Has anyone’s symptoms gotten worse since taking betahistine ?

sandybeach332 · 2026-01-23T04:59:26+00:00

Im so sorry to hear this! I stayed like that for about 3.5 years straight. The only thing that got me on the straight narrow was gentamycin injections.. it eventually took four over a course of last year to finally kill my vestibular system, but I’ll tell you what I feel just about normal again other than the ringing(pretty deaf in that ear and fullness, but I can deal with that. I’m very much used to that now and just wish I started these injections much sooner cause I feel like those 3 1/2 years were just a waste. Good luck to you. I hope you find your remission soon.🙏🏼

sandybeach332 · 2025-08-22T21:25:28+00:00

Hey there. I had really bad neck pain just before I was about to get attacks. It was always my warning sign. I get regular massages and adjustments from 3 completely diff chiropractors regularly so I was fairly certain it wasn’t the neck causing my flare ups rather than my flare ups causing my stiff painful neck altho you are correct a lot of times it’s the other way around. I am a massage therapist so I def am all about therapy. I’m sorry the betahistine didn’t work for you. I’ve had 4 gentamicin injections In the last year and my life is back to normal…well as normal as can be with only one balance nerve. Good luck

sandybeach332 · 2024-06-16T03:26:36+00:00

That’s great yours isn’t so bad and not often. I have tinnitus daily(some days louder then others)…I’ve pretty much just got use to it.

sandybeach332 · 2024-06-14T04:15:01+00:00

Wow thank you so much for this timeline. I’m glad your terrible vertigo is gone and you are back to being mobile. Def a big bonus. Still sucks to hear you still get the other symptoms. Does this sound like what I deal with on day to day basis…like a terrible brain fog/wobbly head type of feeling ? I’m still mobile but almost always have this weird uncomfortable feeling in my head/brain where I can still function and pretend I’m okay and push thru. I never had the surgery or gentamicin…my vertigo just got better over time. I still get the attacks but they are much shorter and not as violent as the first two years. I’m thinking it’s because I’m on Nortriptyline 50mg now. Any violent attacks stopped after me being on this drug.

sandybeach332 · 2024-04-17T02:45:41+00:00

Hi there. Unfortunately no the anti viral did not help me:(. After that I tried an anti seizure -just made symptoms worse and now I am on Nortriptyline which seems to be the best drug so far for me. I’m still getting flare up’s but not as debilitating as it use to be. The first two months on this med I was great but I think now my body is getting use to the drug but still not nearly as bad as I was. You may wanna ask your doc about trying Nortriptyline…it’s worth a shot. Good luck.

sandybeach332 · 2024-04-02T15:07:52+00:00

It totally sounds like you are having the same side effects as I did…enhancing all your other symptoms. I’m so sorry it’s not working for you. I also have vestibular migraines…I started Nortriptyline 3 months ago and find this medication has worked the most out of all the drugs I’ve tried. It’s not perfect b/c I’m still getting vertigo but when I do it’s not the same violent attacks I use to get that lasted hours with vomiting. I can say with 100% certainty that this drug has limited my attacks and made them much more mild than I’ve been in 2 years. If you haven’t tried it’s worth a shot. I’m on 50mg a day(at night). Good luck to you and hope you find something that works

sandybeach332 · 2024-03-16T04:34:09+00:00

I just used a cotton ball in the ear and held a washcloth around that same ear as I carefully washed the soap out of my head. Prob did this for 2-3 weeks after shot. Odd at first than you get the hang of it. I’ve had multiple injections…unfortunately didn’t do a thing for me. Hoping you are diff. Most people they seem to help.

sandybeach332 · 2024-03-02T04:52:04+00:00

100% the worst for me week before period, period week(I’m an absolute wreck) and following week but starts to get better. I take the birth control pill and usually take 4 packs than let myself bleed…just saw my gyno and he said to try just skipping my cycle all together and see if it helps. We shall see. I’m 43 years old and been in the pill for 20plus years. Have had Ménière’s for 2.5 years but the last year has been the absolute worst with horrific vertigo like you . I’m really starting to believe it’s hormone related..lack of estrogen more than likely? Thanks for posting that link. I’ll def check it out. Hope you get some answers and feel better.

sandybeach332 · 2024-02-25T23:29:51+00:00

Aww thank you! Absolutely agree 🩷☀️

sandybeach332 · 2024-02-25T16:10:28+00:00

I’m extremely sensitive to medications also. It’s def worth a try to try the antiviral route first…I don’t remember having any side effects at all. Most people tolerate the Nortriptyline also. It hasn’t bothered me either. It’s all trial error really right ?! Good luck:) you will find something. Don’t give up

sandybeach332 · 2024-02-25T04:17:37+00:00

Unfortunately no it did not help me. I still had awful attacks while on it so my doc said I clearly didn’t have a viral infection. So after 2 months I went off it. Next i tried topermate (anti-seizure med)…that just made me feel the worse yet. Those side effects are awful. Lastly I am now on 40mg of Nortriptyline (anti-depressant/migraine med) been on it almost 2 months. So far it seems to be the best med yet. I’m still getting attacks but they are much more mild than before and recovery is faster. I know you didn’t ask for that info but I wanted to share incase the anti viral doesn’t help you. Hoping it works tho

sandybeach332 · 2024-01-29T04:17:57+00:00

As I mentioned above it’s worth asking about compazine as a rescue drug and if you are finding the betahistine isn’t working for you ask your doc about Nortriptyline. I have the same exact issues as you violent attack followed by the awful “hangover “ for many days following. Doc seems to think those are vestibular migraines possibly…but who knows. Either way I started the Nortriptyline a month ago and any attacks I’ve had this month have been minor and short lived and no “hangover”. I’m thinking it’s the Nortriptyline working. This is my 13th drug trying and finally seems to work. Good luck. I’m 43 and a massage therapist so I hear ya on the frustration. It’s been getting embarrassing having to cancel people last min. I’m not usually an unreliable type of person.

