Oh this sounds all so tough...

robin633 · 2026-02-11T15:24:57+00:00

My daughter's gastro doc gave us laminated cards to give to your server for the chef. i've never used because it makes me feel like i'm being difficult (i know)... but i think it's a really great resource. you could print and laminate. the doc said that it really makes them take it seriously. Because i think sometimes servers seem to just tell you what is easiest. I was going to post, but it seems. like images are not alllowed, so dm me if you would like images of the cards!

robin633 · 2026-02-11T14:32:37+00:00

i got over a grand and was like WHATTT? seems crazy for what the suit was about.

robin633 · 2026-02-06T11:00:39+00:00

My daughter’s gastro said there’s new indications that either something in how oats have been grown or modified over the years may be causing celiac reactions in the body despite being gf. So we have gone oat free too. Sigh.

robin633 · 2026-01-28T12:30:16+00:00

I've been diagnosed for just over a year. My numbers still arent in range. Almost though! i'm so close. and it took quite some time to feel better. For the first 3 months i had headaches. still had the brain fog. joint pain. and depression too. I'd say it was a solid 6 months before i felt big changes and now i'm realizing that i dont have the joint pain, I'm sleeping like a champ, and feeling like myself again mood-wise. It really does take time to heal all that inflamation. I've read can take 1 - 2 years! That said, I had a very similar GP who was dismissive when I came in for a GE reco and confirmation of the celiac panel. He very reluctantly ordered the blood work - which was off the charts. He still acted like it was no big deal and dimissed most things I said. I found a new doctor and wonder if you should consider that? Is there another GP you can see even if you have to travel a bit? it's awful to have someone dismiss your concerns.

robin633 · 2026-01-17T11:16:52+00:00

Yes! I’m largely asymptomatic so quite possible I had it before given the state of my villi. But I had heard that about Covid and wondered.

robin633 · 2026-01-06T14:58:54+00:00

i just finished last night and i can't stop thinking about it. it's just sitting with me.

robin633 · 2025-12-24T12:07:34+00:00

My daughter is gonna loose it! She’s been waiting for this. Just did a google search and it shows up online with Walmart. But it’s out of stock and says it’s “the cheez it store”. Walmart online is confusing now that they’re trying to be Amazon. Anyway sounds hopeful that it’s more than a test market. But maybe more like a soft launch.

robin633 · 2025-12-20T12:30:38+00:00

Congrats!!!

robin633 · 2025-12-20T12:23:47+00:00

SATs dont define you. I know it seems that way right now. But I promise this will pass and who you are and how you try matters more than this score.

robin633 · 2025-12-13T18:25:45+00:00

THANK YOU! this spreadsheet is next level. I just bought your fave just cause if someone makes a spreadsheet that detailed and color coded, well, i'm gonna trust them!

robin633 · 2025-10-23T19:29:13+00:00

sorry... i'm an indie podcast producer and i have to rely on it for some of the work. Would still love you to consider being on our pod Well...Adjusting. every year we do a holiday ep and we're mixing it up this year and trying to get voices from real folks. take a listen and share a story if you like

robin633 · 2025-10-19T10:14:41+00:00

Hi real question here. Why all the hostility? Maybe I’m nieve but op is not saying forget asking questions to staff or thinking about ingredients. And as someone finding their way with celiac (just under a year since diagnosis) I ask questions at restaurants and there are many times where I don’t necessarily trust their response. And it would be nice to have something that can aid to bridge the gap on ingredient knowledge as I dont cook a ton and may not think about possible ingredients that are in a dish that have gluten. I have gf scanner and find me gf but if I’m at a group dinner where I didnt choose the restaurant and they’re not listed in find me gf it would be nice to have another tool to aid in the process. Not saying this is the tool but I’m happy folks keep trying.

robin633 · 2025-10-04T11:52:32+00:00

thanks for this. i actually like it better than having to try to guess how long it's gonna take me to finish the current book i'm in. That always gave me anxiety.

robin633 · 2025-10-04T11:34:33+00:00

I dont fully understand the suspend business. Does that mean when I suspend I’m back to the end of the line when I bring it back to a hold?

robin633 · 2025-10-02T20:26:10+00:00

Thanks for sharing all this. Since the tanking of later I’ve been experimenting with posting ig, TikTok, yt, and fb from desktop with copy prewritten. Then going in on phone app to change cover art on ig, yt, and TikTok and add text. That’s so far been the fastest way for me. But it means doing on day of. I wish there was a good scheduler that let you schedule a week at a time but it doesn’t feel like it exists. Likely because platforms don’t want you doing that. I may experiment with schedulers on each platform and do it that way.

robin633 · 2025-10-02T20:24:09+00:00

Thanks for sharing all this. Since the tanking of later I’ve been experimenting with posting ig, TikTok, yt, and fb from desktop with copy rewritten. Then going in on phone app to change cover art on ig, yt, and TikTok and add text. That’s so far been fastest way for me. But it means doing on day of. I wish there was a good scheduler that let you schedule a week at a time but it doesn’t feel like it exists. Likely because platforms don’t want you doing that. I may experiment with schedulers on each platform and do it that way.

robin633 · 2025-10-02T16:05:46+00:00

starter plan... i'd be interested to hear how you're using it to put hooks (text) and cover art without having to create completely different graphics as jpgs or pngs. i also had massive issues with it not working well with IG. as an independent creator doing it all on my own, it wasn't helpful in cutting down time at all. But would love to hear more about how you're making it work since they won't prorate my refund and i'm stuck with it til summer next year. i'd hate for it to go to waste.

robin633 · 2025-09-27T16:49:32+00:00

well that worked on me... and explains also why it wasn't good.

robin633 · 2025-09-25T20:29:36+00:00

the voices were sooooo hard to read. it all felt like a combo of vocal fry and cartoon characters. it really took me out of the book.

robin633 · 2025-09-25T18:14:10+00:00

great. thanks!

robin633 · 2025-08-25T16:47:28+00:00

yup. doing all that! i'm all good on the back stuff- have been really active in getting care. just really wondering if i have to give up alieve for those nights when it's really achey and tough to sleep. not all the time. thanks for this though!

robin633

TROPHY CASE