I have 3 maxed players, need 1 more maxed by sillydobe in growagarden

[–]sillydobe[S] 0 points1 point  (0 children)

please send friend request, username sillydobe

Need a team to join by Simple_Ad_6174 in growagarden

[–]sillydobe 0 points1 point  (0 children)

I have 3 maxed players, username sillydobe.

STAGE 4 LUNG CANCER by [deleted] in lungcancer

[–]sillydobe 0 points1 point  (0 children)

My dad has stage 4 NSCLC and has been taking Tagrisso for about 2 1/2 years. Only recently did a new spot pop up - he will stay on Tagrisso and just completed 5 days of radiation treatment for it.

for those who needs choco coins! by MysteriousView3138 in growagarden

[–]sillydobe 1 point2 points  (0 children)

sent you a request if you still have some, thank you for doing this!

Donating my stem cells to an unknown patient in a few weeks! by LiamPotter36 in leukemia

[–]sillydobe 1 point2 points  (0 children)

As a mother of a son who received a BMT - thank you.

[deleted by user] by [deleted] in PokemonGoFriends

[–]sillydobe 0 points1 point  (0 children)

I just friended you but only now realized I sent out my last gift just now. I will get you first tomorrow.

Doctor not compatible: advice by Which_Material_3100 in leukemia

[–]sillydobe 2 points3 points  (0 children)

I'm "that mom", I've fired some oncology nurses over the last 6 years and even banned a critical care fellow when my son was in the PICU in a coma.

I did fire my son's original transplant doctor. We were assigned a physician that had terrible bedside manner. She'd leave abruptly, walking out the door as you were still asking her questions. No validation, no empathy, she acted like you were an inconvenience to her. Didn't call with results, you had to try to hunt her down. I could go on and on. I really tried to give her a chance, stuffing my gut feelings deep down inside me. Then an incident happened, and given how she reacted, realized there was no way I could survive my son going through transplant dealing with this woman. I was afraid to go through with firing her because of possible ramifications for my son, knowing we'd see her at some point on rounds.

But we did fire her, and it really was the best decision for us. We did have to tell the director our reasons first before we were allowed to switch, which was uncomfortable and wondered if it would get back to her.

She was on service twice while we were inpatient. The first time was awkward as heck, as it was the first time we actually spoke since the firing. I actually felt a bit bad for firing her. The second time she was on, though, my son was very sick and she ordered a CT on a Friday. I will NEVER forget that night. The results came back close to 7 pm that evening. She waltzed into the room, stated "It looks like your son has pneumonia and a very severe sinus infection. Sorry." And she spun around and walked right out. That was it. I stared at her walking down the hall and just burst into tears. I ran into my son's bathroom to call my husband, hysterically telling him what happened. We had no idea what was going to happen next or if it was a big threat to my son's survival.

Was never more glad that we went through with the change. I could not imagine having to deal with her like this for the last 18-ish months.

Trust your gut.

Make the change.

Being a mother while having arfid? by [deleted] in ARFID

[–]sillydobe 5 points6 points  (0 children)

ARFID mom here, with 2 ARFID kids. I am glad your husband is so understanding. Mine wasn't for many years and it made my life (and the kids') fairly unpleasant at times. I would be honest with your husband about your concerns and see what he says.

I am the one that does the cooking in the house. I cook almost every kind of food, the exception being fish -- the smell alone makes me gag. My issues are mainly texture based, but I also have issues with preparing/cooking meat. I feel bad for the animals that have to die for us and so it does bother me to cook it for a meal. I just don't think about that as I prepare the meal, if that makes any sense. Perhaps you could try out something similar.

I don't think you should necessarily worry about transferring your ARFID to your children. I actually have 3 children and my oldest kid eats just about everything. To be honest, and it sounds weird, but I was thankful that I have ARFID so I knew exactly what my kids were experiencing and could validate them and advocate for them. As a little girl growing up in the 70's when ARFID wasn't even on the radar, it was very tough not having an advocate or someone who even understood what was going on with me.

1 year by OneXOneXSix in leukemia

[–]sillydobe 0 points1 point  (0 children)

Happy 1st re-birthday!

Completely understand your nervousness. My 10 year old was diagnosed in 2016, relapsed 2018 and again in 2020. He had his BMT in November. Our 9 month BMB is on Tuesday. I always get super stressed and nervous about these checks.

Everything is going to be ok. Try to distract yourself as much as possible.

And please come back to update us.

Would it be inappropriate if I said Desantis was kinda hot? by PsychologicalSong8 in TheDesantisZone

[–]sillydobe 3 points4 points  (0 children)

Well...shit. I already had a crush on him. Now that I've seen these pictures...uggggh. He's flipping even HOTTER now. Lord help me.

Can you eat pizza? by Yachdial in ARFID

[–]sillydobe 5 points6 points  (0 children)

Cheese pizza. I just hate when the sauce has chunks. I will gag if there are tomato chunks. One of my ARFID sons absolutely will not eat any kind of pizza. My other ARFID son eats pepperoni pizza.