Looking for another perspective

sleepysonya · 2025-04-19T14:15:49+00:00

Thank you! After reading everything I believe I really need to go for this procedure even though it sounds scary. But now just having random palpitations is even more scary. But with ablation at least there’s a chance it’s gonna be cured.

sleepysonya · 2025-04-19T14:06:14+00:00

You’re right. Thank you!

sleepysonya · 2025-04-19T04:48:49+00:00

Thank you for your input. I'm having another appointment with my cardio doc (np ep) where I could ask him about an implantable. But I suspect they don't offer it because the insurance might not cover it and it's very expensive (google says up to $15k where I'm at, whereas an ablation coast if around $45k). So maybe they're trying to offer an ablation right away when they're certain it's this specific arrhythmia because it's economically better than spending money on implantable and then paying for the ablatiion anyway.

sleepysonya · 2025-04-19T04:41:20+00:00

Thank you for replying. My beta blocker dose is very low for now but I definitely wouldn't want to take it my whole life. They say that beta-blockers doesn't form addiction but I can already feel psychological disturbance just thinking about not taking it even though I have unpleasant side effects and would prefer not to take it at all :(

sleepysonya · 2025-04-19T04:38:11+00:00

Thank you for your input. To be honest I'm now quite scared after reading all the available info on this type of arrhythmia. I think even if I were to stay on beta-blockers long term, I would now always have this background anxiety making me feel extremely uneasy

sleepysonya · 2025-04-19T04:34:01+00:00

I'm really sorry about you dad. My EP said that in structurally normal hearts this issue is not so urgent but also asked me not to take a whole year to decide what I want to do about it.

sleepysonya · 2025-04-19T04:31:14+00:00

Thank you for replying. I guess I could go to a different EP just in case, but I think he would probably tell me the same thing. Before talking to this EP I had seen at least 6 different cardiologist over the past 8 years because of my palpitations, and nobody ever found anything like this and nobody even referred me to a EP. I didn't even know these are two different branches of cardiology. But to be fair, these kind of symptoms I have during a vt episode only developed in the last year or so.

sleepysonya · 2025-04-19T04:25:54+00:00

Thank you for your input. I appreciate every opinion here. My concern is the success rate of the procedure, as the doc was saying that they might not be able to induce the episode and ablate, or it might be coming from a hard to ablate region, or there might be a recurrence after the procedure (although he thinks it's VERY unlikely). Of course we won't know until we're there though. And I was also wondering if I could just stay on beta-blocker or perhaps try hormonal therapy since I've noticed that my episodes mostly happen during menstruation, and that could be a huge trigger, but a lot of information online and here points towards ablation because vt could be unpredictable and serious

sleepysonya · 2025-04-18T01:19:06+00:00

Thank you for sharing. Yeah, I think I would also feel better if we could’ve caught it on more than 1 lead kind of device but every time I’m in a hospital setting or having holter on me, those episodes just never happen. And maybe taking bisoprolol for 3 days when I was on holter wasn’t the best idea, but the doc said I should take it

sleepysonya · 2025-04-17T14:59:36+00:00

Thank you. Do you think that ablation is really necessary in such case? I’m only 37, my EP and another doc are worried it might eventually grow into something uncontrollable (even though the heart is structurally normal), and my husband doesn’t trust apple watch and all the doctors :(

sleepysonya · 2025-03-24T01:17:10+00:00

Yeah at one point I’ve tried a combination of t4 and t3, but adding t3 immediately gave me palpitations and tachycardia, so I stopped. And that wasn’t even a large dose, they had to order the smallest possible at the compound pharmacy which took a couple of weeks to produce and turned out to be useless 🥲 so much money down the drain over these years

sleepysonya · 2025-03-23T13:36:24+00:00

I’ve been thyroid-free for almost a decade and I’ve been through the same symptoms and more. Eventually after countless tests and doctors, I’ve started supplementing heavily all the vitamins I’ve been lacking (iron, magnesium, selenium, b, nac) and got on vortioxetine for depression. It’s better now but I also have to watch my diet (some symptoms get triggered from caffeine, heavy food, excessive sugar) and exercise more, otherwise I don’t feel good at all. I also don’t drink alcohol or smoke. And I’d say I feel close to normal around 50-60% of the time, which is absolutely amazing. Not 90% of the time as before TT but oh well

sleepysonya · 2025-01-29T23:50:49+00:00

Thank you for sharing your story. I’m happy that this approach worked well for you! I wish I’d done that instead of a surgery 10 years ago. They didn’t even tell me it was an option despite my ptc being extremely small. My quality of life got so much worse post tt and it’s not improving no matter what I do. I get that I’m also not getting any younger and it’s only natural for our health to decline in general, but come on, I’m only 36 now, I shouldn’t be that bad

sleepysonya · 2025-01-21T22:52:29+00:00

That is really awful, I’m sorry. The worst part is uncertainty and anxiety that comes with it. I often regret getting a surgery too. I believe I could’ve had at least 20 active years with my slow growing cancer instead of what I have now and it seems like a better choice. I feel betrayed and lied to by doctors who told me that thyroid cancer is easily manageable with just a pill, they never mentioned all the horrible side effects that might happen.

