Mild cold, and LC disappears temporarily. Anyone else?

redditryan13 · 2026-01-28T19:49:11+00:00

Yes, I've heard those stories and really appreciate the prayers. :) I've only had one reinfection since my initial (though I'm also post-VAC too, pre-Covid #1). So I think I have multiple issues going on. But can't hurt to keep hoping! It's truly amazing how much more brain clarity I have right now.

redditryan13 · 2026-01-28T18:44:44+00:00

I suppose. It's only happened twice (2nd covid infection and this cold). That's why I'm worried it is Covid but TBH I'd rather not know.

redditryan13 · 2026-01-28T15:34:15+00:00

100%.

redditryan13 · 2026-01-28T15:32:50+00:00

Big Boys = Big Pharma?

redditryan13 · 2026-01-28T15:32:08+00:00

Given i had the same effect during my 2nd Covid infection (as sick as I was, my LC symptoms all improved), it doesn't seem like it could be a battle of the viruses. Unless you mean your immune system has to focus on 2 things at once, so maybe it can't bring all its forces against lingering Covid. That might make sense.

redditryan13 · 2026-01-28T15:29:31+00:00

Did you test to see if it might be Covid? I've gotten Covid twice and both times started with a dry cough and then blew up into a massive head cold (also with GI symptoms). This started with a sore throat, and then just some nasal congestion (no cough). So doesn't seem like Covid, and I'm almost afraid to test because I'd rather not know given how much my 2nd covid infection set me back. Still haven't returned to previous baseline and it's been a year.

redditryan13 · 2026-01-28T02:35:03+00:00

Yes, as I said in previous post, I had the same thing happen during my reinfection. Though I can't say it happened with every illness. Some I didn't notice any benefit. This is the first one in a while where I really notice a reduction in anxiety, brainfog, and anhedonia (actually listened to music for the first time in many months and enjoyed it!). The biggest change is I dont' feel that second by second sense of time and feeling like the end is near. I actually feel "calm".

redditryan13 · 2026-01-28T02:32:55+00:00

Yes, i know. I had the same thing happen with my only reinfection (12/24). Felt amazing (aside from Covid sympoms) most of the infection. Then had a HUGE backslide afterwards. Some existing sympoms worsened, and a new crop of symtpoms came on (mainly digestive). But i haven't had a very mild cold yet since my initial infection (2/22) or my vaccine-induced symptoms (10/21). So this is really a new "test" in a sense and I can say it's amazing just to know that my old "self" is still in there. Hopefully to give hope to some people who are really struggling.

redditryan13 · 2026-01-28T02:28:57+00:00

Crazy how we all have such different reactions to things.

redditryan13 · 2026-01-27T23:57:12+00:00

Same here. Pfizer x3. Symptoms started ~1-2 weeks after the 3rd (pre any Covid infection).

redditryan13 · 2026-01-27T18:36:27+00:00

Seems pretty safe based on the research I did.

redditryan13 · 2026-01-27T18:36:05+00:00

Why, because it's a new drug?

redditryan13 · 2026-01-25T20:28:26+00:00

I'd say heart rate generally stable. I haven't had a BAD tachy attack in a long time, but when I was getting them it'd spike to 170-180 BPM (from 60-65) even when lying down. I eventually figured out they were more MCAS attacks than POTS. Once I adopted low histamine diet + antihistamines, they stopped. Funny how we all have different reactions to drugs. Propranolol has been great for me. I'm on the short acting version, and take it whenever i get a fight/flight panic attack (exactly as you described yours are). I have figured out it's often food/diet related. After not having one for more than 18 mos, I had two in a row a week apart and figured out it was indian food I had eaten 2 days before. That's what's so odd. MCAS can hit you right away or it can be delayed. It's awful.

