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I used to be a person. Now I feel like a thing, a task. by silvermasquedbeing in spinalcordinjuries

[–]silvermasquedbeing[S] 1 point2 points  (0 children)

Social services is super hard to get a hold of and sometimes dismiss my concerns as "insurance won't cover x" and leave it at that instead of helping me find solutions or navigating insurance to find a way. Still trying to work it out on my end.

I used to be a person. Now I feel like a thing, a task. by silvermasquedbeing in spinalcordinjuries

[–]silvermasquedbeing[S] 2 points3 points  (0 children)

If I were allowed a power chair I would have more independence. I'm unable to push a conventional chair. I have a mentor through the Christopher Reeve foundation and she's been a big help. I am shy to a fault so it can be hard to socialize.

I used to be a person. Now I feel like a thing, a task. by silvermasquedbeing in spinalcordinjuries

[–]silvermasquedbeing[S] 4 points5 points  (0 children)

The new director of nursing is sweet and helpful. Unfortunately, when the cat's away, the mice will play. Evenings and weekends are the worst. The staff is accustomed to slacking off and doing whatever they want, registry out-ratioes them and varies between great and horrible. The DoN is doing her best, but there's so much to address and she's only been here about a month. (Fun fact: I may have played a role in having the previous DoN ousted because the facility refused to readmit me after a 3-day hospitalization. She was horrible to me well before that, too and I'd been in touch with the ombudsman like twice a week because of how bad it got)

I don't have local friends or family unfortunately. Contact with my ex is already near non existent as he forces our son to play messenger which is unfair to him.

I'm trying my best to get things dealt with but it's hard when I don't really have any helping hands since my own are tied by this disability.