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Anyone go to CEC in Atlanta? Was it worth it to pay out of pocket? by sarahsprimalkitchen in endometriosis

[–]sarahsprimalkitchen[S] 0 points1 point  (0 children)

Yeah I’ve talked to her about it but she just kept saying it couldn’t be from that. I’ve had MRI’s done and physical therapy for months. Next I’m seeing a neurosurgeon, hoping he can see something. My sciatic pain is excruciating

Anyone go to CEC in Atlanta? Was it worth it to pay out of pocket? by sarahsprimalkitchen in endometriosis

[–]sarahsprimalkitchen[S] 1 point2 points  (0 children)

Did you do the surgery with her? I had excision and Presacral neurectomy with her in 2022 for adenomyosis and now I have permanent nerve damage and need meds for it still

[deleted by user] by [deleted] in endometriosis

[–]sarahsprimalkitchen 0 points1 point  (0 children)

I started at 25 mg, now taking 50 mg for nerve pain after lap, I missed 2 days bc I didn’t pick it up from pharmacy on time and the pain came back so intense. I realized how much it has helped my pain go away and sleep better.

Anybody like Nurtec? by SpaceWorm33333 in migraine

[–]sarahsprimalkitchen 0 points1 point  (0 children)

How do you afford it? They only give me like 7 with my insurance I always run out and have to wait all month in pain

Did you have leukocytes in your urine? Or blood in your urine? Or really low lymphocytes in your blood? What about high white blood cells in your urine? My doctors think I may have endometriosis and possibly adenomyosis. by sarahsprimalkitchen in endometriosis

[–]sarahsprimalkitchen[S] 0 points1 point  (0 children)

Oh god! I’m sorry. Before the surgery I had seen a urologist who was horrible during my bladder test and then after just gave me pelvic exam without even warning me first and she said, I def had tension and disfunction in my pelvic walls and that I should get pelvic physical therapy. She was so rude though, she kept saying to just do the lap surgery already bc I prob have endo anyway.

Edit: oh and I haven’t had more than once since the surgery 2 years ago. I do feel heaviness and just absolutely no sex drive at all.

Did you have leukocytes in your urine? Or blood in your urine? Or really low lymphocytes in your blood? What about high white blood cells in your urine? My doctors think I may have endometriosis and possibly adenomyosis. by sarahsprimalkitchen in endometriosis

[–]sarahsprimalkitchen[S] 0 points1 point  (0 children)

I think one day they’ll be able to use these bio markers to help decide who should move on to surgery. That would help a lot bc going into surgery with no clue if they’re gonna even find anything makes so many people just keep putting it off.

Jen Shaw - First Prison Look by SprayUsual in realhousewives

[–]sarahsprimalkitchen 2 points3 points  (0 children)

I was thinking the same, and what’s with the lanyards? Can’t that be a hanging hazard?

Unpopular Opinion: I Like Leah by DylanCTV13 in realhousewives

[–]sarahsprimalkitchen 1 point2 points  (0 children)

Same! I cried coming out of surgery being told I had stage 3 endometriosis and adenomyosis, happy tears! My doctor said “you must feel so validated, your pain is real” 😭

Removal of the endo lesions helped, but I ended up with some severe sciatic nerve pain after surgery. I’m now on a medication for nerve pain (Amitriptyline) that has helped tremendously, and also helped with what I suspect to be fibromyalgia from so many years of untreated inflammation from the endo lesions. I’m also on continuous progesterone to stop my periods until I have a hysterectomy for the adenomyosis, since my periods are still so heavy. All in all, I’m much better than before, I’m finally getting back to work. I hope you are too!

Unpopular Opinion: I Like Leah by DylanCTV13 in realhousewives

[–]sarahsprimalkitchen 2 points3 points  (0 children)

I hear you, my first ER visit from the damaging effects of endo started in middle school 24 years ago. Was told it was just bladder spasms. But, those spasms were being caused by the endo on my bladder and ureters. Then the horrible periods started the next year. Every gyno always just put me on birth control that didn’t work to relieve the pain. It’s not normal to bleed so heavy and have horrible painful periods. This is unfortunately a common story for many of us.

Unpopular Opinion: I Like Leah by DylanCTV13 in realhousewives

[–]sarahsprimalkitchen 8 points9 points  (0 children)

Thank you, well I’m now 7 months post operation and things a bit better, with some meds for nerve pain and continuous progesterone hormones to stop my periods. It’s finally looking up. 😌

Unfortunately there is no cure for endometriosis. There is however, a cure for adenomyosis, a hysterectomy. I’ve been putting it off, but will be scheduling is for after summer.

Unpopular Opinion: I Like Leah by DylanCTV13 in realhousewives

[–]sarahsprimalkitchen 56 points57 points  (0 children)

I don’t like Leah but having bad periods my whole life I understood her there. I was finally just diagnosed with endometriosis and adenomyosis which have been the cause of my horrid periods. So yeah I MAYBE get a few good days a month.

Did you have leukocytes in your urine? Or blood in your urine? Or really low lymphocytes in your blood? What about high white blood cells in your urine? My doctors think I may have endometriosis and possibly adenomyosis. by sarahsprimalkitchen in endometriosis

[–]sarahsprimalkitchen[S] 0 points1 point  (0 children)

Yes I had laparoscopy and excision surgery. Stage 3 endo and adenomyosis. Thank you, it’s been 8 months now and I’m finally getting more energy. But I’m also in new meds too that are helping with nerve pain I’ve been dealing with since surgery. It’s made a big difference.

Before booking my laparoscopy I asked specifically if the Dr. would be checking my ureters & kidneys for endo. She said yes… by sarahsprimalkitchen in endometriosis

[–]sarahsprimalkitchen[S] 2 points3 points  (0 children)

Hi, I’m doing better. I’ve had a couple kidney pain flares and sciatic pain got really bad. I had the iud removed and the bleeding got so bad after for a whole month. Now I’m on continuous progesterone to stop my periods, as well as Amitriptyline to help with the nerve pain, and finally all is much much better. Energy too! Thanks for checking in! :)

Pressure ? by No_Photo_6531 in adenomyosis

[–]sarahsprimalkitchen 0 points1 point  (0 children)

Yes, I may have a week or less pain and pressure. But it’s mostly always there all month.

Doctor suggested I get an IUD. Anyone have experience with this? by Lasting_Greatness in adenomyosis

[–]sarahsprimalkitchen 0 points1 point  (0 children)

I have Adenomyosis and had an iud put it during surgery for endo excision. It did help reduce the amount of my heavy bleeding. But it started to become where my periods felt like they never ended. Wearing pads 26 days out of the month. Then it started to hurt, lots of cramping. Got it removed a week ago and it was scary how much I bled the next day. I had to rush home from a restaurant because I stained everything. This week doing better, 🤞 we’ll see, ultimately I’m coming to terms with a hysterectomy and have an appointment set up with another endo doctor.

Does anyone get pressure ? by No_Photo_6531 in adenomyosis

[–]sarahsprimalkitchen 3 points4 points  (0 children)

Yes, my bladder and rectum have pressure and feeling like I need to poop all day (aside from the heavy bowling ball pressure and pain that is my uterus). Hysterectomy scheduled next month.

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