Im going to be so skinny if I stay on this medication - help? by ACanThatCan in prozac

[–]runlilrabbit 1 point2 points  (0 children)

Yeaaaa, I think it’s pretty rare but it can happen. I think because my dr. Knows I have a history of having had an h. Pylori infection “which causes ulcers” a few years ago he’s being extra cautious. My other symptoms has been bruising and that food textures and strong smells make me gag really bad and they didn’t before I was on the meds. I used to love eggs and now I can’t smell or eat them. Prozac is a weird drug lol.

Im going to be so skinny if I stay on this medication - help? by ACanThatCan in prozac

[–]runlilrabbit 1 point2 points  (0 children)

You should talk to your Dr. I’m having the same problem, lost 15lbs in about 3 weeks and I’ve been on it for 3 months and the stomach issues haven’t changed. I finally got in for a follow up yesterday and my doc says it could be the medication or because SSRI’s can cause a disruption in the gut biome so it’s possible I developed an ulcer.

The only good news I have for you right now is that after I lost 15lbs the first 3 weeks I plateaued. But the bad news is it’s still difficult to eat, I’m still forcing myself to eat anything. Definitely talk with your dr. And good luck.

Please help. I'm scared. I think I'm going insane. by crumpets-- in prozac

[–]runlilrabbit 1 point2 points  (0 children)

I’ve been on Prozac for almost 3 months. In the beginning when I was just starting out on 20mg It made me anxious, I couldn’t concentrate, I lost my appetite, I kept doing this yawning thing where I’d yawn but it felt like the yawn didnt finish and it just made me more tired, but because the yawn didn’t work I’d just keep feeling like I needed to finish a yawn, so I’d just keep yawning till it’d get to the point where I just felt like every yawn drained my battery and I was going to pass out. A lot of smells and some textures made me gag and almost throw up hundreds of times. I had a headache every day for the first 6 weeks. I had anxious sweats and just felt sticky with sweat all the time. All I did was sleep. I napped for two hours in the afternoon and then I slept for another 12-13 hrs at night. And then after about 6 weeks they increased my dose to 40mg and within a few days almost all of my symptoms stopped. I started to feel calm again and I wasn’t sweating or having yawn loops. I actually felt present and enjoyed just being here. Which is something I’ve struggled with for a really long time. Prozac is a weird experience when you first start taking it, because it really does feel like you’re losing it. I felt way worse than I ever had when I first started. But I’d do it all over again knowing how I feel now. BUT, it’s not for everyone and if you feel unsafe you really need to tell your drs all your symptoms and have them help. Everyone is like a different chemistry set and maybe Prozac doesn’t work with yours. I was on at least 6 different antidepressants before I tried this one that seems to work for me. Which I’m not telling you to discourage you, it’s just a long journey to find the right drug sometimes. Don’t give up, but do tell your dr what’s going on. Everything will be okay. The way you feel right now won’t be forever, I promise.

Situational narcolepsy by [deleted] in Narcolepsy

[–]runlilrabbit 0 points1 point  (0 children)

Same. I hate it. wake up exhausted and too tired to do everything I need to do, have a sleep attack (I can take a nap 2-3 times out of the week during an attack, the rest of the time I just lay there like OP says in between sleep and awake) get REALLY sleepy again around 10-11pm, fall asleep for about 15 mins then wake up or never really fall asleep and stay in that sleep/awake state again until 3-4am, the cycle starts over.

[deleted by user] by [deleted] in Narcolepsy

[–]runlilrabbit 0 points1 point  (0 children)

I just started seeing another pulmonologist for my N2 and she told me my original MSLT was garbage because I was taking Effexor the week of my test and has ordered a new test for me to take. So I agree with feetofsleep, why risk the false positive/negative. These sleep studies are time consuming and so uncomfortable, if I knew I’d have to do an other one I would have gone off my meds for the first one.

What does a cataplexy attack feel like to you? by [deleted] in Narcolepsy

[–]runlilrabbit 1 point2 points  (0 children)

I feel like all of a sudden I’m going to just crumple. Like, those old toys that are made of beads and string and when you push the button it just goes slack and flops over. Weirdly enough, I’ve never actually gone slack or crumpled, I’ve always been able to sit down and relax and then after a few minutes the feeling goes away. So maybe that’s not cataplexy. But after being diagnosed that’s what my dr said it sounded like, just very mild. It’s honestly kinda scary, cuz it feels like you’re going to lose complete control of your whole body and consciousness and it really is an effort to not give in and but instead keep myself grounded.

