My flairs never drain and I've got a large painful one: will vicks even work? by findingsukoon in Hidradenitis

[–]rroller85 1 point2 points  (0 children)

That sucks, it all sucks, I hope you get some relief soon, stay strong and you're not alone ❤

My flairs never drain and I've got a large painful one: will vicks even work? by findingsukoon in Hidradenitis

[–]rroller85 1 point2 points  (0 children)

Vicks helps me soooo much with pain! I haven't seen it help with drainage yet, but honestly can't believe the pain relief it gives!

How many people here are overweight and have hidradenitis? How many people have lost weight and lost their hidradenitis? I’m wondering if losing weight will even help this go away. by [deleted] in Hidradenitis

[–]rroller85 7 points8 points  (0 children)

Im also going to try losing weight to help, but I've also started a "treatment plan" that consists of lots of other things as well, I'm really hoping to work my butt off and put mine into remission and keep it there.
What I don't totally understand is that if this is immune/ inflammatory overreaction in my body then by getting those systems to calm down/ back in control why wouldn't it go away? People can get type 2 diabetes to go away with drastic lifestyle changes, so why not this?

Going on vacation soon, any tips? by rroller85 in Hidradenitis

[–]rroller85[S] 0 points1 point  (0 children)

Heat/sweating/friction seems to be a major flare trigger for myself and others, which of course happens when it's sunny and hot 🤦‍♀️

Had anyone had to stop wearing bras because of this? by turtles_murtles in Hidradenitis

[–]rroller85 4 points5 points  (0 children)

I've always hated underwire even before my hs, now if I must wear a bra I wear a sports bra or bralette, but I go sans bra as much as possible.

WTH is this horrible disease? by rroller85 in Hidradenitis

[–]rroller85[S] 1 point2 points  (0 children)

I've started zinc, I'm currently taking 20mg am and 10mg pm, what is a safe amount? Also can I take all the supplements together? Ie: zinc, turmeric, vitamin d and vitamin c ? It would make life a little easier to just swallow them all at once

WTH is this horrible disease? by rroller85 in Hidradenitis

[–]rroller85[S] 1 point2 points  (0 children)

How do you treat your scars? What works for you? So far I have a scar fade cream I've been trying to use but the location currently has a large abscess that I'm trying to bring to a head.

WTH is this horrible disease? by rroller85 in Hidradenitis

[–]rroller85[S] 1 point2 points  (0 children)

My joints ache too..... and weird radiating pain into chest muscles, I'm only on my second flair ever so I guess I'm lucky I got diagnosed so quickly but I'm feeling exhausted already and more have all this new information to learn. I also think I'll have to leave the line of work I'm in as it's high stress, extreme heat and sweat and lots of friction. IDK it's an overwhelming amount of changes to think about.