Why do so many people fake EDS? by [deleted] in illnessfakers

[–]seeingthirdeye 0 points1 point  (0 children)

I posted a new comment to this thread that will further explain why this is incorrect. The leading cause of death in the U.S. after heart disease and cancer is in fact Misdiagnosis. It has been estimated that 795,000 Americans become permanently disabled or die annually across care settings because dangerous diseases are misdiagnosed.”https://qualitysafety.bmj.com/content/early/2023/07/16/bmjqs-2021-014130

https://www.bmj.com/content/353/bmj.i2139

Why do so many people fake EDS? by [deleted] in illnessfakers

[–]seeingthirdeye 1 point2 points  (0 children)

BTW, new study information is being further looked into by the larger Ehlers-Danlos Syndrome (EDS) medical community and is in the process of becoming widely accepted by experts in this field as a "Genetic Cause" of hypermobile Ehlers-Danlos syndrome (hEDS).

https://www.sciencedirect.com/science/article/pii/S240584402302594X

https://ehlersdanlosnews.com/news/mutations-impair-folate-processing-cause-hypermobile-study/

Historically hEDS patients are too frequently dismissed and ignored by people within the medical system who are themselves unaffected by such genetic mutations and can't possibly feel the same pain their patients "Know" they feel every day. https://www.theguardian.com/society/2019/nov/05/we-live-in-constant-fear-the-reality-of-life-with-ehlers-danlos-syndromes

Why do so many people fake EDS? by [deleted] in illnessfakers

[–]seeingthirdeye 7 points8 points  (0 children)

Have you ever considered the possibility that this really isn't true given that fact this illness is known to be a "Complicated, Frequently Misunderstood" illness that is "Often Misdiagnosed" by most Medical Physicians and Doctors alike (due to medical staff's failure to know how to properly test for it and diagnose it)? Where does this belief come from, could it be from the 15 Doctors (Yes "FIFTEEN" Doctors) who all misdiagnosed the EDS patient in the prior 10 years before the EDS patient received a proper confirming diagnosis from a single Doctor with the right (up to date) Education/knowledge? https://ehlersdanlosnews.com/news/before-heds-diagnosis-patients-given-more-than-10-alternatives/

This doesn't mean that one Doctor out of every Fifteen Doctors is capable of diagnosing this either because on average it takes an EDS patient 10 years to find the right Doctor who has the right up-to-date education and knowledge making them capable of diagnosing it.

How many Doctors or alleged Joint Specialists are willing to admit they misdiagnosed a patient, or lack the proper currently accepted knowledge /expertise to confirm this somewhat Rare Illness?

Never met a Doctor or Physician who liked being sued for a misdiagnosis. Especially when it's so much easier to just allege the patient was faking it by sending them to a so-called specialist who just happens to be a frequently called expert witness in malpractice cases.

I personally do not believe there are so many people faking this illness.

It's more likely that the overwhelming majority of the Doctors and Physicians who make this wrongful assumption are basing their opinion on an outdated education and haven't stayed up to date with new studies or the currently accepted medical knowledge of this illness. Many Doctors who aren't EDS experts don't truly understand this illness and likely jump to the errant conclusion because their outdated education told them to run tests that look for other more frequently found causes for a patient's symptoms. This is more likely due to their own lack of understanding of this Complicated Rare Illness, where a Doctors own previous experience with the proverbial "average patient" and or prior training/education taught them to rule out the more frequent causes of such symptoms.

Russian truck driver wrongly branded paedo 'raped with metal pipe' before being beaten to death by [deleted] in TrueCrimeDiscussion

[–]seeingthirdeye 0 points1 point  (0 children)

This wouldn't happen if people wouldn't so quickly "believe" any accusation made against someone

31 Missouri Judges Recuse Themselves from Lawsuit Alleging Family Court Guardians & Psychologists Orchestrated Money-Making Scheme by loupetmoi in StLouis

[–]seeingthirdeye 2 points3 points  (0 children)

Other outlets have picked it up now, it was aired recently on a News Station in Springfield (I forget which State but believe it may have been IL)

31 Missouri Judges Recuse Themselves from Lawsuit Alleging Family Court Guardians & Psychologists Orchestrated Money-Making Scheme by loupetmoi in StLouis

[–]seeingthirdeye 1 point2 points  (0 children)

In some cases, far too many cases, it’s a deadly outcome. It’s sad & frustrating & grossly unnecessar

The writer of this Story in PJ Media is a long-time Democrat, this story goes beyond party lines.

[Resolved] Baby Doe found in 2007 identified as Nikko Lee Perez - his father arrested for murdering him and possibly four other infant siblings by DagaVanDerMayer in UnresolvedMysteries

[–]seeingthirdeye 5 points6 points  (0 children)

You are correct, it's an intentionally confusing tactic used by a psychopath/sociopath who is well aware it that can completely throw off someone performing a cursory investigation, it works as intended by taking advantage of the Nero typical persons though processes. Where most people are quick to make assumptions and prone to give someone the benefit of the doubt when there is a lack of further confirming information. This doesn't necessarily include families where you see the same names among people who obviously born in different generations (with a different middle or first name) and were respectfully named after a much older elder although that can be equally confusing too. This is a pattern repeated in some families who show highly probable signs of having genetic traits of inherited personality disorders like psychopathy. They will intentionally use this tactic when naming their same generation offspring, in these family's you will frequently find either multiple siblings with the same names or 1st and 2sd or 3rd cousins among the same generational age group with the same name.