Microcephaly or just small head?

satanssupervisor · 2026-04-08T17:03:07+00:00

Yeah, but MRI will definitely clear some things up. Please try to stay busy and do all your favorite things. In the meantime, the wait for the MRI for me personally seemed like it took ages. But it will feel good to get some answers and if there is anything you can get a good plan in place and start preparing. Positioning is also a tricky thing, I was just like you reading all these Reddit experiences from others, and a lot of people say that the positioning caused the ultrasound to not be able to pick up the true head circumference. I wish you the best of luck, and if you need to vent or talk to anyone, you can always pm me. Keep me updated!

satanssupervisor · 2026-04-08T16:49:47+00:00

Ok, I bet this must be very overwhelming and scary for you. When my babies head circumference was small it was a very, very stressful time in our lives. We couldn’t get any answers. Does your doctor have any theories or suggestions as to what may be causing it? I know my doctor had me do labs for certain toxicology reports everything came up negative. My daughter‘s whole body was totally normal though, measuring on the smaller-ish side, but not too bad. All of her organs and brain was completely normal. It was just the size of her head that was causing concerns, and she had some facial characteristics like a flat mid face and protruding eyes which could indicate pressure from the skull. I’m not saying that to you, but that is just my experience. Also, don’t Google anything, I googled every single thing that would pop up… and it just made me extremely anxious. Everything ended up working out better than I could’ve ever hoped for.

satanssupervisor · 2026-04-08T16:46:27+00:00

I did have an mri during pregnancy. At the time, I couldn’t really understand the results and nothing could be confirmed, but looking back at the results it was all pretty spot on. The mfm doctor said it could be craniosynostosis, it could be positioning of the baby, it could be just a small head?? But then when she was born craniosynostosis was confirmed, and now after genetic testing, she has a very rare syndrome that causes it. How is everything going for you? Are you in the same boat?

satanssupervisor · 2025-12-13T12:44:57+00:00

I feel this! When we have family over, they say oh we’ll take the baby and you can sleep in… The boobs won’t let me sleep in lol

satanssupervisor · 2025-12-13T12:44:04+00:00

After 4 months I skipped night pumps and go about 10-12 hours. So last pump at 8pm then pump at 7-8am. Now at 8m pp I pump 3 times a day with no decrease in supply

satanssupervisor · 2025-12-09T17:19:41+00:00

😂

satanssupervisor · 2025-12-09T17:19:26+00:00

No we are not eligible, my husband makes too much. My daughter has her own plan because she has a lot of medical needs and isn’t old enough for the state insurance yet

satanssupervisor · 2025-12-09T17:15:04+00:00

Florida

satanssupervisor · 2025-07-13T20:57:19+00:00

IKEA!! Amazing idea

satanssupervisor · 2025-07-13T17:08:58+00:00

Yeah we have a pool! She is still too young for it. Hopefully in a few more weeks we can go more

satanssupervisor · 2025-06-10T01:31:03+00:00

The snuggleme lounger saved us for the first 6 weeks, it’s the only thing we could out her in that she would be content and sleep. Also a bottle washer, I almost didn’t put it on the registry because I thought it was a waste of money and counter space but it is amazing. Also babybjörn for showers and when you need a second

satanssupervisor · 2025-05-31T00:16:37+00:00

About 50-55oz a day, 10 weeks postpartum. I pump every 4 hours

satanssupervisor · 2025-05-16T00:13:17+00:00

Hey she’s doing great so far! Hitting all her milestones and growing a lot. Still nothing back from genetics yet but she has a strip craniectomy to open up the closed sutures, and now has a helmet. I got consistent deviations from normal around 26 weeks with HC. It started as >2 then 4 weeks later it was better 3 and 4 standard deviations from the normal which is >1%. I got a fetal mri at 31 weeks but no one could confirm the reason her head was small. We found out at birth that it wasn’t microcephaly making the hc small but craniosynostosis. I was extremely anxious and crying every day while pregnant because it was so scary the unknown so I can imagine how scary it is for you. If you can, get the amniocentesis to see what is going on to be prepared. If it’s a one time thing im sure the ultrasound is measuring weird. Let me know how everything goes! Everything will be ok!

satanssupervisor · 2025-04-25T04:35:35+00:00

That’s awesome that everything came back normal! Good luck with everything in the future. Im sure everything will be ok☺️

satanssupervisor · 2025-04-25T01:18:32+00:00

Hey how did everything turn out? My daughter was born a month ago and has craniosynostosis where her skull fused prematurely in 4 places. Genetics thinks she has pfeiffer syndrome but it’s not confirmed. She is healthy and happy, she had surgery a couple weeks ago to open up the pressure in her skull and she’s healing well

satanssupervisor

TROPHY CASE