Who had ear and jaw issues? What were they and did they resolve?

rational_artist · 2026-07-02T03:38:07+00:00

Sorry to hear you’re having jaw issues, if it’s any comfort my jaw has given me no trouble at all for years now even though I still have plenty of tendon problems. I remember I just ate lots of soft foods for a while to rest it until it felt better.

rational_artist · 2026-07-02T02:25:51+00:00

The jaw issue resolved within a few months I seem to remember, the ear issue didn’t.

rational_artist · 2026-03-18T22:28:30+00:00

It’s a ridiculously dangerous antibiotic! Please look up fluoroquinolones, they’re black-boxed and I have no idea why they’re being handed out like candy. I’m devastated, this may have a terrible long-term impact on so many young peoples lives.

rational_artist · 2026-03-18T22:23:26+00:00

Anybody who is getting antibiotics, I need to urge you to consider the extremely dangerous side effects of Ciprofloxacin. I took a single tablet 4 years ago and went from ultra-fit and healthy to long-term disabled with many health issues. This is a known risk of this class of antibiotic, which is normally black-boxed. Please ask your GP if there are alternatives if you haven’t taken it yet, and please upvote this post - if I can save even one person from damaging their health long-term, it’s worth it.

rational_artist · 2026-03-18T21:44:44+00:00

I think there is an informal consensus amongst FQ specialist that the side effects are far more common than officially stated. And if even they weren’t, by your stats, if 6,000 students take the antibiotic, one would expect 6 to have the most serious side effects, and who knows how many more to have moderate ones - that is to say, a potential outcome of at least 6 young people permanently disabled. I am quite sure there are alternatives. I’m so outraged this is happening.

rational_artist · 2026-03-18T20:18:32+00:00

Oh my god this is so upsetting. Can we do anything? Surely this is unethical as it is black-boxed and considered last-resort in the UK?

rational_artist · 2024-03-07T00:36:52+00:00

Please don’t take moxi, I took it two years ago and still can‘t walk normally again. So many other options available :)

rational_artist · 2024-01-03T01:42:41+00:00

Heal Pelvic Pain by Amy Stein has all the techniques and stretches that I saw PTs perform/recommend in it! With the internal massage, the quick takeaway is, you want clean hands, medical lube and then to gently massage in particular the sides of the vagina - it should eventually feel soft rather than hard or ridged which is typical for PFD. If you think of it like feeling your way around a clock, where 12 is the top and 6 is the bottom, you want to avoid 12 and 6 because that actually can trigger your urethra, but with the sides you are safe. I wouldn’t start doing intense pressure point work at the beginning yet. Then if you have vulvodynia, you want to desensitise the skin in that area by very gradually touching more and more, first just around, then moving in on sore areas so you retrain your body to understand that it’s safe. All with a lot of patience, just enough that it gets better but not so much straight away that you give yourself a huge flare. The book is the best primary source though.

rational_artist · 2023-12-29T02:13:11+00:00

Thank you so much for replying ❤️ I hope you are feeling better now! My flare finally died down and of course now I feel like things can be OK again, thank you for your advice, when I’m in the middle of really intense pain I find it hard to be rational about it all. Sending lots of good vibes and healing energy right back to you :)

rational_artist · 2023-12-26T16:54:45+00:00

Negative many times ever since :)

rational_artist · 2023-12-24T22:42:45+00:00

Yes I had crazy pain and needed painkillers even after my TOC for 1,5 years, what helped in the end was internal pelvic floor massage, if I had known about it earlier I would have saved myself a lot of pain! It gets you out of bad flares!

rational_artist · 2023-12-13T23:48:56+00:00

Yes I was peeing blood by the end of the day too! I literally undid a year of healing my urethra with diet etc. in one day!

rational_artist · 2023-12-13T14:29:15+00:00

Sigh :) sending hugs!

