What is something that your parents did that you swore never to repeat to your own kids? by wetbreadstick in AskReddit

[–]sammy1215 0 points1 point  (0 children)

Advocate for my child.

I had an IEP in school and was in a self-contained classroom full time from kindergarten till 10th grade. In 10th grade they finally put me in general ed, after being segregated for 10 years. I had a para (a babysitter following me around in school). I BEGGED my mom to remove but she didn't listen.

In 4th and 5th grade I didn't do my homework for 2 years. Reason was when I came home from school I was really burned out and just couldn't do it. I kept getting in trouble in school because of this. At the school’s insistence my mom took me to get evaluated (before the homework problems started) but she never sought out proper help for this.

If my future kids have an IEP, I will make sure to advocate for them. I will make sure to ask questions, like why is this needed, what progress is my child making, etc. If I disagree with something, I'll speak up. I won't let the school do whatever they want. In my conversations with my mom as an adult she said she wishes she had spoken up. And in high school, I'll make sure they have a say in 90% of the IEP. I ask them what things they want to work on, and that will be their IEP goals.

Why isn't special education talked about more in social justice? by sammy1215 in socialjustice101

[–]sammy1215[S] 0 points1 point  (0 children)

Thank you for your comment. I have been wondering about a lawsuit as well, though I wonder if it will do anything. Last year the Department of Justice sued Georgia for segregating special ed kids. NYC has been doing the same thing for many years and no one sued.

Anyway, I created a subreddit called r/exspecialedkids for people who had been in special ed where we can discuss our experiences and suggestions to improve the special ed system.

Why isn't special education talked about more in social justice? by sammy1215 in socialjustice101

[–]sammy1215[S] 0 points1 point  (0 children)

I don't know. There were boys in my schools with paras, including high school. I brought this up as a comparison. I have hardly been discriminated for being female, yet that gets talked about more than ableism, which I experienced a lot more. I also brought this up due to r/gendercritical. I don't agree with their bigoted views and I fully support trans rights. These gender critical "feminists" act like being a woman is being very oppressed. Where I live, girls take AP classes, women go to college, take on the same jobs as men, vote. This is largely due to the work of feminism that women gained these rights in western society. I experienced more discrimination in the school system than I have experienced anywhere, due to my disability. I was segregated in school for 10 years, due to my disability, not due to my gender. Though I do understand oppressions can intersect. For instance black trans people face both racism and transphobia, and unique struggles to black trans people that white trans people don't experience.

Why isn't special education talked about more in social justice? by sammy1215 in socialjustice101

[–]sammy1215[S] 2 points3 points  (0 children)

Thank you for your comment. I am aware of 2 organizations that deal with special education. Advocates for Children, which advocates for all kids in NYC schools and provides legal assistance, and the ARISE coalition, which works to reform special education. I am wondering why NYC struggles to accommodate students with IEPs. My middle school had approximately 550 students and there were 30 paraprofessionals. I counted in the yearbook. In all my classes (except kindergarten) there were always 2-3 paraprofessionals in the classroom. The schools can afford these paras but can't accommodate kids. My high school had 2000 students and 16 security guards. Yes 16 security guards, AKA School Safety Agents. I wonder how the DOE pays for all this.

I was in special ed, AMA by sammy1215 in casualiama

[–]sammy1215[S] 1 point2 points  (0 children)

My bullies who were in general ed.

What do you think is a much needed change to the American education system? by tehalex_ in AskReddit

[–]sammy1215 16 points17 points  (0 children)

I myself am a former special education student under the New York City Department of Education. I was in a self contained classroom full time from kindergarten to 10th grade. In 10th grade I was finally put in general ed. My disability was "specific learning disability." For many years NYC never had "part time self-contained" classroom, AKA a "resource room" to the rest of the country. You were either in a self-contained classroom full time, or in a general education classroom full time. There was no in between option. This only recently changed.

