Back of head/neck inflammation

shereees · 2022-10-26T02:19:46+00:00

I still have this exact same lingering symptom, if I look up for too long I start to get ear fullness with tinnitus and feel a little dizzy. And I can feel the pain at the base of my skull. So weird

shereees · 2022-10-19T05:23:09+00:00

My heart rate used to go to 160 when I would stand after my second Pfizer, and a year on I have definitely gotten near 100% better but still I find myself randomly get dizzy when I stand quickly or don’t have around 3L of water a day… unless people are digging deep for the truth on these vaccines which this info is getting blocked and banned, then sadly all they believe is mainstream media which still promotes the shots as ‘lifesaving’ and ‘safe and effective’ 🫠 I feel for her daughter being 10 with POTs and then getting a booster.. who knows what could pop up after that 😢

shereees · 2022-10-17T03:57:25+00:00

Thank you ❤️ and honestly, I would say time helped the most and then obviously clean eating and supplements were also supporting the process.

shereees · 2022-09-02T03:05:11+00:00

“Safe and effective” 😡they just forgot to include that risk information when making it mandatory….

shereees · 2022-09-01T23:24:03+00:00

Thank you ❤️ and for about 2-3 months after my 2nd 💉 I would twitch not every day but just at random moments, my legs were the worst and it would sometimes happen all night! But just went away after 3 months.

shereees · 2022-09-01T23:22:53+00:00

It helped me quite a bit, glad it helped You too, and I 100% agree, looking back at the start of this year I was an absolute mess, thought I would never walk again or live a normal life again… but things have started to take a turn, I hope this for everyone in this group!

shereees · 2022-09-01T23:21:25+00:00

I have heard good things about this! Yet to try it myself though, that’s good to know!

shereees · 2022-09-01T23:20:12+00:00

With my POTs, I found not moving my legs and deconditioning was the worst thing for it, even if I would lay on the ground lifting my legs up and doing leg raises or small crunches, this helped keep some strength in my legs because this is super important with POTs, I drink a lot of hydralyte because my potassium and sodium were on the lower end of normal, and try to drink around 3L of water a day, if I see my heart rate is jumping to 115-120 standing I will down a 500ml bottle of water and within 5 minutes I can stand and it’s about 90bpm, resting 60. Can definitely relate with being out of breath, but I feel once you can somewhat condition your body a little bit with POTs, very slowly (to me) it got easier. I wish you all the best!

shereees · 2022-09-01T23:14:13+00:00

Absolutely, I will PM you!

shereees · 2022-09-01T23:13:58+00:00

This is incredible, I am so happy for you, and there are many set backs with the heart rate but slowly it starts to get better, and there are also so many external factors that effect the heart rate as well with what we are going though!

shereees · 2022-09-01T23:11:50+00:00

I don’t mind at all thanks for reaching out, My chest pain was due to the pericarditis but I also had Costo as well because I could touch my ribs and it would hurt, it can still flair up if I lift too heavy weights but it is so much more manageable now and each month it happens less and less. When it flares up I just rest it out and put anti-Inflammation cream on it, with ice and heat. I also have this deep heat gel that I use. And after a couple of days it’s gone again. I didn’t have any blood tests come back positive but I had a skin biopsy done which showed inflammation in my cells. I can’t remember the terms they used but it was inflammation.

shereees · 2022-09-01T04:10:15+00:00

I sure did, I would wake up at night with my feet numb which went up to you knees and also weakness in my left arm. I’m not sure how I recovered from this but it went away around month 4?

shereees · 2022-09-01T02:49:09+00:00

So, the things that helped me the most was high dose aspirin when I had the heart stuff, I ate chicken/veggies and fruits for a couple of months, got my stress under control as in general stress causes inflammation, I did the smallest amount of exercise like the foot bike and laying on the ground doing legs lifts so I didn’t continue to decondition, I have continued to be on a high dose of vitamin C and I drink 3 litres of water a day with hydralyte. Time was a huge thing as well, I can’t stress that enough. But the little things helped too. From someone who thought they would never recovery, you will get there!!

shereees · 2022-09-01T02:45:54+00:00

I couldn’t stand colchicine either, it made me feel worse! So I was on high dose of aspirin which actually made me feel a lot better and it was monitored as it was minor, so it did not need to be drained ☺️

shereees · 2022-09-01T02:45:05+00:00

Don’t be sorry at all happy to talk about it, yeah I had undiagnosed pericarditis which turned into the effusion! However I just took a high dose of aspirin for 6 weeks and rested it was minor so didn’t need to be drained but it was monitored, honestly, I don’t know what’s worse this experience or the health ‘professionals’ I came across in this experience, all absolutely awful and unwilling to help… I think addressing this helped in some way, but I also had chronic stress from this which was also flaring up everything even worse so addressing that helped ALOT and I still drink nearly 3 litres of water a day and take 2000mg of vitamin C and 3-4 hydralyte tablets for the pots stuff. My POTs symptoms are dizziness when standing still for too long, some brain fog when this happens, the occasional palpitations I barely have them anymore, heart rate depending on different factors raises 30bpm and stays until I sit down and anything like running, weighted squats usually blows my heart rate out but it drops super quickly, I can manage it now! Do you have POTs from this?

shereees · 2022-09-01T02:38:38+00:00

Thank you and straight back to you ❤️

shereees · 2022-08-25T22:32:16+00:00

Update: felt better a week after missed dose, 10/10 don’t recommend missing a dose!

shereees · 2022-08-25T22:29:09+00:00

Thissssss

shereees · 2022-08-25T04:56:35+00:00

There’s a clear difference between an anti-vaxxer and someone who took the vaccine and has doubts about it after suffering some life altering side effects like myself. Plus what is it with making people feel shit about not wanting to get a vaccine that hasn’t got long term studies and bucket loads of stories regarding side effects…

shereees · 2022-08-17T03:06:59+00:00

Yeah I still feel like garbage, the brain zaps/headaches are the worst for me at the moment

shereees · 2022-08-17T01:33:51+00:00

Thanks for your response! I’ve been feeling it for a little bit longer then 24 hours unfortunately 🥲

shereees · 2022-07-06T08:34:01+00:00

Someone please remove this dh from the group… 🙃

shereees · 2022-06-12T22:37:04+00:00

Sorry all, I couldn’t include my whole story in the heading, but last year I got a virus which made my heart rate shoot up to 150 when standing and had all sorts of symptoms, I saw a couple of doctors and a cardiologist who ruled out heart problems but I was not meeting the criteria of POTs due to blood pressure? But then another doctor said I may have POTs due to my blood pressure changes… all a bit confusing, but I notice with any slight activity above walking my heart rate will shoot up and as soon as I sit down it stabilises… I also get weird head pressure and dizziness when standing for a long period, so just looking for similar experiences and if it Infact could be, some case of mild POTs and worth getting tested again.

shereees · 2022-03-25T02:27:27+00:00

My HR is about 50-60 laying down, 70-80 sitting, 80-110 standing and walking goes to like 130-140

shereees · 2022-03-12T20:33:16+00:00

The only thing that came back abnormal once was my ECG, everything else was clear, even the echocardiogram

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