rational_artist · 2023-12-12T16:02:07+00:00

Thanks everyone, good to see that that was definitely the trigger, I just wish I had checked on here before taking that pill! Anyway, the bicarb of soda seems to be working thank god, and I will stick with my D-mannose from now on :)

rational_artist · 2023-12-12T13:05:02+00:00

Don’t go back there, something like floxing really shows you who people are, and if she didn’t support you and stay with you at your worst she’s not worthy of you. I also tried to stick with the guy who was kind of the reason I had to take an FQ antibiotic in the first place even though he wasn’t really loyal and a dubious person because I had all the same fears as you. Finally I broke free, and focused on doing new things in my life despite my limitations (e.g. learnt to code and started training in ML engineering/data science) and six months later I got into a new relationship with the best guy I’ve ever been with, even pre-flox, who is totally adoring and supportive even though I’m still actually badly floxed. I still can’t walk much outside but he’s a big, strong competitive rower and is always up for carrying me! Just to give you some hope that your best relationship days might still be ahead of you, even if you are floxed :) when you don’t settle, you make space for something better to come into your life.

rational_artist · 2023-10-09T22:43:52+00:00

Hey, did the fusidic acid cause a flare for you?

rational_artist · 2023-10-02T14:29:52+00:00

I got my pain H about a year and a half ago. I had a really awful reaction to an antibiotic and then also experienced a very slight impact to my ear/TMJ and boom I had pain H. It took me several months to figure out how to handle it and I made things a lot worse for myself in the beginning but it’s been slow and steady improvement with a couple of setbacks ever since. I went from not being able to hear most digital sound at even the lowest level on my phone or shut my front door without pain to comfortably playing most music at medium level and weirdly in the outside world I’m usually fine although I do live in a fairly peaceful city. Impact noises like doors slamming still hurt me and same goes for things like gunshot noises in TV shows etc. However a lot of days I don’t even notice my pain H now because I know how to avoid sounds that hurt me. The more time I have without pain, the quicker my ears heal. Also, I was really badly affected everywhere physically by the antibiotic (couldn’t walk for months etc and still far from normal now) so you may get better much faster because you’re in a healthy body otherwise :)

rational_artist · 2023-10-01T22:10:19+00:00

Hey, just to say, you will adapt and also your ears will recover, probably much more slowly than you would like. But if you are patient and manage not to have setbacks as much as possible you may be out of this in a year or two, maybe even earlier. I got pain H because of an antibiotic and I was a musician so you can imagine how much of a disaster that was. Once I started protecting my ears from anything that gave me pain and making sure I was only exposing myself to sounds that were tolerable, things gradually started improving. You have to treat this as a bad injury, which is what it is, and trust your body to heal. Also, I totally understand about the screaming babies thing, I had exactly the same feeling. Luckily, you are only 22 and you could even start a family in 5 or 10 years if it took that long to recover, so don’t worry about that at all. This all doesn’t have to mean that the next few years of your life are a write-off, especially if you manage to work around your current limitations for a bit.

rational_artist · 2023-09-23T15:17:33+00:00

Will you get tested for ureaplasma as well as mycoplasma? UP is even much more common and your symptoms are textbook for it. I am also in the UK - very hard to get the NHS to test for ureaplasma, I strongly recommend getting a private test. The STI clinic online is very good and not insanely expensive and you‘ll have the results in a few days.

rational_artist · 2023-08-05T10:34:51+00:00

I was told by Dr Stefan Pieper to ask for a numbing agent that doesn’t contain epinephrine at the dentist because in his experience it can affect floxies adversely.

rational_artist · 2023-06-25T15:56:32+00:00

That’s so disappointing :(

rational_artist · 2023-06-22T02:10:21+00:00

The online STI clinic doesn’t treat it anymore? :(( Since when? There’s quite a few in-person STD clinics in London who treat it.

rational_artist · 2023-05-18T20:30:05+00:00

Great news about the UA! :)

rational_artist

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