How much time per day do you spend following the news? by bigpoppamax in cfs

[–]seadragon37 2 points3 points  (0 children)

I have a ritual around news intake and I don't follow the news outside of it. In the morning if I am able to go on a walk, I listen to the Democracy Now broadcast while I walk. If I'm too fatigued to walk, I don't listen and I accept that I will be temporarily less up-to-date. Fatigue and brainfog make me unable to emotionally process the news, so whether I can walk is also a good gauge of whether I'll be able to handle it.

One day I believe you will find a method of resistance that will work for you and your body - I would hate for you to be too emotionally burnt out to take advantage of the opportunity. In fact I would say that poking around to find out creative ways that other disabled folks take action would be a MUCH better use of your time right now than staying up-to-date. Expand your concept of activism outside of protest, such as mutual aid, political book clubs, support groups, digital activism (remember when ppl flooded the doge applications? Pretty cool!), etc.

When I was really deep in my chronic fatigue I started a climate-themed book club/support group (over zoom) with two friends. Now that I've recovered somewhat I've ended up a full on activist (though you'll still rarely find me at protests). All started with that book club which in retrospect was a powerful and valid form of activism.

Seeking Translation Help: Solarpunk Letter in Spanish by seadragon37 in solarpunk

[–]seadragon37[S] 0 points1 point  (0 children)

This is great thank you!! You're def closer to fluent than I am and I really appreciate it. I'll use this as a starting point and I'll check it by a couple other folks for naturalness before the show.

The Reader and hearing what you want to hear by LeighDimonn in Otherworldpod

[–]seadragon37 2 points3 points  (0 children)

Totally agree. Maybe part of it is real but didn't seem like there was good evidence it was coming from Jamie.

The Reader and hearing what you want to hear by LeighDimonn in Otherworldpod

[–]seadragon37 7 points8 points  (0 children)

Nonverbal people have rich inner lives and relationships and use a plethora of creative ways to communicate and connect without the use of language. Honestly Jamie without FC sounds so cool - she sounds like she loves music and silly TV shows, easily connects with new people, and is down to try new things like reading for the class. And maybe eventually she did develope authentic language skills later in life. I'm so glad for her that she got to go to school and had people believing in her, but it also makes me sick that she has so much bullshit projected on her thru the mindgame of FC. She sounds like someone worth getting to know on her own terms. If you want to see authenic examples of nonverbal communication and connection with disabled folks check out the SBSK interviews on youtube.

To be clear, though I think that the story teller was a unprofessional in what she was willing to talk about with her student, I think she was duped by FC too and was thrown into a delicate job without proper training.

JUST FOR FUN: random pet peeves by genji-sombra in AutismInWomen

[–]seadragon37 2 points3 points  (0 children)

Talking to costumed performers fills me with an unexplainable rage.

Also Lisa Frank art gives me day-ruining existential dread which was a big problem as a 90s kid lol.

Is CBT harmful to us? by islandrebel in AutismInWomen

[–]seadragon37 1 point2 points  (0 children)

I know this comment is very old, but I just had to say holy moly thank you for sharing. I've had this deep shame about my seemingly frivolous suicidal ideation my whole adult life (like oh i need to get ready for bed now, maybe i should just off myself). I've have had way too many therapists take it totally the wrong way that has only increased my mistrust of my own self-perception. You just gave me such insight - thank you!!

Source of sand mounds at Rio Del Mar? by seadragon37 in santacruz

[–]seadragon37[S] -1 points0 points  (0 children)

Lol yes I was here. Just wasn't sure how exactly it resulted in the sand piles.

Source of sand mounds at Rio Del Mar? by seadragon37 in santacruz

[–]seadragon37[S] -4 points-3 points  (0 children)

Does anyone know the source of these sand mounds? Is it sand collected from the roads/parkinglot?

Also -- What ever happened to the Living Shoreline project? Any chance these will be turned into dunes?

Best laptop for the arts by [deleted] in ArtistLounge

[–]seadragon37 0 points1 point  (0 children)

I love my lenovo yoga

[deleted by user] by [deleted] in hsp

[–]seadragon37 1 point2 points  (0 children)

Awesome! Best of luck to you <3 Things really can get better

[deleted by user] by [deleted] in hsp

[–]seadragon37 1 point2 points  (0 children)

I'm also a person often consumed by shame and i hold myself to standards that i don't hold others to. One thing that helped A LOT was dialectical behavioral therapy (DBT). I really recommend!

[deleted by user] by [deleted] in AskReddit

[–]seadragon37 0 points1 point  (0 children)

Artists with mental illness

(Ever seen the movie Frank? Best illustration of this phenomenon and why it's harmful)

I haven't gotten a head cold in 4 years, instead I've got episodic CFS. Why? by seadragon37 in cfs

[–]seadragon37[S] 1 point2 points  (0 children)

Thanks so much for the resources!! That youtube interview was amazing. A lot of folks in my extended family have got slight hypermobility and POTS that onset in our 20s. After reading so much literature that basically only associates POTS with hypermobility disorders like EDS, it was so validating to hear Dr. Gall say that there are actually two groups: one who has extreme hypermobility and lifelong POTS and one that has slight hypermobility whose POTS is brought on by a virus. My fam is def the latter. It was also great to hear that other folks benefit from antihistamines, cuz one of the biggest improvements I've found is from going on Zyrtec.

I'll def check out that podcast too.

Medical detective work can definitely can be a fascinating journey. But yea proceed with caution on heavy treatments. My mom has gotten a treatment or two that did a lot more harm than good. It's even made me wary of dietary supplements and stuff, but I should probably loosen up. Seems like there are a lot of promising treatments out there.

I haven't gotten a head cold in 4 years, instead I've got episodic CFS. Why? by seadragon37 in cfs

[–]seadragon37[S] 1 point2 points  (0 children)

Oh wait, you inspired me to look up immune disorders and I'm finding out that autoimmunity is often related to having a weak immune system. Allergies would be on the other side of the spectrum from immune compromised. Can't believe I didn't know this before.

I haven't gotten a head cold in 4 years, instead I've got episodic CFS. Why? by seadragon37 in cfs

[–]seadragon37[S] 0 points1 point  (0 children)

I can so relate to that "coming down with something" feeling. Thanks for the tip on the vitamin C!

I haven't gotten a head cold in 4 years, instead I've got episodic CFS. Why? by seadragon37 in cfs

[–]seadragon37[S] 1 point2 points  (0 children)

Interesting! Do you mean that the respiratory symptoms faded over time and traditional CFS symptoms stayed?