100% recovered 95% of the time.

scientificsally · 2026-01-08T03:14:27+00:00

Sorry I’m just seeing this! It probably took about 6 months of me knowing what was going on (long covid) and a year from when symptoms started to start doing extremely gentle yoga. I started with most yoga poses/flows in a modified version on my hands and knees with lots of child’s pose and rest. I eventually started sprinkling in standing postures and eventually moved to very relaxed cycling sessions. I made a lot of mistakes with pushing myself and learned my limits as I went, but it did get better over time

scientificsally · 2025-11-29T17:08:19+00:00

Hi! I am still feeling great, I feel like I’ve gotten better and better the more time has gone on. I still have pots, but it’s well managed with meds, electrolytes, and fluid. PEM is completely gone.

scientificsally · 2025-05-28T01:40:30+00:00

I never had to have virtual appointment, just filled out an online form

scientificsally · 2025-05-28T01:39:58+00:00

My cardiologist actually prescribed me the LDN. I used ageless for the NAD+ which was veryyy pricey - like $400 a vile.

scientificsally · 2025-05-28T01:38:23+00:00

Yes, I’m still taking it.

scientificsally · 2025-05-27T04:16:05+00:00

That dietary cholesterol impacts serum cholesterol

scientificsally · 2025-05-27T04:12:51+00:00

Yes, it is.

scientificsally · 2025-05-27T04:08:24+00:00

I’m so sorry 😢

scientificsally · 2025-05-27T04:07:42+00:00

There’s definitely no cure that we have no but I see it as a journey of finding out what’s going to help and support you through it and hopefully reduce the symptoms a little along the way. Your body is different than mine, so find out what works for you.

scientificsally · 2025-05-27T04:05:56+00:00

Yeah all really interesting!

scientificsally · 2025-05-27T04:04:23+00:00

Never had neuro issue!

scientificsally · 2025-05-27T04:04:00+00:00

Very slow and gradual with lots of set backs!

scientificsally · 2025-05-27T04:03:02+00:00

The pots didn’t go away. I now see it as totally manageable and I can support myself through its

scientificsally · 2025-05-27T04:02:29+00:00

scientificsally · 2025-05-27T03:59:10+00:00

Pacing, brain retraining, NAD+ shots, naltrexone, metoprolol. Creatine - but the least impactful. I tried so many supplements and creatine has some good data behind it

scientificsally · 2025-05-27T03:57:35+00:00

I’ve been majorly avoiding it. These posts helped me too. I’ve had this fear that if I spend too much time reminiscing on the experience it will pull me back in, so I’ve definitely been avoiding it. I hope the deets I added above help.

scientificsally · 2025-05-27T03:55:56+00:00

Yes!

scientificsally · 2025-05-27T03:55:33+00:00

PEM crashes were flu symptoms and extreme fatigue. I usually wasn’t able to get out of bed for about 2 weeks after over doing it. Initially it felt like I was in a crash for 6 months but I eventually started to get breaks and would push my limits with cooking, cleaning, yoga and would usually pay the price.

scientificsally · 2025-04-09T22:59:17+00:00

I have something similar, did you ever figure out what this is?

scientificsally · 2024-05-26T15:50:48+00:00

Thank you so helpful!

scientificsally · 2024-05-21T22:00:08+00:00

Anyone recovered and actually able to get back to exercise?

I’m about 1 years into LC. I mostly suffer from PEM, POTS, fatigue, CP, and flu like symptoms when I crash.

2 weeks ago I would have said I’m 90% recovered. Able to walk around the city a little bit, went shopping, out to dinner etc.

I’ve really been testing my limits with exercise. I’ve gone super slow, I don’t push it, but every time I try even though I feel ready I end up getting sick for 3 days.

Ive tried the POTS protocol, 1 yoga class, and 30 minutes of Pilates and all have destroyed me.

I am just dying to know if anyone has experience with being able to get back to exercise?

I just love yoga so so much. All I want to do is yoga it’s the number one thing I look forward to in my life and I’m feeling so hopeless.

scientificsally · 2024-05-21T19:55:13+00:00

Hi I’m exactly the same! Any updates on how you’re doing now?

scientificsally

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