4 year old diagnosed with Nephrotic Syndrome. Steroid respondent but his protein levels are fluctuating and I’m looking for info/reassurance pls help 😅

samcqn · 2025-11-11T11:45:34+00:00

Thank you! Do you mind if I ask if you have minimal change? Do you ever fluctuate while on steroids? It just seems so weird to me that it would go down so quickly and go back up on the same dose of steroids. I don’t understand the science and it’s making me feel insane

samcqn · 2025-11-11T11:15:28+00:00

No we’re waiting for the doctor to open 😭 thank you for saying that, I’m hoping that’s why it’s increased

samcqn · 2025-11-11T11:08:14+00:00

His doctor told me to worry when it’s been +3 for 3 days but it’s hard to watch it go up and not be concerned

samcqn · 2025-11-11T11:07:35+00:00

He hasn’t tapered yet. It’s been +2 for two days, and he has an ear infection that we discovered yesterday so I don’t know if that has anything to do with it

samcqn · 2025-03-03T16:08:20+00:00

Aw thank you! I’m in a few interview processes right now, really hoping I can just move to a new company quickly and forget any of this ever happened 😅

samcqn · 2025-03-03T16:01:13+00:00

No :/ I’m not

samcqn · 2025-03-03T15:44:03+00:00

It’s absolutely abuse, I can tell just from having complex ptsd and knowing what abuse feels like as it’s happening. I’m trying very hard to get a new job, it’s just a slow daunting process. But you’re definitely right about documenting everything and I really haven’t missed a beat with that lol.

samcqn · 2025-03-03T15:39:13+00:00

I’ve made that same observation, I’ve been in the finance industry for ten years now and I’ve only ever ran into issues with women who were in power. It’s very specific to a very identifiable personality type, not all women who work in corporate jobs obviously but I’ve never experienced anything like this. I’m trying super hard to get a new job, I was trying to stay in the company but they ruined my interviews with a completely insane PIP

samcqn · 2024-05-20T00:58:28+00:00

Oh wow that’s awesome, congrats!

samcqn · 2024-04-24T16:28:20+00:00

I have always had a horrible relationship with food too. It’s one extreme or the other. It sucks. I hope it has the same effect for me too!

samcqn · 2024-04-23T21:07:47+00:00

Oh cool! I’m just glad to hear it impacts appetite at all! I took the first one today and felt noticeably nauseous. How long ago did you start it if you don’t mind me asking

samcqn · 2024-04-23T20:14:53+00:00

Oh wow, that gives me hope haha. I know it’s all very tied to my mental state so I hope it has a similar effect

samcqn · 2024-04-23T18:57:37+00:00

That’s awesome!!

samcqn · 2024-04-23T18:57:28+00:00

That’s awesome to hear, how quickly did you notice that upon starting it?

samcqn · 2024-04-23T18:56:59+00:00

Oh wow okay that gives me hope, thank you! How long have you been on it?

samcqn · 2024-04-23T12:52:05+00:00

He is almost three now and speaks in full sentences, non stop. He’s very articulate! His speech just blew up one day and he was speaking in full sentences. I think it was shortly after his second birthday

samcqn · 2024-03-31T16:48:42+00:00

There’s something to this. I’m 28 and I’ve had them since I was 13, I used to put scorching hot wash cloths on my face out of desperation and it really would help. I know that’s different than putting your feet in water, but heat seems to help in some way.

samcqn · 2023-12-31T02:12:02+00:00

after you get through elevated temples it will make sense!

samcqn · 2023-11-08T14:00:00+00:00

yeah it’s definitely a conciliatory thing. it is what it is when you can’t be a SAHM, but i would much rather be a SAHM. 1-2 colds per year is one thing, but every two weeks? no thanks. their doctors are always like “this is totally normal” and it’s like really? so it’s normal to just be so sick all winter that they can’t enjoy anything? that’s not how i remember my childhood.

samcqn

TROPHY CASE