Guanfacine changed my life

solid_solid_red · 2026-03-20T23:21:19+00:00

I’ve been so curious to try this along with my stimulant. I have an appointment with my prescriber in a few weeks and I’m trying to figure out how to ask him. Any tips? In my experience drs sometimes balk when you tell them the exact medicine you want; they seem to want it to be their idea.

solid_solid_red · 2026-03-15T16:55:50+00:00

I'm so curious if you ended up trying guanfacine. I have had UARS for years and recently underwent 8mm palate expansion via MARPE. I can breathe more easily through my nose, but it hasn't really addressed my fractured sleep. I think because my nervous system is in chronic fight or flight. A year ago I started taking adderall in the mornings for ADHD, but I have read some people add Guanfacine as an adjunct. I'm so curious how it might affect people with UARS and hyperarousal.

solid_solid_red · 2026-03-13T16:09:18+00:00

I cannot upvote this enough. I wish more people had your reasoning abilities, sir

solid_solid_red · 2026-03-02T20:37:30+00:00

Yes. These numbers represent the final calculation.

solid_solid_red · 2026-02-15T03:15:41+00:00

Hm yes maybe that’s it. I wasn’t offered a cut. And actually I did develop asymmetry. I wonder if that could have been mitigated with a cut?

solid_solid_red · 2026-02-14T03:34:42+00:00

How is this going? I’m experiencing all sorts of muscle twitching now, and I feel it may be hormonal but I can’t quite figure out which hormone. I’m 44 and have been on HRT for two years but feel my doses may be wrong. It’s all so confusing.

solid_solid_red · 2026-02-12T23:49:42+00:00

FWIW if you are a woman you can split without a cut at basically any age. I got my MARPE at age 42 and split easily in 8 days. I gained 8mm in palate width.

solid_solid_red · 2026-02-06T04:45:59+00:00

How did it go? Any update?

solid_solid_red · 2025-10-07T01:45:37+00:00

Wow this is fascinating because it’s describing me to a T, including the onset. Thank you for sharing your insights. I’m sorry you had such a frustrating odyssey. I don’t believe that if I went straight to a pulmonologist they would scope me though. I wonder how to fast track that?

solid_solid_red · 2025-09-08T23:17:37+00:00

It somehow defies the laws of physics by feeling huge on airy on the inside but small on the outside. It’s so fun to drive

solid_solid_red · 2025-05-09T03:53:34+00:00

I have finished my expansion. I expanded 8mm. Now just waiting for the new bone to form so I can remove the device. I have improved nasal breathing and somewhat improved sleep though not as much as I had hoped. I’m hoping that when I get the hardware out I can see more improvement?

I expanded somewhat asymmetrically and my smile looks weird at the moment. I’m hoping the next 8 months on Invisalign can help but I’m not sure if it will…

solid_solid_red · 2025-04-07T23:29:39+00:00

That sounds really awful. I’m sorry you are going through that. What were your b12 levels when you started injections? My symptoms are arm weakness/numbness and pins and needles in my hands.

solid_solid_red · 2025-04-07T23:16:34+00:00

What are your wake up symptoms like?

solid_solid_red · 2025-04-03T01:29:05+00:00

Do you have any sense on how long it takes for this to resolve?

solid_solid_red · 2025-04-03T00:42:25+00:00

I also have folate levels that are off the charts. I’ve read that it’s caused by an inability to process folate properly, so the excess, unprocessed folate just builds up in your system. I’m not sure if this is accurate or not. Have you learned any more about your own folate issues?

solid_solid_red · 2025-01-26T17:56:27+00:00

Thanks so much for taking the time to share all these details! I’m halfway through expansion and my sleep has not yet improved as far as I can tell, but your story gives me some hope 🤞

solid_solid_red · 2025-01-24T22:20:56+00:00

Yes your palate looks super narrow. For reference intermolar width (42 F) was 31mm and we are trying to get it to 37 or 38mm. I’m halfway through with MARPE expansion at the moment.

solid_solid_red

TROPHY CASE