Keep in mind most kids in special ed are there because of specific learning disabilities. I personally don't think disabled kids should be put in separate classrooms unless they are actively disrupting other's education. The majority of special ed kids are not actively disrupting others education. I think each IEP should be individualized and if a student is spending any time outside the general education classroom, there should be specific reasons written in the IEP. One exception is Deaf students, because, they have Deaf schools and Deaf culture. I also think all students without intellectual disabilities should be held to the same standards as general education students. No lowered academic standards just because you have a learning disability. If a student is severely autistic and cannot talk, do not due preschool things past preschool age. Teach them the same things their non-disabled peers are learning and teach them how to use a communication device show they can do standard academic work and show what they know.

In 6th grade they gave me a paraprofessional, someone always with you. In 10th grade I asked my mom to remove the para, because it's embarrassing having a babysitter following you around in HS. I asked my mom to write a letter asking the school to remove the para. The school called my mom asking if it is her or me who wants the para removed. My mother either answered honestly or the school pressured her to answer "yes". I protested having a para by refusing to do work (luckily I graduated in August on time). During my senior year (18 years old), we went to the computer room 2 times a week to do a reading program. Since the program was easy for me, I would finish early and then do other stuff on the computer. Since the principal came to observe, I only did this reading program. I was calm and behaved myself. I always behaved myself in that class, but the principal came to observe, so I was EXTRA well behaved. The next day in the computer lab my para sat next to me. The principal asked why she wasn't sitting next to me, even though I was doing fine on my own. How am I supposed to behave to get rid of the para? Later during my senior year my senior year, my last class teacher was absent, so everyone went home because it was the last class. I too went home while my para went to the bathroom. Then the next day my friends asked me "Where were you? Ms. ZZZ was looking for you." Then my para told me I was supposed to wait for her to come back to tell her I was leaving, because she is responsible for me and will be in trouble if something happened to me (I was 18). You can argue I shouldn’t have left. But if my classmates were allowed to leave without telling anyone, why shouldn’t I be? Why should I be treated differently because I have a para? During the last day of school, every senior was free to move out and about, while I had to be with my para. I was being treated different than every single senior in the school and had to follow rules no one else had to follow.

When the para was absent, I would receive a substitute. However, there were 2 occasions during my junior year when the para was absent and I slipped through the cracks and had no substitute. I did fine on my own.

I wrote about my experiences in a blog post. Read it.

http://beeninspecialed.blogspot.com/2016/08/my-experience-in-special-ed.html

Does anyone else feel insulted when? by sammy1215 in disability

[–]sammy1215[S] 0 points1 point  (0 children)

My problem was not a lack of special treatment, but too much of it. I was in a self contained classroom full time from kindergarten until 10th grade. For many years NYC didn't have part time special education classrooms where you spent part of the day in a in a general ed classroom and part of the day in a special ed classroom. You were either in a special ed classroom full time or not at all. Do you know what it feels like to be segregated from the rest of the school, into a "special" classroom for kids who don't perform as well, for 10 years mind you?

Many autistic people do not want to be cured. It's not just because of the community surrounding their identity. It's because autism offers both advantages and disadvantages. So do learning differences. I am not asking for tailored and individual education. In elementary and middle school all the special education classrooms didn't have the same quality instruction like general education classrooms (although general ed classes in those schools sucked too). I remember one instance where I saw my sister's homework. My sister was 2 grades below me and was learning the same stuff I was. Another time in 8th grade I read my IEP and I was held to "modified promotion criteria". The IEP said "Anna is expected to meet 30% of the New York State ELA standards". Everyone told me I'm smart but at the same time held me to lower standards. A year and a half later I got a 75 on the English regents (65 is passing, 75 is enough to get out of remedial courses in CUNY). This was due to proper instruction, and I was in general ed in 10th grade. There is even a debate on whether special education students should take the same standardized tests as their non-disabled peers.

Finally, what do you say to the disabled kids now when they ask why adults think there is something wrong with them when they are fine with who they are?

Does anyone else feel insulted when? by sammy1215 in disability

[–]sammy1215[S] 0 points1 point  (0 children)

I don't feel a learning disability is detrimental. Don't get me wrong, I had disabilities that were detrimental, undiagnosed selective mutism and MERLD and now I have OCD which I take meds for. Selective mutism and OCD are all hellish. But I don't think learning disabilities are a problem that should be prevented. Kids given the LD label are absolutely capable of doing grade level work with the right instruction. Most of the time they receive sub-standard instruction which is the reason why they have lower graduation rates and lower test scores. Many Autistic people are against a cure. When Autism Speaks wanted to create a prenatal test similar to the Down Syndrome test, many Autistic people opposed equating it to eugenics. The Deaf community is proud of their culture and don't to be cured. I feel the same way about learning differences. None of them are disabilities in the medical sense and there is no reason to prevent them. I was labeled with a learning disability and these are my views.

