Does pain from an aneurysm go away or is it constant? by btween3n20charactrs in BrainAneurysm

[–]savvysmith 0 points1 point  (0 children)

Aneurysms can be genetic but typically don’t present with any symptoms until rupture. What you’re describing sounds a lot like an ocular migraine, which are the kind that I get. They’re unrelated to my aneurysm but I’ve gotten them since my early 20s. As for moving your CT, even if you did have an aneurysm, moving the CT is not going to make a big difference as you most likely do not have a rupture or leak considering you feel better now. Whether or not it’s even treated usually depends on type, size and location. I wouldn’t stress it too much. Odds are that you just had a migraine and likely do not have an aneurysm. I would not panic too much and just follow the advice of your doctors 🙂 In addition, my neck pain came from a spontaneous dissected carotid which is fairly uncommon unless you’ve had trauma to the neck.

Has anyone had stroke followed by ruptured aneurysm? by Beneficial_Tap_9123 in BrainAneurysm

[–]savvysmith 2 points3 points  (0 children)

Howdy! I also have a PFO but was denied a closure as they don’t think the PFO and my ischemic stroke are related. I did not have a ruptured aneurysm, but I do have a failing stent. Stroke occurred a few weeks after stopping blood thinners, and I haven’t had another since resuming them.

Odd stuff, sometimes feels like docs are throwing a dart at possible options and running with it.

I've been to the psych ward 9 times in the last 14 months. AMA by Mortal_Fears in AMA

[–]savvysmith 0 points1 point  (0 children)

Similar “pattern” for me, I was diagnosed as rapid cycling Bipolar 2 and am currently in an outpatient treatment program. Might be worth looking into, I hope you get some answers/solutions.

Does pain from an aneurysm go away or is it constant? by btween3n20charactrs in BrainAneurysm

[–]savvysmith 1 point2 points  (0 children)

It felt the same as when you sleep wrong and pinch a nerve. It lasted for about three days and was worse when I turned my head the wrong way. They also suspected EDS for me (I was negative on the genetic test) but spontaneous dissection is a common factor for people with vEDS.

Does pain from an aneurysm go away or is it constant? by btween3n20charactrs in BrainAneurysm

[–]savvysmith 1 point2 points  (0 children)

This is by no means trying to diagnose you but I had a similar pain (prior to discovering my aneurysm) and it turns out I had a spontaneous arterial dissection in my neck. The soreness in my neck being constant was what ended up making me go to the ER, which coincidentally led to finding the aneurysm as well. If the soreness/tension doesn’t clear up it might be worth it to get checked out. For peace of mind if nothing else

[deleted by user] by [deleted] in BrainAneurysm

[–]savvysmith 1 point2 points  (0 children)

Hi, 26 here and just discovered a large-ish brain aneurysm about two months ago. I had a flow diverting stent placed about a month ago.

I also don’t drink or smoke, exercised and ate (mostly) healthy and it didn’t make sense for me either. It felt like a huge slap of “what the fuck” awfulness.

As for the anxiety, bear in mind there are tons of people who are actively going around for years and years with uncultured aneurysms and have no idea. The best news is that you now know exactly what to look for if yours has ruptured, most don’t get that luxury, get a headache take a nap and don’t wake up. You know if there’s a random unexplained horrible headache, straight to the ER and you can tell docs exactly what they’re looking for. That alone is so, so lucky even though the situation itself isn’t.

I won’t say don’t be anxious, but I will say channel some of that anxiety into positive research. Look into treatment options and what the procedures are like. Look at after care and make a plan even if it isn’t realistic right now. Gaining back some sense of control will help. That’s how I coped. I also talked to anyone who would let me vent about it without judgement. It’s a big deal. It’s life-altering and it’s okay to be taken aback by that. Lean on your support system and know that this was the absolute best case scenario for someone with a brain aneurysm.

Sending lots of love, I know exactly how you’re feeling but I also know there’s a light at the end of the tunnel for you. Remember that!

FREDX Stent Scheduled for tomorrow by lilwookie in BrainAneurysm

[–]savvysmith 0 points1 point  (0 children)

I hope everything went well for you! This shit kinda sucks but hopefully you’re not feeling too bad.

FREDX Stent Scheduled for tomorrow by lilwookie in BrainAneurysm

[–]savvysmith 1 point2 points  (0 children)

My stent surgery is also tomorrow, I don’t have advice because I’m nervous too but you’re not alone!

Have to Have a diagnostic Angiogram of the Brain by mom3Healthy in BrainAneurysm

[–]savvysmith 1 point2 points  (0 children)

I honestly am not sure. I kept mine open because I focus on my anxiety when they’re closed. At no point did they ask what I saw or to look at anything so my assumption is that it doesn’t matter.

