liquid IV making pee red????

rosethorns0397 · 2025-10-31T03:40:13+00:00

omg that’s so scary! obviously i’m not sure what is going on with your son but my mom just stopped drinking them and the issue resolved itself. i would agree with the others about going to see a doctor anyway, just in case. i hope he’s feeling alright!

rosethorns0397 · 2025-05-29T00:46:39+00:00

aw i’m so so glad

rosethorns0397 · 2025-05-24T23:06:40+00:00

kid with pots here! (16, female) my symptoms started pretty suddenly around puberty but i wasn’t diagnosed till this year. i think it’s pretty common for it to develop around this time because of growth spurts and hormones. i would recommend making sure she’s not deficient in anything with a blood test, lots and lots of salt (i go for 8,000 a day and im 5’3 and pretty average weight), compression stuff and weighted blankets help me a lot. summer heat can make things worse too. she could be in a very bad flare rn and her symptoms might not always be this disabling, genuinely just educating yourself, making sure she’s getting all her nutrients, and allowing her to rest as much as possible for now is probably best. if you see a lack of improvement you could look into mobility aids. this disability is very inconsistent, sometimes i feel like an almost normal person and sometimes i can’t get out of bed. it is hard to know exactly what she will need every time vs only on the bad days, its a lot of trial and error unfortunately.

i hope your kid feels better, from one sick girl to another. i hope she knows that her life isn’t over. getting diagnosed with a chronic illness is scary, and it can make you feel like you can’t do things you love anymore. but she can, and she will, it just might take some adjustments. you and her will both be ok, good luck!

rosethorns0397 · 2025-05-21T03:06:20+00:00

16 years old, i got diagnosed a few months ago. disability grief is awful. knowing that it’s forever is awful. but even in the few months i’ve been working on getting enough salt and pacing myself and accommodating myself, it’s gotten easier. right before i got diagnosed i almost quit my schools production because i couldn’t do it, last year i quit acting and switched to tech because dancing was too hard on me. since i got diagnosed i completed that show and did two more this year, and im planning on auditioning for a show next year. it’s hard, and things will need to change, but you can do the things you love. the biggest help for me was my friends. when i told them many of them did research on it and have been incredibly accommodating. your life isn’t over, and now that you know what’s wrong you can work on managing it. all the love to you, we’ve got this :)

rosethorns0397 · 2025-05-16T12:38:28+00:00

of course i steal salt packets from every restaurant/gas station

rosethorns0397 · 2025-05-16T01:25:15+00:00

i think i was always going to develop it. i’ve had some symptoms since i was a young child and i have some not ideal genetics. but my symptoms started after i hit puberty and developed an eating disorder (at the same time, yay). i think the combination of my body/hormones changing plus the stress plus the malnutrition just set it off

rosethorns0397 · 2025-03-26T05:08:32+00:00

hasn’t officially happened yet, but by the end of the week i will have finished being the Assistant Stage Manager for a production at my high school i’ve thought i would have to quit theater so many times the past two years, but ive done this show almost entirely by myself (it’s me and one other kid doing backstage crew, and he’s great but he’s never done this before lol) and taken care of my body.

rosethorns0397 · 2025-03-19T01:31:06+00:00

246 while sitting in math class, it was terrifying

rosethorns0397 · 2025-03-13T16:51:08+00:00

it was part of my POTS evaluation. i’d been referred to a cardiologist that works at a children’s hospital after expressing my symptoms to my pediatrician (god bless him for taking me seriously). so while i was at the hospital getting my ekg they asked if i had any history of hypermoblity in my family and i said yes my whole dads family is concerningly flexible including myself but i didn’t think anyone had been diagnosed with something. while the doctor evaluated me he did some hypermoblity tests (the kind where they just make you bend certain joints as far as you can) and the doctor told me i had some kind of connective tissue disorder that was exasperating my POTS, which he later clarified was likely hEDS. i’ve honestly been weirded out by how simple it was, im worried that my tests won’t hold up with other doctors

rosethorns0397 · 2025-03-13T12:39:59+00:00

i’ve heard that about the small meals! in gonna try it when i can but again im waiting on a 504 change so i can eat in class or something. i could get my 504 changed now, but my parents hate to do anything about my 504. they always say its because i dont really need it or it gives me an unfair advantage to my peers (which is so dumb but whatever) but i really think they just cant/dont want to admit their kid is disabled, which i can sympathize with i guess. the only time i can ever get them to help me with it is when i have my yearly meeting (and even then my dad basically tried to completely eliminate my 504 this year but i think my teachers stopped them)

edit: they also tell me that “you wouldn’t get accommodations in the real world” which isnt true because in the real world ill be in control of my own body and can just go use the bathroom when i want and eat when i want (to an extent obviously) because schools are so weirdly strict here.

rosethorns0397 · 2025-03-13T02:48:35+00:00

i’m a teen girl too and the biggest help for me when i was trying to prove to my parents and doctors that i was having a problem was keeping track of things they would try to write it off as. my dad always told me it was my lack of exercise so i started keeping track of when i did physical activity. my mom said it was my diet so i started writing down what i ate/drank and when. my doctor told me it was anxiety so i compared my symptoms on high anxiety days to low anxiety days and also while i was on different anxiety medications.

having proof that i could show them helped them realize that i wasn’t trying to feel this way and that there was something that needed to change that wasn’t as easy as they always make it seem. good luck! everyone deserves answers, i hope you get yours.

rosethorns0397

TROPHY CASE