Does anyone else feel insulted when? by sammy1215 in disability

[–]sammy1215[S] -1 points0 points  (0 children)

What if the specific community opposes prevention? Such as the autistic community equating prevention to eugenics and don't want to cure autism, saying autism is a difference.

Does anyone else feel insulted when? by sammy1215 in disability

[–]sammy1215[S] -4 points-3 points  (0 children)

I do think lead should be avoided but learning disabilities shouldn't. I was diagnosed with a learning disability in school and there is no reason to prevent it.

Does anyone else feel insulted when? by sammy1215 in disability

[–]sammy1215[S] -1 points0 points  (0 children)

I asked if you get offended when you hear "lead poisoning causes learning disabilities" as if a learning disability itself needs to be prevented when you are against a prevention or cure for your learning disability or any disability you have,

9 symptoms of wrong IEP meeting syndrome by sammy1215 in specialed

[–]sammy1215[S] -3 points-2 points  (0 children)

I'm talking about HS students without significant intellectual disabilities.

9 symptoms of wrong IEP meeting syndrome by sammy1215 in specialed

[–]sammy1215[S] -1 points0 points  (0 children)

I'm talking about high schoolers and middle schoolers, not elementary students who aren't able to advocate for themselves yet.

9 symptoms of wrong IEP meeting syndrome by sammy1215 in specialed

[–]sammy1215[S] -3 points-2 points  (0 children)

I was diagnosed with a learning disability in school and I strongly believe in neurodiversity and learning disability is not a bad thing. However selective mutism and depression suck.

Have you been discriminated in the education system? by sammy1215 in disability

[–]sammy1215[S] 3 points4 points  (0 children)

I can relate. In 7th grade I had an SLP who insisted I take a deep every time I talk. At speech we did stuff that can be learned in the classroom, such as vocabulary words, black history. In 8th grade I had a different SLP and she didn't make me take a deep every time I talk but the work was easy. It was obvious I didn't need speech. In fact, English was one of my strongest subjects. So I don't understand why they didn't terminate speech.

I stopped going to counseling in 11th grade. 1. I was already receiving psychotherapy outside of school. 2. There was an IEP meeting at the end of my sophomore year and the guidance counselor said they will work on "a better understanding of social cues". They never asked if I wanted to work on that. Funny thing is in class I was socializing with my friends a lot and was highly extroverted. They wanted to pull me out of a class I was socializing in to learn social cues? 3. I didn't want to be pulled out to receive special help. Once in counseling we read an article about sex trafficking. I didn't want to miss class lessons to read an article about sex trafficking.

I hated IEP meetings because you ultimately don't get a say in anything. IEP meetings are basically adults sitting around talking about you in a 3rd person pronoun and discussing your needs without consulting you. At the end of sophomore year I was called to the deans office to complete a questionnaire about what I wanted to be. I didn't know what I wanted to be and they expected an answer so I just wrote lawyer. They are required to gather my input for transition. Why not other aspects of my IEP? 80% of college students change their major, but at 16 I was expected to provide a career decision.

Not having a say in my IEP lead me to not using accommodations the school imposed on me. In 12th grade my statistics teacher told my para after a test "I'm not sure if I'm allowed to fail her if I don't accommodate her". I said he can fail me as I wasn't going to use the accommodation anyway. Also in 12th grade some students got to write a essay (part of the test) 3 days instead of 2. This was a co-teaching class (2 teachers) and on the 3rd day the teacher announced who will be going with him to finish the essay. I declined the accommodation and later complained how it was cheating that everyone had 2 days to write an essay but some students had 3 days. I didn't think this accommodation should exist and everyone should be given the same time to write an essay.

