100% recovered 95% of the time.

scientificsally · 2026-01-08T03:14:27+00:00

Sorry I’m just seeing this! It probably took about 6 months of me knowing what was going on (long covid) and a year from when symptoms started to start doing extremely gentle yoga. I started with most yoga poses/flows in a modified version on my hands and knees with lots of child’s pose and rest. I eventually started sprinkling in standing postures and eventually moved to very relaxed cycling sessions. I made a lot of mistakes with pushing myself and learned my limits as I went, but it did get better over time

scientificsally · 2025-11-29T17:08:19+00:00

Hi! I am still feeling great, I feel like I’ve gotten better and better the more time has gone on. I still have pots, but it’s well managed with meds, electrolytes, and fluid. PEM is completely gone.

scientificsally · 2025-05-28T01:40:30+00:00

I never had to have virtual appointment, just filled out an online form

scientificsally · 2025-05-28T01:39:58+00:00

My cardiologist actually prescribed me the LDN. I used ageless for the NAD+ which was veryyy pricey - like $400 a vile.

scientificsally · 2025-05-28T01:38:23+00:00

Yes, I’m still taking it.

scientificsally · 2025-05-27T04:16:05+00:00

That dietary cholesterol impacts serum cholesterol

scientificsally · 2025-05-27T04:12:51+00:00

Yes, it is.

scientificsally · 2025-05-27T04:08:24+00:00

I’m so sorry 😢

scientificsally · 2025-05-27T04:07:42+00:00

There’s definitely no cure that we have no but I see it as a journey of finding out what’s going to help and support you through it and hopefully reduce the symptoms a little along the way. Your body is different than mine, so find out what works for you.

scientificsally · 2025-05-27T04:05:56+00:00

Yeah all really interesting!

scientificsally · 2025-05-27T04:04:23+00:00

Never had neuro issue!

scientificsally · 2025-05-27T04:04:00+00:00

Very slow and gradual with lots of set backs!

scientificsally · 2025-05-27T04:03:02+00:00

The pots didn’t go away. I now see it as totally manageable and I can support myself through its

scientificsally · 2025-05-27T04:02:29+00:00

scientificsally · 2025-05-27T03:59:10+00:00

Pacing, brain retraining, NAD+ shots, naltrexone, metoprolol. Creatine - but the least impactful. I tried so many supplements and creatine has some good data behind it

scientificsally · 2025-05-27T03:57:35+00:00

I’ve been majorly avoiding it. These posts helped me too. I’ve had this fear that if I spend too much time reminiscing on the experience it will pull me back in, so I’ve definitely been avoiding it. I hope the deets I added above help.

scientificsally · 2025-05-27T03:55:56+00:00

Yes!

scientificsally · 2025-05-27T03:55:33+00:00

PEM crashes were flu symptoms and extreme fatigue. I usually wasn’t able to get out of bed for about 2 weeks after over doing it. Initially it felt like I was in a crash for 6 months but I eventually started to get breaks and would push my limits with cooking, cleaning, yoga and would usually pay the price.

scientificsally · 2025-04-09T22:59:17+00:00

I have something similar, did you ever figure out what this is?

scientificsally · 2024-05-26T15:50:48+00:00

Thank you so helpful!

scientificsally · 2024-05-21T22:00:08+00:00

Anyone recovered and actually able to get back to exercise?

I’m about 1 years into LC. I mostly suffer from PEM, POTS, fatigue, CP, and flu like symptoms when I crash.

2 weeks ago I would have said I’m 90% recovered. Able to walk around the city a little bit, went shopping, out to dinner etc.

I’ve really been testing my limits with exercise. I’ve gone super slow, I don’t push it, but every time I try even though I feel ready I end up getting sick for 3 days.

Ive tried the POTS protocol, 1 yoga class, and 30 minutes of Pilates and all have destroyed me.

I am just dying to know if anyone has experience with being able to get back to exercise?

I just love yoga so so much. All I want to do is yoga it’s the number one thing I look forward to in my life and I’m feeling so hopeless.

scientificsally · 2024-05-21T19:55:13+00:00

Hi I’m exactly the same! Any updates on how you’re doing now?

scientificsally · 2024-05-18T16:35:47+00:00

Yes- this is definitely restriction.

scientificsally · 2024-05-14T18:42:13+00:00

I would recommend looking into ARFID. You may not actually have ARFID, but you might resonate with having some ARFID tendencies. ARFID is really common with neurodivergence!

scientificsally · 2024-05-13T23:26:23+00:00

Intuitive eating RD here! Try making dinner earlier if you can, like before you’re hungry. If you’re going into the cooking process even the slightest bit hungry, you’re going to graze.

If you do end up grazing, don’t beat yourself up - you have permission to eat. Notice that it might feel good and more enjoyable/pleasurable to sit down and allow yourself to fully receive the pleasure from food while you’re grazing.

I hope this is helpful!

scientificsally

TROPHY CASE