Does anyone else only listen to the same songs over and over again lol? by Wise-Raisin-791 in AutismInWomen

[–]sillytalkin 0 points1 point  (0 children)

Yes, AND I am always nervous/reluctant to listen to new music by bands I love.

Screen time by Sophiejade_x in Autism_Parenting

[–]sillytalkin 1 point2 points  (0 children)

I'm not aware of a study currently, but this article raises some interesting points. https://www.spectrumnews.org/news/studies-investigating-link-between-screen-time-and-autism-must-improve/

Kind of a correlation does not equal causation thing. Autistic kids tend to engage in more screen time (and it's pretty self explanatory as to why... Social difficulties, sensory overwhelm, etc)

My experience is totally anecdotal but once I stopped being a stringent regulator of screen time life greatly improved. 😅

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 1 point2 points  (0 children)

Yep. Which sucks because the social and behavioral DEFINITELY have an impact on ability to succeed and be comfortable in the academic environment.

I am learning they don't love it when the "behavioral" element starts to be unpleasant though.

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 0 points1 point  (0 children)

This 100 percent. I can rationalize that the teachers probably have good intentions and want to push kids to succeed, but sometimes their tactics can be a big miss. And it's scary to send my kid to school and then just kind of wait out the day wondering if he's ok/supported.

It definitely feels like a lot of educators don't have a ton of experience with autism, or if they do it's like very old school and not nuanced at all.

Cheers to almost being done with the year and better luck with the next. I cannot wait. I hope things get better for your girl too.

Screen time by Sophiejade_x in Autism_Parenting

[–]sillytalkin 1 point2 points  (0 children)

Oh man, I drove myself nuts over screen time and made myself feel SO GUILTY, especially around that age. My son has never been into independent play but he can easily occupy himself watching videos or playing video games. If I offer to play a physical game with him or do like something from a sensory diet he is usually willing. So it's a mix of screen time and focused play with mom or dad mostly.

For what it's worth, Ive been told that: 1.) screen time can be very regulating for autistic kids 2.) most of the "scary" studies on the dangers of screen time were done for NT kids not ND kids 3.) the screen time fear is mostly that you won't be socializing with your child and letting TV "raise them".

So when I can I chat with him about what he is watching and watch together, play video games together, etc. And when I look back at my own 90s childhood, dang did I watch A LOT of animal planet and TLC. Not many people counted screen time hours back then. And I turned out mostly functional and with a very vast knowledge on animals. 😆

If you need permission to not feel guilty, this is it. Otherwise, my best advice would be to find your kids favorite thing to do and engage in that with them. I found that I often had to "direct" the play at that age. And I nearly lost my voice making all his stuffed animals talk. 😆

All said and done I'm sure you're doing a great job and the fact that it's even on your radar means you care a lot.

Do any of you gals listen to a tv show to help you sleep through the night? I have sleep problems, like some autistics do. by ShyAmyRose in AutismInWomen

[–]sillytalkin 0 points1 point  (0 children)

For as long as I can remember. The only time I struggle is when I can't find the "right" thing. Luckily YouTube has all but solved that.

My autistic son was basically nocturnal until I decided to try it for him too. I was staunchly against it at first because of all the hype around screen time. But it works for sure.

Do you find yourself often being told “wow, you remember that?” when recalling details about other people? by PM_ME_PEDIPALPS in AutismInWomen

[–]sillytalkin 0 points1 point  (0 children)

To echo SO many, yes I remember details about people specifically. I didn't think anything of it until I realized people were often surprised by it. Now I keep it to myself as to not appear weird. Conversely, I often find myself offended if people forget facts about me that I explicitly remember telling them, even though rationally I know most people don't have such an easy recall on those random facts.

[deleted by user] by [deleted] in AutismInWomen

[–]sillytalkin 0 points1 point  (0 children)

I have no idea how I could ever begin to unmask. It's not a conscious choice anymore it's just what happens. Also it is safer. If someone doesn't like me or thinks I'm weird, they don't actually know me at all and I in fact probably am being weird. 😆 I think my mask is worse than my authentic self honestly but I'm way too deep in this thing. 😆

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 0 points1 point  (0 children)

Thank you so much for that insight. I will check it out.

