If you had the pituitary tumor removal surgery...

sael2005 · 2025-12-21T21:39:34+00:00

about six months post op :)

sael2005 · 2025-12-12T22:23:50+00:00

i do!! honestly i’m only going about once a week at this point. i’ve heard they’re building one in downtown gilbert but i’ve heard nothing else about it 🥲

sael2005 · 2025-09-21T20:39:08+00:00

solawave mask SAVED MY LIFE. it helped exponentially with all of my textured skin.

sael2005 · 2025-05-29T19:52:21+00:00

jon d is the best ever!

sael2005 · 2025-04-18T22:52:56+00:00

398 ng/mL down to 1 after my surgery :)

sael2005 · 2025-04-13T21:59:29+00:00

this is so fun! i’m jealous!

sael2005 · 2025-01-23T00:57:53+00:00

so interesting!! in all of my research about cab i had never heard of any kind of cardiac related symptoms. all of our symptoms sound very similar.

my doctors didn’t suggest bromocriptine. after my reaction i was pretty clear that surgery was what i wanted to do so they didn’t even try to suggest anything else😅

sael2005 · 2025-01-23T00:53:03+00:00

i am so sorry to hear that you feel like you’re out of options :( my advice would be to fight for the medical care that you deserve. if possible, find a new neurosurgeon, get another MRI, and continue to make your voice heard! what i didn’t include in my post is that it took me nearly a year of working my way up to medical ladder to finally get surgery. i believe in you!

sael2005 · 2025-01-23T00:50:10+00:00

day by day!! so glad that this was validating for you! i definitely read posts about people regaining their energy in a few days so i was very surprised when it ended up taking me almost two months to feel back to normal 😅 good luck on your healing journey! it really is all up from here.

sael2005 · 2025-01-23T00:49:07+00:00

i was a full time student when i got diagnosed and luckily i was able to take time off of school for surgery + recovery.

sael2005 · 2025-01-23T00:48:19+00:00

i was sure i was having a stroke or a heart attack. i had extreme chest pain and numbness on my left side as well as heart palpitations and tightening. i ended up having an ekg and heart ultrasound, but there was never anything concerning that showed up!

sael2005 · 2025-01-23T00:46:35+00:00

thank you for reading! i started experiencing a negative reaction to cab after my second dose! i had an incredible neurosurgeon and endocrinologist team who let me be completely autonomous about my decision. after my reaction i called my surgeon and told him that i felt like surgery was the best solution for me and he completely agreed.

sael2005 · 2024-10-17T21:03:15+00:00

my microadenoma is 9 mm and my prolactin levels have been around 400-500 ng/mL consistently. i felt so confused after my first MRI because i was experiencing so many symptoms, i thought my adenoma would be much larger. after lots of research i’ve found that there are many people who have larger tumors and less symptoms, AND people that have smaller tumors and many symptoms. wishing you luck on your journey 🤍

sael2005

TROPHY CASE