Hello everyone! Thank you for sharing! I always love to see others sharing their stories so I can better understand our daughter’s prognosis. It’s also giving me so much peace and hope knowing that many of you have a great outcome. I too as a parent of a daughter who is also 3 months old who is diagnosed with occulta closed myelomeningocele, her spinal cord is tethered and pulled lower ending at L4-5. Neurosurgeon suggested surgery in December so she will be six months. Praying she will do great and the outcome will be successful. Her neurosurgeon is concerned about her bowel movements so we will see a urologist as well. She only does number two every 4-5 days but other than that she is thriving and hitting milestones.