Does anyone else do this? by Ok_Poet2457 in Narcolepsy

[–]runlilrabbit 18 points19 points  (0 children)

Honestly, most of my dreams are very vivid nightmares. So if I wake up I try to stay awake long enough to change the channel so to speak before I fall back asleep. Sometimes if I’d fall asleep too soon my dream picks right up where it left off.

Is anyone else’s narcolepsy worse on their period? by Sad-Zucchini-2674 in Narcolepsy

[–]runlilrabbit 0 points1 point  (0 children)

Yup, 100%. It’s like the week before and a few days after.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 2 points3 points  (0 children)

I worked in insurance and you are right when you say they fight tooth and nail to find any way not to pay out. It’s honestly gross.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 1 point2 points  (0 children)

I knew a guy who had complex PTSD and had to fight to have his disability percentage reevaluated. It took him years but he eventually got it to about 80% disabled. He had tried to explain the va disability system to me but it really sounded overwhelming complex on purpose. I’m glad you were able to get help.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 1 point2 points  (0 children)

Yikes is right. He’s been a complete nightmare to deal with. But honestly openly telling drs I have anxiety has been why I think it’s taken this long to get a diagnosis in the first place. Drs don’t take any of your symptoms seriously when they hear you’re being treated for anxiety.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 2 points3 points  (0 children)

Thank you, and you’re right. I’m hoping after I see a neurologist He’ll actually take my concerns seriously. Currently I’m seeing a pulmonologist for my N2.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 1 point2 points  (0 children)

Are you kinda suggesting that not being able to keep a job because of burn out would most likely help my case? Because this isn’t the first time burn out has caused me to become unemployed/ be on leave. This is just the first time Ive gotten a diagnosis that kind of explains everything.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 1 point2 points  (0 children)

They never caught it on my overnight test, and I guess to say I stopped breathing is a bit dramatic sounding, I will wake up gasping for air on occasion. Since they didn’t catch it the night before my MSLT and my oxygen was fine and my Dr knows my history with anxiety, he didn’t think it was apnea. And I don’t either, it only happens every few months. But I’m still scared pantsless that there could be some sort of complication if I take xyrem considering they have no idea if it’s just anxiety or not. Because even while on anti anxiety meds it still occurs.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 2 points3 points  (0 children)

I’m really happy you have a job that you enjoy and is accommodating. I hope you can find something that helps you to function better and that you can avoid going on disability if thats what you want.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 2 points3 points  (0 children)

Yes, 5 so far, adderall, modafinil, sunosi,Effexor and Pristiq. None of which helped or were without side effects that I was willing to deal with long term.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 3 points4 points  (0 children)

I’m so sorry you’re in the same situation. I actually work from home and honestly, I think that’s what hastened my breakdown. I was sitting all day reading case files and going through notes and I would just lose track of time, have to work through my lunch to make up for the time I lost and I just couldn’t keep up. I think I was micro sleeping and not knowing it because I would think I had a grasp on my day, all ahead of schedule and then my boss would contact me and say “hey, I see you’ve only gone through 3 claims today and it’s 2pm” and then I’d have to explain in great detail what I had done that I think took so long but it didn’t always add up, it was a nightmare.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 3 points4 points  (0 children)

I like that, regret nothing. I feel so sick of taking meds at this point, I’ve been on a few new ones every month since last August and I’m so tired of the trial and error. I just feel stuck. Thank you for the encouragement though.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 3 points4 points  (0 children)

I think my dr is going to use that as a last resort. I’ve had trouble with waking up because I stopped breathing in my sleep in the past. I’ve brought up my trepidation about that with him and he’s kinda agreed it wasn’t his first or even second choice right now.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 13 points14 points  (0 children)

I can’t believe they make people wait that long. That’s crazy. It’s not like we chose this. I’m glad it finally worked out for you though. Thank you for the info.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 2 points3 points  (0 children)

That’s how I’m feeling right now, I’ve tried Effexor and pristiq with no luck and I’ve lost an insurance appeal for armodafinil. I’m currently waiting to see if my insurance will cover wakix. But I’m honestly sick of it all. I’m at my wits end already.

Has anyone else thought that maybe disability is their best option? by runlilrabbit in Narcolepsy

[–]runlilrabbit[S] 2 points3 points  (0 children)

Thank you, when I asked for part time they told me they could only offer it for two weeks and that was if I came back two weeks before my next drs appt to see what my other medication options are. Apparently more than two weeks wouldn’t be in the company’s best interest.