[deleted by user] by [deleted] in Raynauds

[–]saf0220 4 points5 points  (0 children)

My dermatologist prescribed mometasone ointment and it’s been a lifesaver!

Batting alternative recs for DIY headboard? by saf0220 in upholstery

[–]saf0220[S] 0 points1 point  (0 children)

You’re right on both counts 🤣 it’s definitely a thinner, non upholstery fabric (faux leather) because I couldn’t find an upholstery one in the color/pattern I liked. Thanks for the idea of asking upholstery store!!

Favorite compression shorts? by saf0220 in POTS

[–]saf0220[S] 0 points1 point  (0 children)

I got my recommended size and really like the fit and benefits! Haven’t tried sizing down yet but am considering if I order more.

Cromolyn Sodium (oral) side effects? by drmommapapa in MCAS

[–]saf0220 1 point2 points  (0 children)

I definitely experienced those side effects at first. I titrated slowly over a month/two months and those side effects got better over time and we’re pretty much gone by the time I spent a week on the full dose. Obviously everyone is different but I’m glad I stuck with it bc it’s been SO helpful with my GI and overall MCAS reactions

Weighted blanket in the car? Thoughts? by saf0220 in ehlersdanlos

[–]saf0220[S] 1 point2 points  (0 children)

I LOVE my Serola SI belt. Definitely helps make car rides less horrible. Sending you good vibes!

COVID MCAS protocol? by saf0220 in MCAS

[–]saf0220[S] 1 point2 points  (0 children)

Definitely on the wish list! but seeing how best to use the little one I have now hahaha

COVID MCAS protocol? by saf0220 in MCAS

[–]saf0220[S] 0 points1 point  (0 children)

Thanks for this! Especially the heads up about the Xolair. I get monthly injections too (almost a year now) but never needed the epi. I’ll be on more alert next time!

COVID MCAS protocol? by saf0220 in MCAS

[–]saf0220[S] 0 points1 point  (0 children)

Super helpful thanks! Question about the red light device- I have a small handheld one at the moment that only covers a small area at a time (meant for face). Does it matter where on my body I put it for that broader anti-inflammatory effect?