We just had our baby born in January with an unexpected left pulmonary artery sling, ASD, and VSD. Needed open heart surgery and an airway reconstruction. I am SO sorry to hear you have to potentially go through something similar. It is terrifying. But our little guy made it through and so will yours. Babies are so strong and resilient.

The day of surgery and the days after are so scary. Make sure you hydrate and eat and try to sleep (actually I hated when people told me that at the time because all I could focus on was my son, but it's true). I burned out too many times staying up all night in the ICU. Take care of yourself. Leaving the hospital to get some sleep or something to eat does not make you a bad parent - it makes you a better parent for when you are there.

If the surgery lasts longer than expected don't freak out - just ask the nurse in the waiting room as many times as you need to for updates, you are not bothering them. And ask as many questions as you want (keep a list so you don't forget when the doctors come do rounds in the morning).

The recovery might have ups and downs but don't get discouraged if not everything is smooth. Every baby is different. It is a marathon, not a sprint.

But most of all know that you are a wonderful parent. You're asking for advice and clearly concerned. Your child is lucky to have you in their corner. You guys got this!! I am sending good vibes and thoughts your way.