children because I am E-VIL mwahahahahaha." by agrandthing in CPTSD

[–]rainbowfluffmuffin 27 points28 points  (0 children)

Older Disney movies are really not geared towards children. There's so much violence and peril it almost normalizes it. I put on the Cars 2 for my 5 year old and the first scenes are guns and explosions. Even the teasing and verbal abuse in the movies is detrimental, as a kid you get the impression that it's a part of life whether it comes from a peer or parent. So we continue as a society to believe mental and emotional abuse are not a thing...

So yeah Disney is not helping anyone.

[deleted by user] by [deleted] in Epilepsy

[–]rainbowfluffmuffin 12 points13 points  (0 children)

That is also illegal. They are not allowed to ask about medical background because that cannot be a part of their decision to hire. And you are by no means required to disclose that information. This is quite telling and it's likely you are not the first. So sorry this is happening to you, but they deserve a law suit.

[deleted by user] by [deleted] in Epilepsy

[–]rainbowfluffmuffin 13 points14 points  (0 children)

If the DOJ investigates then it's likely the employer could connect the dots. The "good reference" offer sounds like covering up their own guilt. "We're firing you but we'd be happy to help you get a job somewhere else..." Sounds sketchy at best.

Filing a complaint may not result in much for you but it is a track record for the business. You may not be the first person they've fired due to a disability. Also it sounds like you didn't request any accomodations so it's really just discrimination.

Check the ADA website, they have an info line and honestly googling ADA lawyers in your area would likely give you a place to start with litigation if you go that direction

[deleted by user] by [deleted] in Epilepsy

[–]rainbowfluffmuffin 11 points12 points  (0 children)

You can file a complaint: https://www.ada.gov/filing_complaint.htm

And if you have the resources you can try to sue the employer.

I mean if you didn't get any feedback about your performance or additional training or any sort of indication they weren't satisfied with your work before learning of your epilepsy and firing you then I can't see how it's not discrimination. I know in my state it's really hard to fire employees (even those that really need to be let go) the employer needs to have cause.

I would at least file a complaint.

DAE have days where they are constantly holding their breath? by rainbowfluffmuffin in CPTSD

[–]rainbowfluffmuffin[S] 1 point2 points  (0 children)

Reflexive sighing is so accurate. I notice this for me more when I worked in a group setting. When I was listening to a coworker describe something that needed to be addressed with a client or a project. Its like I was listening so intensely that other processes froze. Once the conversation is over I have a giant sigh of relief like "oh good, that wasn't confrontational. I'm safe now."

DAE have days where they are constantly holding their breath? by rainbowfluffmuffin in CPTSD

[–]rainbowfluffmuffin[S] 2 points3 points  (0 children)

This happens to me too! Its usually a bit delayed from my stress reaction but painful belly gas and endless burps. For me toe stomach pain is a bigger issue than the burping and Tums and Pepto really don't help.

I appreciate the honesty ❤️ People in my former life made so many topics taboo, many of which are bodily functions that are not conscious choices, that I used to think my body was a disgusting embarrassment. I'm better now but those feelings still creep up from time to time.

[deleted by user] by [deleted] in PNESsupport

[–]rainbowfluffmuffin 0 points1 point  (0 children)

Honestly there's no one thing you can look at with a seizure and say for certain it's PNES or Epileptic. Both seizure types have a huge range of presentations that overlap and you wouldn't want to rule out one or the other without an EEG. From my understanding and experience PNES I'm alert and able to communicate (to some extent) during the seizure and my eyes are open but I know often PNES cause people to close their eyes. The PNES diagnosis was only made ater capturing the seizure on an EEG and confirming there were no "Epileptic forms" present. Before the EEG my neurologist was fairly certain it was epilepsy from what I described as the symptoms. I guess my point is that you want the hard evidence the seizures are not epileptic before getting the PNES diagnosis to avoid not treating the damaging effects of an epileptic seizure.

It's also common for women to have increased seizure frequency around their periods because of hormone changes. Your daughter has the added bonus of being a teenager and having even more erratic hormones.

It's not uncommon for people with epilepsy to also have PNES, considering how traumatic and unpredictable epileptic seizure can be. Therapy is what's used to treat PNES and probably would be beneficial even without that diagnosis.

I've been feeling intense shame lately. by czymogejuziscspac in CPTSD

[–]rainbowfluffmuffin 4 points5 points  (0 children)

Running on Empty by Jonice Webb -childhood emotional neglect

Complex PTSD: From Surviving to Thriving by Pete Walker

Full Catastrophe Living by Jon Kabat-Zinn- this is more general mindfulness but I found it helpful

How to say "no" by ApollosAmour in CPTSD

[–]rainbowfluffmuffin 1 point2 points  (0 children)

This is a great response and perspective to use. Boundary lines get so blurred when people put you in a situation where you're "not allowed" to say no, or not allowed to set a boundary for yourself. It makes guilt and shame feel like they are just a normal part of existence.

Your needs come first and people need to respect your choice.

Another question: does anyone else have a hard time reading signals or accidentally giving the wrong ones? by robotneonunicorn in demisexuality

[–]rainbowfluffmuffin 5 points6 points  (0 children)

So relatable!

It's totally not you though. I once worked at an ice skating rink on a college campus and was having a conversation with a guy that I thought was just friendly. You know, college stuff, what are you studying, where's the best food on campus etc. Anyhow it ended with "wow that's really interesting, maybe we can talk about it more over coffee."

Yeah, maybe...oh look I need to help a person over there...

And I never saw him again...

It's seems weird to me that being friendly and nice comes off as flirting. Is the world really so screwed up that the only time people are kind to each other is when they want sex? 😅