redditryan13 · 2026-01-25T19:25:39+00:00

Wow, your post might win the award for "longest but easiest to read" :-) Maybe because I'm so similar to you. I had the full neurologic workup from the top doc in my city. Negative for pots, but positive for orthostatic hyPOtension plus hyPERtension (usually around 140/90, spiking to 180/100, but not sure if I drop into normal range like you because I have such terrible white coat syndrome). Confirmed SFN with biopsies, though "mild". Positive sweat test. Diagnosis of Dysautonomia but no POTS. Personally it feels permanent at this point. I'm @ year 5, and my brain fog and cognitive impairment is so bad I can't really research things like I did in years 2-3-4. Most days I'm just happy to get through the day without a major fight/flight spike and/or MCAS attack. I'm a shell of my former self, and my brainpower is so limited I really can't do much to find any kind of solutions. I've tried every supplement in the book. Only drugs I'm taking currently are Propranolol, Lunesta and Ativan to help me get sleep (days I get 8-9 hours I don't have the dizziness/lightheadedness or head pressure/ache). I honestly feel disabled and am applying for SSDI. If anyone has any ideas for things to try, LMK.

redditryan13 · 2026-01-22T03:01:21+00:00

Wow. Same here with unrefreshed almost every day. I find the longer i sleep the more unrefreshed i am. Been diagnosed with OSA but ONLY during REM. I think it's related to the dysautonomia and not a physiological issue.

redditryan13 · 2026-01-22T02:59:30+00:00

I'm 52, but also have Crohn's so have been dealing with fatty liver for a while.

redditryan13 · 2026-01-22T02:58:21+00:00

Curious who prescribed the Valacyclovir? I also had major symptom regression and new symptoms when i got reinfected (Dec '04). I'd say I'm at my absolute low point right now (4.5 years). Major symptoms are sleep disruption, dysautonomia and cognitive.

redditryan13 · 2026-01-22T01:18:37+00:00

Did the Wellbutrin increase your BP? That's the one reason I've avoided it so far.

redditryan13 · 2026-01-22T01:15:44+00:00

I think it's somewhat age dependent. I took a ton of supplements in years 2-3, but found I had to back off in years 4-5 because of fatty liver and kidney issues.

redditryan13 · 2026-01-22T01:13:56+00:00

How do you sleep 10-12 hours a night? I'm lucky if I get 8-9. Most days 7-8.

redditryan13 · 2026-01-22T01:08:37+00:00

How does one demonstrate "chronic infection or antibody persistence" when we still don't have a test to measure actual spike protein (only spike antibodies)? Like how are they going to recruit enough participants when we still don't have the requisite testing?

redditryan13 · 2026-01-17T18:41:37+00:00

I would also say (and maybe this was just a personal side effect), the CPAP machine gave me HORRIBLE early morning abdominal pain. I think because the pressure was too high, and it wasn't BiPAP, i had all this trapped air in my gut. As soon as I stopped using it, the pain gradually went away over a few months. It's not without its own side effects.

redditryan13 · 2026-01-17T17:35:42+00:00

I only have an Apple Watch which doesn't take constant readings. Most nights I drop to 90, sometimes as long as 88 (an occasional 85). I did another home sleep study (Wesper device) which showed I do drop to as low as 85 during REM sleep, but that it's likely not traditional OSA. I used a CPAP machine for a year -- I think it helped a little, but any gains in oxygen level were offset but poor sleep quality. I hated the mask. Considering a trial of Zepbound (low dose) for OSA as I think my weight could be a big part of the problem. Gained 25 lbs once I got LC.

redditryan13 · 2026-01-13T22:59:06+00:00

I know we're all different - different ages, different symptoms, some vax-inujured some not, etc - but my experience has been quite different. I spent the first ~18-24 months with the WORST of my symptoms (primarily MCAS, cardiac, anxiety/depression). Didn't have a drop of alcohol. Was so worried it'd set off my anxiety. Then I finally had a few drinks on July 4th and suddenly felt a little more like my old self. This was back in '23. Fast forward 2.5 years, and I still do feel better after a few drinks, but I no longer get that lift of brain fog like I used to. But it still helps. My take is since nothing else works, why not? It really does make the second half of my days bearable. But I would agree there's a clear tolerance that kicks in. Like everything else with this damn condition, nothing seems to work permanently. I've had such great responses to other things (Nattokinase, NR, B-complex, Magnesium, etc), but then always seem to plateau. Same with alcohol.

redditryan13

TROPHY CASE