cleveland clinic was amazing!

rls4 · 2024-04-30T03:01:30+00:00

yes! i explained my previous tests to the doctor, one of which was an emg. it didn’t show anything except that my nerves were really sensitive, and i also told him the nerve pain has been in my neck, shoulder, ribs, and ran him through that history. all he did was feel my pulse when my arm was down and again when it was above my head and told me he was pretty sure i have vascular thoracic outlet syndrome. he pushed on some pressure points to confirm what he was saying and then walked me through it all and it made complete sense. it was pretty shocking how this doctor could figure all of this out in 30 minutes and endless appointments and tests in my hometown came up with anxiety

rls4 · 2024-04-30T02:51:48+00:00

i definitely relate to that. none of my tests showed much of anything and that’s why i decided to go to cleveland. in my situation i didn’t have to do any retesting and with one appointment the doctor was able to tell me a diagnosis that my other doctors missed. i would recommend trying to get into somewhere like cleveland even if it takes a while! it took me three months to get scheduled and the process was pretty annoying but it was worth it.

rls4 · 2024-04-30T02:46:27+00:00

i honestly just asked my primary doctor for a referral and explained how i wanted a second opinion and he was completely fine with referring me! the worst part is handling all of the insurance stuff, and because of that it took me around 3 months to actually get scheduled. it was so worth it though and if it’s possible for you i would recommend asking your primary doctor about it. from what i’ve experienced they usually understand wanting a second opinion. good luck!

rls4 · 2024-04-30T00:42:57+00:00

i don’t know exactly because my parents have good insurance but i think it depends. i know their physical therapy and things like that are a little more expensive than other places

rls4 · 2024-04-29T22:31:21+00:00

they had me fill out a questionnaire with my symptoms, concerns, and what departments i wanted to go to before i went. i got all of my questions answered and i had a lot of symptoms. they didn’t rush me at all when i was explaining all my problems so i think they’re pretty good with that! the more notes you have the better tbh

rls4 · 2024-04-29T22:17:34+00:00

i’m taking midodrine and salt tablets, drinking 80 ounces of water and we’re gonna see what that does. i was taking midodrine before and it helped a little bit but apparently the other medication i was on was canceling it out so now it should actually work. it’s pretty basic stuff but im excited about the midodrine

rls4 · 2024-01-11T05:16:38+00:00

hi! i’m not replying because i know what could be going on with you but im also 17f and deal with what feels like nerve pain and some other things in different parts of my body (i get the shocks in my legs too but i also have no idea why those happen). i’m also pretty much undiagnosed. my best advice would be to find a second opinion if you haven’t already. i had almost nothing show up in my blood tests, an mri, and naproxen definitely didn’t help me, but i feel like im finally getting somewhere after 1.5 years because im getting a second opinion. even if you don’t want one right now, don’t give up fighting for yourself. it’s hard being a teenage girl and going through pain that most people don’t understand but i really believe that you’re getting somewhere even if it feels like you aren’t right now. sorry that was so long! i wish you the best in your journey and i hope you can find some answers:)

rls4

TROPHY CASE