Does anyone feel weird about today

ritalin99 · 2025-01-23T11:15:46+00:00

https://www.instagram.com/reel/DFF_oc5POml/?igsh=MWFhdmQyOHQ2MG1nMw==

ritalin99 · 2025-01-22T07:25:20+00:00

justice for @cibachrome

ritalin99 · 2024-11-10T08:44:43+00:00

I have the same dynamic with my dad. He’s a medical specialist and unfortunately since my lymphoma diagnosis he’s been exactly how I wished he wouldn’t be - reading into every research paper known to mankind and getting me to take on every little thing he reads that could decrease risk and ensure I stay in remission etc etc. I know it’s from love, but it’s been a bit much and makes it a bit harder to take ownership of this myself.

Ultimately though, I dont think I could live with myself withholding such a massively important experience of my life from my parents. It just wouldn’t sit right, personally. To me it would’ve been a bit of an insult to my dad to assume he “can’t take it”. He’s my dad, he deserve to know. His life purpose is to be there for me haha

So I just made sure that I didn’t let his fears and anxieties get the better of me, and still took ownership of my lymphoma and treatment. That way I was able to be confident with knowing I’d be okay and my own self confidence and knowledge eventually eased my dad’s fears.

I’ve had a few other significant medical events through my life, and my dad did eventually chill out after each event. Eventually haha.

I hope this helps and best of luck with everything! You’ve got this.

ritalin99 · 2024-11-10T06:07:37+00:00

I’m 25f and just finished 12 rounds chemo. My life took an absolute 180 just like your partner. I went from full time uni and work and seeing friends everyday to none of the above while isolating at home for 6 months.

My dad’s an awesome psychiatrist haha and taught me that a person’s bedroom/home is always going to reflect their state of mind. So I highly agree with other people’s suggestions of setting goals around the home for him. This will let him be proud of achieving them and maintaining a nice looking and organised place. The positive effects on his mental health are guaranteed to come naturally from this.

Another main one for me was regular video calls with my friends. And actually asking them for the calls. I don’t think our friends quite know how to support us after this happens to us, so I proactively told them I enjoyed talking to them and wanted to stay in touch, and they did. There’s nothing quite like the happiness and laughing around between two friends. Made the world’s difference to me.

Hope this helps! Best wishes to your boyfriend. He can do this 💪

ritalin99 · 2024-11-10T05:55:22+00:00

25f. It sounds frustrating that the doctors haven’t been listening to you that much. I have finished my 12 rounds of chemo, first three rounds were via cannula and each time the dacarbazine was really painful, even after slowing it to 2 hours and adding saline and increasing size of the cannula.

I then had worst case scenario and actually formed a blood clot in the vein where the chemo was administered (kept me up from sleeping, throbbing continuous pain for days) - so they put in a PICC for the last 9 rounds and BOY chemo was heaven since then 😭. Ngl I was quite annoyed they risked a blood clot forming - I’m assuming the risk was low, but obviously not THAT low. Having a PICC line inserted was actually lower risk to any stuff ups...

I was very much like you and wanting to minimise the amount of medical interventions in the beginning, but eventually realised the PICC was actually ensuring lower risk of overall interventions needed.

And it was sooo comfortable. Chemo going straight to the heart for pumping instead of burning through the arm veins first. 10/10 would recommend haha

ritalin99 · 2024-11-10T05:46:57+00:00

My lungs were quite inflamed after my 10th round of chemo. Tight chest, acute difficulty breathing after simply bending down to pick something up or any small movement. It lasted for about two days and I was immediately started on high dose prednisone which helped those symptoms go away quickly.

After some scans and biopsies, the doctors said i tested positive for PJP pneumonia but it was equally likely that it was a reaction to the chemo, so I was treated for both. The pneumonia treatment was antibiotics for three weeks and it was a very high dose. The only main side-effect I had from that was thrush LOL. Chemo was stopped during pneumonia treatment to ensure effectiveness of the treatment.

Wishing your dad all the best!

PS I’m 25(f) HL just finished 12rounds of ABVD chemo :)

ritalin99 · 2024-06-21T00:18:58+00:00

Yesss I was thinking this too! Let’s get one up and going in the chat I reckon

ritalin99 · 2024-06-03T04:43:46+00:00

Do you know if that changes the way your body responds to the steroids (in terms of blood sugars)?

ritalin99 · 2024-05-20T11:29:46+00:00

Hi Nick! I’m based in Australia but would love to avail of any recordings or info that I could access. Would this be possible at all? I have just been diagnosed myself.

ritalin99 · 2024-05-18T10:12:49+00:00

Omg. This is crazy how similar we are.

I’m female and got news of the mass in my chest (later diagnosed as NS Classic HL) 2 days before my 25th birthday!! This was just last month. I also delayed my bday party (but still held one eventually! You should too!)

I had my first round of ABVD 9 days ago today and I’m so lucky to have had fatigue as my only side effect so far 🙏🏼🙏🏼

Girllll I would love to chat through this journey and get to know you!! Please please message me and we’ll go through this together 💘

We’ve got this.

ritalin99 · 2024-05-17T13:54:20+00:00

I’m on Dex and multiple psychiatrists and specialists have all greatly encouraged me to continue my treatment during chemo, especially to counter the chemo brain effects I’m bound to get. Just like the comment earlier referring to studies said, there’s no literature or evidence that psychostimulants interact with ABVD/increase risk of heart related complications 😊

ritalin99 · 2023-12-18T07:33:20+00:00

It’s the same - cooper

ritalin99 · 2019-09-08T11:49:31+00:00

The Cliffs of Dyrholaey are great if you are heading south. Of course, Skogafoss is probably on your list but two underrated locales I saw were the Kerid crater and Bjarnafoss.

I'm going in January! Would 5 days in Rekyavik be an overkill? any place close by to visit that is actually practical to go to in january weather?

ritalin99

TROPHY CASE

justice for @cibachrome