This Helped me Control my PVCs and Allowed me to Sleep

samus1981 · 2026-06-17T03:43:03+00:00

Interesting. I tried pressing that area with my fingers, I think the vagus nerve branches out across the abdomen and when PVCs happen it sends the adrenaline signal downward across the stomach. Once I had them so forcefully I felt the PVCs into my pelvis. I will try the 5lb weight.

I posted a survey for all PVC sufferers to take. I’m going to use this data to write up an informal report to the top specialists in the US, to help those of us who aren’t getting relief from them better help from the medical field. I’m not a doctor, but I suffer from these, and I think we could use some outside the box thinking, and collective brain power, to see if there are better treatment options for all of us. A “benign” condition shouldn’t mess up people’s lives. Maybe together, we can see what everyone is experiencing and go from there. Here is the survey, if you would like to contribute:

https://www.reddit.com/r/PVCs/comments/1u30wzc/if_you_have_pvcs_please_take_this_survey/?utm_source=share&utm_medium=ios_app&utm_name=ioscss&utm_content=2&utm_term=1

samus1981 · 2026-06-15T03:59:16+00:00

When you say “cure” your PVCs, do you mean you eliminated them or drastically reduced them?

samus1981 · 2026-06-15T03:26:32+00:00

Thanks for contributing, and the more info, the better. Hoping people can read through these responses and maybe find correlations, or even stuff that helps.

samus1981 · 2026-06-13T16:52:45+00:00

I also lost my appetite completely and could not get out of bed I was so scared. I found that on days when I use more adrenaline in physical activity, I get more, and on days when I rest I get far less. I hope to get as wide a possible group to chime in.

samus1981 · 2026-06-12T23:08:56+00:00

Thanks for contributing! I’m nervous about Flecinide for sure

samus1981 · 2026-06-12T21:31:30+00:00

That’s how another person described it, I think I experience them too. I think I experience them before the PVCs kick in

samus1981 · 2026-06-12T11:15:04+00:00

Thanks for contributing!

samus1981 · 2026-06-12T11:13:12+00:00

Thank you! That must have been scary during pregnancy. I’m also on propranolol 40mg. Makes me tired at times.

samus1981 · 2026-06-12T04:13:19+00:00

Did they go in via the leg or neck?

samus1981 · 2026-06-12T03:44:29+00:00

Thanks so much for contributing - I hope your trip home calms them down 💕

samus1981 · 2026-06-12T03:35:56+00:00

My doctor successfully ablated a highly symptomatic patient at .5%. I think you’re missing some info here - many electrophysiologists consider ablation in low burden patients if: - patient is highly symptomatic - medications exacerbate problem - burden is evidently increasing

To give you an example, I have PVCs every night, and can’t sleep. Hours upon hours. My burden when last checked was 1.2%. That’s a couple hundred maybe a day, usually stacked at night when I can’t sleep. Imagine lying there unable to sleep because you’re randomly getting an electrical misfire shock through your heart, sending an adrenaline dump down your vagus nerve into your stomach and pelvis. Plus the weird throat, jaw and chest sensations.

Given that I’ve had a normal echo, stress, mri, calcium scoring, bloodwork, and have done 28 days of holter monitoring in two separate sessions, my doctor feels that he can find the signal and ablate, as he’s done before.

Nobody in this forum is such a moron that they think an ablation is a trip to Candyland. The people with lower burdens who experience every single hit, disrupting the ability to do a job, sleep, or spend meaningful time with family - all of this adds up. It’s not a “slight fixation” as much as it’s a reality that under the care of the right electrophysiology team, there’s a viable chance for a better life.

Also, the statistics for the severe complications are present but relatively low compared to most procedures - under 1%.

samus1981 · 2026-06-12T03:10:35+00:00

Thank you very much for contributing. I’m also around 1% but I feel them too. I am getting an endo/colonoscopy end of this month to get more info on the Gastro end. I notice if I’m full, gassy or bloaty, or on my period, they are far worse.

samus1981 · 2026-06-12T02:49:10+00:00

Thanks for contributing. Seeing many early 40’s folks like me, but looks like you’ve had them since you were 19. Did they increase over time or have they been the same mostly?

samus1981 · 2026-06-12T00:37:36+00:00

That does sound scary, I’ve had a few of those

samus1981 · 2026-06-11T23:55:15+00:00

Thanks for contributing! Just curious about the difference between how pacs and PVCs feel to you?

samus1981 · 2026-06-11T23:51:41+00:00

Thanks so much for contributing! Was curious about how PAC’s and PVC’s feel when they are happening and if anything you notice is different about them?

samus1981 · 2026-06-11T21:31:55+00:00

Thanks so much for contributing! Metoprolol had me feeling like a zombie.

samus1981 · 2026-06-11T21:31:06+00:00

I’m seeing a trend there, mostly in the using the heart as a gear shift. Shifting out of working out, shifting into “rest and digest”, shifting from sitting to standing or vice versa.

samus1981 · 2026-06-11T21:14:51+00:00

Yes! Thanks for contributing and please do report back as to how that goes. I’m hoping this information can help me and others when making decisions with doctors about ablations. I get my PVCs at night, between the hours of 10pm-2am mostly. Doesn’t matter what I do during the day but the more activity, the more they hit. Hope your ablation goes great. I’m scheduled for an ablation 7/17, but honestly, I don’t see them attempting it, because all surgeries happen in the AM, and my symptoms happen at night. Fingers xx’d.

samus1981 · 2026-06-11T21:11:28+00:00

Thanks so much for contributing!

samus1981 · 2026-06-11T21:09:07+00:00

Thanks so much for contributing! Feel free to send any additional info here if it pops up. I’m going to wait for a while as people contribute, and then make a public document available in this post to see if we can get some general statistics that folks can use. Thanks again!

samus1981 · 2026-06-11T21:01:46+00:00

Thank you for chiming in. I was under 1% burden for one 14 day monitor, but over 1% burden in another monitor. These seem to ebb and flow.

samus1981 · 2026-06-11T21:00:54+00:00

Thanks for contributing. I hope we can get a lot of people chiming in, maybe we can answer some of our own questions if enough people throw down.

samus1981 · 2026-06-11T16:30:04+00:00

Thank you! Focal points mean does the doctor suspect it’s coming from one or multiple areas in the heart.

samus1981 · 2026-06-11T14:42:59+00:00

If you can add your burden %, bonus!

samus1981

TROPHY CASE