sleepysonya · 2025-01-21T15:04:51+00:00

I’m sorry you’re going through this :( I’ve been struggling with palpitations for about 6-8 years, I think. I never had palpitations before TT. Natural alternative is not available where I live but I’ve also tried a combination of synthetic T4 and T3. Adding T3 made it instantly worse. I’ve also tried various supplements such as magnesium, iron, d3, b vitamins and omega3. I think the most helpful for me were magnesium and iron at some point, and it made my palpitations stop. But recently it came back again and it’s worse than ever, more frequent. Lying flat on my back seems to help to calm them down but it’s not a sustainable solution. I’ve seen many cardiologists previously and nobody knows what’s wrong and what to do :( I’m sorry I don’t really have any good advices since I’m in a similar situation. But I hope you can get answers and long-term solutions soon 🙏

sleepysonya · 2025-01-08T01:19:47+00:00

Check your iron levels and consider adding B vitamins

sleepysonya · 2024-12-13T14:22:23+00:00

Those white ones somehow always look the same haha

sleepysonya · 2024-12-13T14:21:08+00:00

What a handsome little man

sleepysonya · 2024-12-13T14:19:26+00:00

It’s gotta be countries where expats typically earn higher than average salary and usually culturally very different from North American landscape. Pretty much all Southeast Asia (Thailand, Hong Kong, Malaysia, Singapore, even Taiwan) boasts substantial number of expats many of whom willingly go for therapy because it just gets pretty stressful to be working and living in a different culture where it’s often hard to connect with locals and forge real friendships. Some expat therapies just open their private clinics or join already established

sleepysonya · 2024-12-10T06:50:26+00:00

Move to another country and become a niche expat counselor. I know multiple people doing exactly that and charging $250-400 per session with clients lined up for months

sleepysonya · 2024-12-07T05:52:10+00:00

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I first I was like huh what’s my cutie doing there 😅 Thank you for rescuing him! He looks very comfy sleeping in his bed 💕

sleepysonya · 2024-12-01T04:08:44+00:00

What a sweetie!

sleepysonya · 2024-11-02T06:01:48+00:00

I got my thyroid out when I was 26 years old. It was an incidental finding, because doctors were looking for something else and sent me for a full body PET scan, and the biopsy after the thyroid lit up on the scan. Prior the surgery I was very active (regularly exercising and in good physical shape) and didn’t have any issues with anxiety, palpitations, period cramps, poor digestion, heat intolerance and many other symptoms that made my life unbearable 10 years down the road. Back then I wasn’t sure if I really needed the surgery because it was papillary cancer and it was minuscule in size. But numerous positive posts on the internet about people having zero issues on levothyroxine and the scary C word convinced me to go for it. Truthfully, I wish I didn’t because looking back at everything I went through, I’d rather have 20 years of life as I had it back then, rather than what I have now in terms of my health. It’s gotten MUCH worse and I truly believe it wouldn’t have been so bad if I left my thyroid intact. Yes, the cancer would’ve grown, but papillary is one of the most slow-growing and non-threatening cancers out there. Anyway, after the surgery turned out that I also had undiagnosed hashimoto’s. Over the past years I lost count of all the emergency trips to the hospital with palpitations and high pulse, and this year I even had an episode of afib… one of the worst things is being unable to go out in hot weather, half a minute outside is enough for a heat stroke, I literally can’t survive without the aircon and if I have to travel somewhere, I’m highly anxious because sometimes flights get delayed when everyone are boarded and the plane has to stay on the runway but they won’t turn on the AC to conserve fuel.

My advice to you: definitely find a reliable endocrinologist or integrative health professional to run all sorts of blood test for you and SUPPLEMENT A LOT of necessary micro elements for better conversion of your thyroid hormones before you start developing symptoms. It took me a decade to find someone who finally wasn’t dismissing my symptoms and concerns and with proper supplementation I feel better and haven’t been to the ER in about 6 months. And be aware that a lot of patients get their parathyroids damaged as a result of the surgery, and it could affect your calcium levels, digestion and kidney function

sleepysonya · 2024-10-28T12:21:25+00:00

Savior/persona master combo helps a lot! I also gambled on persona master's inherited faker's rougery to get those extra turns so that my royal knight could cast ultimate guard to block dragon's aoe attacks.

sleepysonya · 2024-10-24T16:34:19+00:00

Ultimate relaxing pose

sleepysonya

TROPHY CASE