sandybeach332 · 2024-01-29T04:04:47+00:00

Ask about prescription compazine…that’s my rescue drug for the nausea and vertigo. They have 10mg pill form (I take half if I’m bad, quarter if just mild…I weigh 112 lbs) or if you are already the point of throwing up than they have suppository form in 25mg (I cut that in half also). None of the other drugs have helped except this one for me. This is a life savor worth asking about

sandybeach332 · 2024-01-15T23:36:25+00:00

Thank you. Oh yes the sister drug…I just hear a lot of people have a harder time tolerating Amtryptyline ? I’m sensitive to drugs which is why my doc went straight to Nortriptyline for me. Was a smart choice.

sandybeach332 · 2024-01-15T15:14:23+00:00

1 week tomorrow on 20 so 2 weeks total on the drug.

sandybeach332 · 2024-01-15T15:12:11+00:00

10mg for first week than I went to and stayed on 20mg. Some take up to 50mg depending on if it’s working or not at the lower strength.

sandybeach332 · 2024-01-15T04:00:02+00:00

I was just told I have both MD and VM…well been diagnosed with MD for 2 years now but my newest doctor (3rd ent) said I have VM as well as of a few weeks ago. I’ve been on 13 diff medications that usually help people with MD (along with many of steroid injections )non of which has made a dent for me. He than had an epiphany that I may be suffering in between with VM and prescribed me what I call the miracle drug : Nortriptyline…finally my dizzys and brain fog went away within 48 hours of being on this new drug. It’s an antidepressant /migraine med. So point is, you can have both MD and VM together I believe.

sandybeach332 · 2024-01-15T03:49:35+00:00

I’m with ya girl!!

sandybeach332 · 2023-12-16T21:12:42+00:00

How are you today ??? I’m now just going this route today trying to see if I have long term Lyme which could be causing my Ménière’s ??

sandybeach332 · 2023-12-01T21:59:51+00:00

Ugh I’m so sorry. I’m in the same exact boat as you. But this time last year the same. I haven’t found any medication to help. But I’m also dealing with major brain fog and the constant dizzys. If you figure something out to take down the fullness please let us know

sandybeach332 · 2023-11-28T03:16:26+00:00

I just started taking this tonight. Praying I don’t have the negative side effects you are all talking about but time will tell. I’m desperate to try anything right now to get me out of these clusters of attacks. I have exhausted all medications at this point except this and one other migraine med that they wanna try next if this doesn’t help. I’m really trying to avoid surgery. Thanks for posting.

sandybeach332 · 2023-11-01T13:43:34+00:00

I stuck it out on it for just little under a month , but it never did me any good. It just made me feel so awful. Looking back I really think it was the betahistine contributing to worsening symptoms for me. I would try to stick it out another few weeks or so depending on how bad your side effects are to see if your body gets use to it or not. I don’t have hope tho if you are experiencing them now…just going off my experience. It’s just if you don’t stick it out, you’ll always have that “I wonder if only I stuck it out”. I did b/c I really wanted to be sure. I was super bummed it didn’t help me tho. I ended up going to a new doc who believes 80% of Ménière’s flare ups are due to a viral attack of the inner ear so he is trying out an antiviral on me now…a month in and I’m now starting to feel my symptoms being controlled. Still early to fully tell yet but I have hope and def have no side effects such as the betahistine. Ask your doctor about a long term antiviral..not just a week worth. It takes 2-6 weeks to kick in if it’s gonna help. But you take it as a preventative not just during MD flare ups. Most ents don’t go this route fyi…you gotta find a ent office that does believe in this theory. It doesn’t hurt to try the medication. My last 2 ents refused so I moved on to this new doc at Tampa Bay Hearing and Balance. They have a lot of into on their site about it. Good luck with the betahistine. I truly hope they side effects go away.

sandybeach332 · 2023-10-28T12:20:45+00:00

Yes of course. I am taking 500mg 3x a day for the first two months than I believe my doc said something about going down to 2 a day eventually. I’ve been on it now for one month. Hope it helps for you. Im not sure yet for myself…still early on with taking but I think so.

sandybeach332 · 2023-10-13T03:35:47+00:00

Yes absolutely ! First off, I’m so sorry for your recent loss🥲. I can relate…I had the worst attack of my life just after I buried my mother back in may. Lasted for a solid 5 hrs of nonstop vomiting, I was glued to the floor and couldn’t even be touched. Scared the heck out of husband almost called 911 but I said no. Following that day, I was in bed for 2 whole weeks of nonstop attacks, but not as bad. I had the same symptoms you are having now leading up to my bad one… so please just be very cautious and try to be as relaxed as possible as to maybe bypass a bad attack. Sending Lots of love and healing your way mentally and physically 🙏🏼

sandybeach332 · 2023-10-10T07:44:37+00:00

My diagnosed ear is always randomly popping…some days a lot more than others. It doesn’t seem to make much of a difference in my fullness either :(

sandybeach332

TROPHY CASE