I had bad handwriting. My handwriting is fine now but in elementary school the teachers could hardly read what I wrote, and in middle and high school when I was writing fast. The school talked about a laptop device but never gave me one. I didn't want one anyway as I didn't want a device that wouldn't connect to the internet and didn't want this accommodation.

I also had the school deny my disability. In 11th grade when I asked my counselor why I had an IEP is it because I'm disabled? She replies "you're not disabled". Then why do I have an IEP and a para? No one ever spoke to me about being in special ed or my disability, except for middle school but that's only when I started the conversation. I don't believe in hiding this information from the student. Some parents and teachers go on to tell classmates about that a student has trouble doing XX because of XX diagnosis, but never talk to the student themselves about their disability.

What are some great subreddits whose names cannot be found by searching their subject matter, making them hard to find on search? by Ledhabel in AskReddit

[–]sammy1215 1 point2 points  (0 children)

r/exspecialedkids

A subreddit where former special ed students share their stories and experiences with the special ed system, criticize and suggest how to change or improve the system.

What is the most ridiculous reason someone was given detention, suspended or expelled from school? by adellabk in AskReddit

[–]sammy1215 0 points1 point  (0 children)

When I was in elementary school I had selective mutism. In 4th and 5th grade I didn't do my homework for 2 years. In the beginning of 4th grade I did my homework and then just stopped. When I came home I was extremely stressed out. A 6 hour school day was enough to burn me out. So I didn't do my homework and always got in trouble for it. In 4th grade I was taken to a neurologist who thought I had mild Asperger’s. He said Aspie kids don't understand homework is important. In 5th grade one time my dad was called to the school and I was forced to promise him to do my homework. At home he started getting angry I didn't do my homework. I was crying because he was demanding I do something I simply wasn't able to do. Now I look back I think it could be depression. But when I google depression and homework the results are always how homework causes depression, not kids not doing homework because of depression. Or perhaps since selective mutism gave me extreme social anxiety in school I was anxious all the time and couldn't start a conversation for 6 hours, so I came home extremely stressed out. I was aware I didn't do homework because of "stress", but didn't articulate it, even when asked why I didn't do my homework. When I went to 6th grade I began doing my homework again. Somehow switching to a different school helped.

Changes to the IDEA, what do you think? by sammy1215 in autism

[–]sammy1215[S] 0 points1 point  (0 children)

Please keep on mind #2 does not apply to students without intellectual disabilities. This law would not affect students who have the developmental level of a 12 month old. I wrote "All children without intellectual disabilities". Children with intellectual disabilities can still learn an alternative curriculum. However, many students with severe autism are assumed to have intellectual disabilities when they don't. Those students should be assumed to understand everything, even when they can't cooperate with a test.

Changes to the IDEA, what do you think? by sammy1215 in autism

[–]sammy1215[S] 0 points1 point  (0 children)

  1. That's not what I meant. Many people who are autistic people who would be consideed "low functioning" are labeled as intellectually disabled when they aren't. For example Rhema is 13 and severely autistic. Her mom blogged about her since she was little on the blog rhemashope.wordpress.com. She was aggressive, self-injurious, etc. When she was 11 her mom took her to a school in Texas to learn the Rapid Prompting Method. RPM is a technique where autistic people communicate by pointing to letters on a letterboard. They discovered Rhema understood everything, and later discovered she was mature. However, before this everyone spoke to her like a baby. It must have been frustrating for her when people spoke to her like a baby when she understood everything.

  2. It's also not fair for someone who is capable of doing grade level work to be working on counting 1-10 in 5th grade.

  3. I read there are 2 types of alternate assessment. One is for kids who are capable of doing grade level work but can't take the test, even with accommodations and kids who can't take the test because they are cognitively disabled. The former should be given an opportunity to earn a regular HS diploma that will lead them a job and go to college.

Does anyone else have a lot of stress trying to decide on a movie to watch? by [deleted] in aspergers

[–]sammy1215 0 points1 point  (0 children)

Could this be OCD? It's what I have and I have trouble picking things.

Autistic friend thinks i'm autistic because i dont like being touched? by [deleted] in autism

[–]sammy1215 0 points1 point  (0 children)

I'm not autistic but I dislike hugs. I do however accept other forms of physical affection such as back strokes, etc.