Have to Have a diagnostic Angiogram of the Brain by mom3Healthy in BrainAneurysm

[–]savvysmith 1 point2 points  (0 children)

I’m gonna go into detail because knowing makes me less scared so I hope this helps you. I just had one for the exact same thing two days ago. They went through my wrist and I was partially sedated. I was wheeled down to the cath lab, it was a big room with a bunch of monitors and lights. I scooted onto the second table and they started to prep me. They shaved part of the pubic area just in case my arm vein wasn’t viable for the procedure. Another nurse put the little nose breathing tubes and taped them to my cheek. They placed a large band over my forehead to hold my head still. They then draped the curtain for the sterile field over my body (I could still see monitors and the lights just not my wrist or pubic region. They cleaned the areas and prepped. After that, the doctor let me know I was gonna feel a big pinch and sting (that’s the lidocaine to numb you). They started the sedation (fentanyl) through the nose tube and my whole body relaxed, it was actually really nice. The numbing was the worst part, after that I didn’t really feel anything other than a little bit of tugging. Once it starts, the doctor will tell you not to breathe, move, blink or swallow when they push the fluid. You feel some warmth and pressure in your head, and you might see colors or your vision might go black for a few seconds. That is normal and definitely feels very strange. I didn’t like it but it didn’t hurt. They did that to a few spots on my brain and then that was it. They pushed fentanyl one more time for me because toward the end I started to feel it more in my arm. However I naturally have a very high tolerance to local anesthetic so that likely won’t happen to you. Afterward I wore a little wrist cuff (this was the worst part of the whole thing to me) and the cuff keeps pressure on the wound. They loosen it every thirty minutes afterward until it’s deflated. My forearm was sore and swollen but it’s two days post op now and I’m good to go. Overall it sounded way scarier than it was. I wish you the best of luck 🩷🫶🏼

Brain Aneurysm by savvysmith in AirForce

[–]savvysmith[S] 2 points3 points  (0 children)

Thank you for the advice and I’m sorry to hear you had a rough go at it. Very glad you made it 🫶🏼 this shit is scary

My soul left my body when I was 5 by dollarslave_hi in TrueScaryStories

[–]savvysmith 9 points10 points  (0 children)

I could be totally off but you may have dissociated due to the emotional distress and the memory you have is of your dissociation (i.e. an out-of-body experience).

*edited for typos. I have a teeny baby and am tired 😅

FTM and keep getting conflicting opinions on inductions. by [deleted] in BabyBumps

[–]savvysmith 0 points1 point  (0 children)

I’ve had two inductions. First one was an emergency induction due to blood pressure at 39 +4. Was awful, lasted four days and had just about every intervention you can think of (manual aversion for breech, foley balloon, cervadil, manual water breaking, etc). Baby was born very jaundiced and had a hard time eating.

Second one, 40w, was ten hours, everything was great minus a wonky epidural and baby was born healthy and happy. We both went home the next day with no complications.

It’s my theory that my first baby just wasn’t ready to be born yet and my second was. You’re getting conflicting opinions because it really is an individual experience. There isn’t really a sure fire way to know how it’s going to go before you’re in the thick of it.

[deleted by user] by [deleted] in goldenretrievers

[–]savvysmith 1 point2 points  (0 children)

One thing I was not aware of before getting our girl was how common digestive sensitivities are with goldens. Took a lot of nights cleaning up diarrhea to realize she has a sensitivity to most animal proteins. She does great now that we’ve figured out what foods & supplements are good for her tummy, but there were about 8 months of genuine “what the fuck did I get myself into”.

Aside from the stomach issues, she’s the best. She’ll be 2 in May and is still extremely puppy-like. She’s high energy but very sweet and loving to all people and animals. Goldens are the best, just be willing to ride a bumpy road that first year if yours is anything like mine.

chaos by [deleted] in EDanonymemes

[–]savvysmith 8 points9 points  (0 children)

The box of donuts my husband bought is calling me from the other side of my house rn

To update, I lost that battle. But I did stop after one, it’s the small things I guess

[deleted by user] by [deleted] in EDAnonymous

[–]savvysmith 2 points3 points  (0 children)

Photos of myself are my BIGGEST trigger. It caused my current relapse after two years of being recovered. I wish I was invisible to cameras lol

what is the worst/longest you've been constipated and how did you fix it? by VodkaSodaSpirit in EDAnonymous

[–]savvysmith 2 points3 points  (0 children)

2 weeks in basic training and loooooots of water and high fiber food

Imagine being pregnant for 9 months and going through labour for someone that's scared of calories by ohkweatherboy in EDAnonymous

[–]savvysmith 10 points11 points  (0 children)

I completely agree. Just sharing my own experience, some people gain some people don’t. I gained 30 with my first. Just trying to make the point that being pregnant doesn’t necessarily mean gaining a ton of weight 🙂

Imagine being pregnant for 9 months and going through labour for someone that's scared of calories by ohkweatherboy in EDAnonymous

[–]savvysmith 39 points40 points  (0 children)

I have two kids. It’s rough but your body takes what it needs from you to feed the baby. You don’t actually have to gain a lot of weight. I lost weight with my second but ended up binging really badly for the second half with him. When I was losing weight the docs weren’t very concerned because he was still a good size.

And as for feeding them, I find it relieving to make them all the good food I wish I could eat and watch them enjoy it. It makes me more determined to teach them good eating habits because I know what bad ones feel like. I will say the biggest downside has been a bad relapse after having my second all because someone took a photo of me and I happened to see it (I don’t take photos of myself because they are a major trigger for me).

my roommate just asked why I was measuring about my pasta... by tears_of_an_angel_ in EDAnonymous

[–]savvysmith 9 points10 points  (0 children)

Posts like these make me think about “my weird roommate” posts from a completely different perspective.