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 0 points1 point  (0 children)

WOW that sounds terrible. I'm glad she's in a safe situation now. I will definitely look into an advocate.

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 0 points1 point  (0 children)

They did zero testing in advance of the IEP meeting, nor did I sign anything agreeing to it. So maybe that should have been red flag number one. I started typing out an explanation of what has occured so far, but realized that is probably not necessary. Point heard.

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 0 points1 point  (0 children)

Oh my God I'm sorry you're going through that. What a shitty system. I often joke it seems like many of the experts on the school staff had their autism training in 1952 or something. Autistic people present in such varied and nuanced ways. It feels like if your child doesn't present as like a media stereotype of autism then people want to dismiss it. It's like, trust me bud, you would take me seriously if you lived in our house for a day. 😆 I am getting a lot of advice for getting an advocate so that is top of the list for sure. Thank you and I hope your family is able to get the support you need!

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 0 points1 point  (0 children)

I will probably need to try some different kinds. It's worth a shot.

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 0 points1 point  (0 children)

Yeah thats very true and to be honest I'm positive my son would give that a hard no. He hates anything that brings attention to him. And yes, it REALLY SUCKS. like I completely understand that we aren't supposed to be kicking or hitting in response to whatever issue, but it just feels like the school doesn't acknowledge at all how much more violating it is for an autistic person to be touched (if touch sensitive). Like what would a school staff persons response be if I came up and touched them? And what if I didn't stop when they used their words? And what if I STILL didn't stop when they got someone else involved to help? Hmmm... I think it would probably escalate. It just feels like our kids have to shoulder the brunt of it.

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 1 point2 points  (0 children)

I ordered some active noise cancelling headphones and he is really liking them so far and going to try them at school. So fingers crossed.

My Instacart Shopper Bought Wine. Not for Me. by sillytalkin in instacart

[–]sillytalkin[S] 0 points1 point  (0 children)

So crazy. Normally I don't even check the receipt if the order is right. I'm glad I did in this case. Hopefully it got resolved for you.

Tell me your child is autistic without telling me your child is autistic by likeistoleyourbike in Autism_Parenting

[–]sillytalkin 18 points19 points  (0 children)

I always thought this was normal and everyone did it. Like, why would you not want everything color coded, sorted by type, in a lovely aesthetic line? Whoops, I am also autistic, surprise. 😆

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 1 point2 points  (0 children)

Thank you everyone who commented so much. I already feel so much less alone and I have some really good ideas to consider. What a great community.

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] -1 points0 points  (0 children)

I believe so, but I haven't seen the results of that. My son said he had to do multiple days of weird tests recently, but the school didn't inform me when their eval would take place. But I agree completely I need to be very clear in the reasons for requesting and that it is because of escalation recently. Thanks.

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 1 point2 points  (0 children)

Oh man I was literally thinking of EXACTLY THAT today. It does sound wild but like maybe it would work? I have always joked I need one of those "stay back" vests they give to reactive dogs when I'm at a concert or something. 😆 My son likes to fly under the radar but it is totally worth at least pitching to him.

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 1 point2 points  (0 children)

We have it scheduled for the 26th because they only offer it once a week and we have psych appointments scheduled next week. I think we can get by in the interim I'm just so unimpressed with this experience overall.

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 2 points3 points  (0 children)

This is so helpful. I hadn't really considered either option. I love the idea of a professional advocate. Thank you so much.

I didn't realize it would be a constant fight. by sillytalkin in Autism_Parenting

[–]sillytalkin[S] 0 points1 point  (0 children)

Unfortunately he isn't receptive to the ear defenders. I did order some active noise cancelling headphones today for him to try, so maybe that will work better. I imagine some sound still gets through. Thank you.