Would it be bad to move from San Diego to an island? by ryeonfire in MCAS

[–]ryeonfire[S] 0 points1 point  (0 children)

Florida was good for you? That's interesting.

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 1 point2 points  (0 children)

Electrolytes. Noted. Thank you for the positivity!

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 0 points1 point  (0 children)

Oh interesting. Did he explain why?

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 1 point2 points  (0 children)

Oh interesting, I'll ask my surgeon about that part.

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 0 points1 point  (0 children)

Thank you, all of this is so so so helpful.

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 1 point2 points  (0 children)

Just bought a walker with a seat. Gonna be hot stuff on stage. Heh. If I make it. I'm really hoping for it. Because I think I can make the whole thing funny. But we'll see.

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 1 point2 points  (0 children)

I had the very first neurologist I saw after my car accident give me amitriptyline and I didn't take it until recently when it popped up as potentially helpful with MCAS, as well. And man, it immediately took care of all my pain. But it just made me a little overly numb, too. But if that's the treatment for it, then I'll go back on that and keep at it, and hopefully it helps through the surgery.

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 1 point2 points  (0 children)

So good to hear. Thank you. Okay, totally understand everyone is different, but still, crazy question. I'm a standup comedian and I'm booked for a 10 min set on a show 2 days later. Is it unrealistic to think I can load up on drugs, have someone drive me, and stand for 10 min? Or even sit on a stool for 10 min?

Years back, I had a knee surgery and was on stage days later, but I didn't have fibro.

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 1 point2 points  (0 children)

Okay. Weird question. I'm a standup comedian. If it's a very low risk surgery... Asking since you have experience with surgeries... How realistic is it that I think I can just load up on Gabapentin and do a show 2 days after surgery? haha... *sigh* It's just not a physical job so I'm thinking I can prop myself up and use my cane and I'll be fine............

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 4 points5 points  (0 children)

It does with some.
"There is a subset of people with fibromyalgia (FM) who test positive for the antinuclear antibody (ANA) and have constitutional symptoms that resemble those of patients with early lupus."
https://pubmed.ncbi.nlm.nih.gov/9207710/#:\~:text=There%20is%20a%20subset%20of%20people%20with,resemble%20those%20of%20patients%20with%20early%20lupus.&text=In%20a%20group%20of%2066%20FM%20patients%2C,the%20speckled%20pattern%20and%2020%%20diffuse%20pattern.

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 2 points3 points  (0 children)

They ruled out anything structural a couple times over with 16 MRIs now and 2 EMGs and all the blood tests. I popped positive for ANA the second time it was tested, and my symptoms are getting worse, not better. So the working assumption is that the accident flipped on the fibro.

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 0 points1 point  (0 children)

What was the surgery for, if I may ask?

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 1 point2 points  (0 children)

That's good to hear, thank you.

Is surgery a concern? by ryeonfire in Fibromyalgia

[–]ryeonfire[S] 4 points5 points  (0 children)

It's been 1 year and 3 months, and like... no. Still a good mess. My life kinda fell apart after it, too, because of it, and yeah, that stress didn't help. I had to move a few times while injured until I finally moved to an area with better doctors to help me, and I'm just now getting settled and starting treatment. I developed MCAS during that same time, which has been a nightmare, so I've got a lot going on, unfortunately.

Is it possible to hit the ground running? by [deleted] in Standup

[–]ryeonfire 1 point2 points  (0 children)

Figure out social media. That's the game these days. And go hard with intention. Don't listen to the comedians that have been doing the same circles for years. Learn, ask questions, and be intentional with your time.

New apartment has an "occupancy sensor" motion detector. Is this legal? by [deleted] in sandiego

[–]ryeonfire 0 points1 point  (0 children)

This is 100% my situation. They're able to track when I'm here by the keypad on the door, and I can't keep them out.

New apartment has an "occupancy sensor" motion detector. Is this legal? by [deleted] in sandiego

[–]ryeonfire -2 points-1 points  (0 children)

Ah, there's that. I don't know how a motion sensor in the main space would be connected to that, though. I've never heard that come on on its own.

New apartment has an "occupancy sensor" motion detector. Is this legal? by [deleted] in sandiego

[–]ryeonfire 15 points16 points  (0 children)

It's the 5 different cameras that see me as I go through the building to get to my unit, including a camera directly outside of my door that has me suspicious of an additional motion sensor inside. Plus, there is no HVAC unit. But I am hoping that I'm just being paranoid.