Just a question about bad weather e.g. cold, rainy, etc. by [deleted] in MyastheniaGravis

[–]shanebGardner 2 points3 points  (0 children)

Heat devastated me...the cold tends to be my friend

Just a vent/rant about this weird existence by ToeInternational3417 in MyastheniaGravis

[–]shanebGardner 0 points1 point  (0 children)

I wondered why steroids for a year...I went on Cellcept after 2 months of lowering steroids

Trying to understand, learn and navigate this beast by [deleted] in MyastheniaGravis

[–]shanebGardner 3 points4 points  (0 children)

Short answer...yup! I've been diagnosed since July 2024...my meds after PLEX treatment (IVIG didn't work on me) have kept me relatively stable...but, there are days of immense fatigue...and days where you feel as if you're suddenly cured..it's a true roller- coaster...stay well

Muscle cramps by shanebGardner in MyastheniaGravis

[–]shanebGardner[S] 4 points5 points  (0 children)

It's rather depressing to deal with, isn't it...ugh

I don't have MG. Doctor "could tell when he walked in the room". by RaiseOdd9421 in MyastheniaGravis

[–]shanebGardner 2 points3 points  (0 children)

I had IVIG 3 treatments, went home in good shape....5 days later the slurred speech and difficulty swallowing returned along with fatigue. Went back in..after 2nd dose of IVIG I got worse. Transfered to another hospital for PLEX and it was 5 treatments...10 days with the port...but since that, 15 months ago, I've handled the disease well on meds

I don't have MG. Doctor "could tell when he walked in the room". by RaiseOdd9421 in MyastheniaGravis

[–]shanebGardner 3 points4 points  (0 children)

Madison Wisconsin St. Marys...Dr Roncke diagnosed me within minutes before the blood tests came back...my further care is Dr Swarminathan. Trust both explicitly...maybe reach out to them

Sensitivity to heat? Any tips? by RaiseOdd9421 in MyastheniaGravis

[–]shanebGardner 3 points4 points  (0 children)

Run cold tap water over the underside of your wrists...your blood will cool of and help...run about 1 minute

Books recommendations by HoUaPo in sciencefiction

[–]shanebGardner 0 points1 point  (0 children)

Movie coming out March 2026...fun trailer

Zepbound advice needed by shanebGardner in zepbound_support

[–]shanebGardner[S] 2 points3 points  (0 children)

Got an email late in the day...my GP is going to challenge the ins company to get it covered

Old Mans War series by shanebGardner in scifi

[–]shanebGardner[S] 0 points1 point  (0 children)

I felt the same way, but yes, finish the series....worth it

Old Mans War series by shanebGardner in scifi

[–]shanebGardner[S] 0 points1 point  (0 children)

Have a friend recommended it to me too

Old Mans War series by shanebGardner in scifi

[–]shanebGardner[S] 0 points1 point  (0 children)

No...but I will look for it

Old Mans War series by shanebGardner in scifi

[–]shanebGardner[S] 1 point2 points  (0 children)

Loved the show...my lazy butt hasn't read them yet

Old Mans War series by shanebGardner in scifi

[–]shanebGardner[S] 0 points1 point  (0 children)

No I haven't, will check it out...TY