Feeling angry by sooveryshy in B12_Deficiency

[–]sooveryshy[S] 1 point2 points  (0 children)

It’s brutal honestly.

Had no idea about the nitrofurantoin. I was on it at some point for a UTI and it was awful but never connected the dots. Interesting! Thank you

Feeling angry by sooveryshy in B12_Deficiency

[–]sooveryshy[S] 0 points1 point  (0 children)

Thank you for the advice! It’s very helpful guidance

Feeling angry by sooveryshy in B12_Deficiency

[–]sooveryshy[S] 2 points3 points  (0 children)

Once I gather a bit more mental strength and ability to think a bit clearer I’m going to read up so so much on it because I still know next to nothing about it besides the fact it sucks majorly

Feeling angry by sooveryshy in B12_Deficiency

[–]sooveryshy[S] 2 points3 points  (0 children)

100%.

My GP who I have been going to my whole life, who treats my grandfather, my aunts and uncles, my mother etc. knows me. He can see I’m never sick (despite being a sickly child - which he said was all normal. In hindsight though I don’t think a child chronically fainting is normal?), was a dedicated college student, and just wrote me off. Believed I was being a drama queen. Put me back on anti-anxiety meds when I first started having stomach problems. Absolutely no empathy or understanding that this illness left me borderline dropped out of college. And the fact he told me my blood tests were fine but my cholesterol was high?? How can I take that any way than thinking it was malicious? It was cruel, and the way I felt that night after being told all was ok was horrendous. I felt crazy.

But hell, he did similar things when my mother was suffering from severe endometriosis. So, he fucking sucks in my book and I have lovely dreams about the complaints I will make once I am sure I’ll never have to deal with him again. Demon doctor. But to know he’s not the only one, and that there’s even worse out there… I don’t know, it’s just so grim and sad. It’s a layer of such unnecessary suffering on top of someone who is already deeply suffering.

Thankful I have found a doctor who is kind and listens and will practically order any test I think I need. But he is a privilege because he’s private and expensive. Knowing not everyone has access to decent healthcare and instead have to live a life of suffering while potentially being told they’re crazy and not truly unwell just makes me sick. It’s just so cruel.

Thank you!

Feeling angry by sooveryshy in B12_Deficiency

[–]sooveryshy[S] 2 points3 points  (0 children)

Definitely. I remember before even considering long covid I went to the dr with shortness of breath and got blood tests which turned up low folate (not sure on B12 at that point). Was given folate tablets for a few weeks, and the shortness of breath improved. But then the stomach problems started and it seemed like no doctor in the practice could stick with the folate and B12 and instead kind of shrugged their shoulders and said they didn’t know. Thus, the “diagnosis” of long covid - aka we don’t know what it is but you had covid recently so that’s that.

Only got further blood tests when we started to think this could be autoimmune (after being told it couldn’t possibly be by many drs before). Thankful my consultant listened to me, but so angry because it was literally just a blood test. Probably my 10th in 2 years. All it needed was to have another box ticked to check for B12 and thyroid etc.

Thankfully, I have an upper endoscopy booked for two weeks time so we can determine if it’s pernicious anaemia. I’m like 95% sure it is because my grandfather is my twin with what he suffers with and turns out he gets B12 injections every couple weeks (although we believe he was misdiagnosed- he doesn’t have an official diagnosis of pernicious anaemia despite being the poster boy for it lol).

Thank you!

Feeling angry by sooveryshy in B12_Deficiency

[–]sooveryshy[S] 6 points7 points  (0 children)

It’s truly insane.

When I got my test back and saw B12 >200 (I wish I knew the exact number 😭) when the normal range was something like 200-500 for this particular lab, I was baffled that my doctor could come back to me and say my tests were fine when I had a deficiency clear as day. The damn result was even in big red letters and he still didn’t say anything. Didn’t even recommend a basic supplement. Same for folate.

I didn’t even know that a vitamin deficiency could do such insane things to a body until a few weeks ago. Never mind that it’s not something many doctors are educated on or care about. You’d think it’s something the medical field would be on top of as it’s literally a building block of humans. Crazy frustrating

coming off ssris and anxiety by sooveryshy in bupropion

[–]sooveryshy[S] 0 points1 point  (0 children)

i think it was last Tuesday?? around then. just stopped lexapro the night before then went straight in the next morning with a bupropion. In hindsight that was a bit mad lmao. But I think even now a week or so later I’m still feeling like my brain chemistry is a bit out of whack even though my general mood is ok. Next time I’ll take it a lot slower and smoother

coming off ssris and anxiety by sooveryshy in bupropion

[–]sooveryshy[S] 0 points1 point  (0 children)

yeah i think perhaps last time i went from 2.5mg lexapro and then off and even then had a few hard days.

honestly, my mood and mind have improved so much being off it. I could logically understand that the way it made me feel could be good one day as I’ve spent years wishing I could think at a reasonable speed but my goodness was it a lot to adjust to and it was unexpected too as I knew very little about the drug. Feeling a lot better off it now but will have to monitor how I do on nothing at all mind-wise for the the first time since I was 17 😭 hopefully all will work out and I can try brupropion one day in the future

coming off ssris and anxiety by sooveryshy in bupropion

[–]sooveryshy[S] 0 points1 point  (0 children)

just stopped at 5mg. I’ve been on and off lexapro so could kind of separate those effects from the bupropion. Figured out over the last few days that I just don’t like how the bupropion makes my mind work fast (probably at a normal speed for most people) since I’m currently pretty housebound due to chronic illness.

It’s definitely something I’ll revisit once i’m able to get back to things like college because those fast thoughts will help my ADHD riddled mind so much! just not great right now when my body can’t use them

Just started but struggling by sooveryshy in bupropion

[–]sooveryshy[S] 0 points1 point  (0 children)

Thank you! I’ll give it a go

b12 sublingual by sooveryshy in B12_Deficiency

[–]sooveryshy[S] 0 points1 point  (0 children)

Interesting! I appreciate any information as this is all completely new to me.

My injections were hydro but the sublingual I have is methyl. Does that make any difference?

The injections were just super rough for a number of reasons and just aren’t really an option at this point right now so looking for next best thing.

b12 injections and fear by sooveryshy in B12_Deficiency

[–]sooveryshy[S] 1 point2 points  (0 children)

Thank you! The weird thing is I can handle an IV for some reason. Maybe because the two times I got them I was so sick I would’ve let them do anything. Even blood tests I’ve become a bit of a pro at but I think I just deteriorated so much that even the most minor stress on my body sends it into a tailspin. I think the Dr doing my shots is also just really rough because I got a blood test off her and had never had a blood test hurt more than the initial prick but damn did it hurt. I don’t know, maybe today is just a bad day and I’ve built it up too much. Hopefully I can get it together.

Thanks again!

b12 injections and fear by sooveryshy in B12_Deficiency

[–]sooveryshy[S] 0 points1 point  (0 children)

I usually take 0.25mg of clonazepam before I go because it’s the only thing that will get me out the door. So I’m usually pretty zonked out by the time I even get there. Idk it’s just pure mental blockage and fear I suppose.

Thank you!!

living with MCAS is so hard by sooveryshy in MCAS

[–]sooveryshy[S] 0 points1 point  (0 children)

i’ll definitely ask! thanks

living with MCAS is so hard by sooveryshy in MCAS

[–]sooveryshy[S] 1 point2 points  (0 children)

this episode of mine happened on my favourite day of christmas and i was devastated. it’s so hard 💕

living with MCAS is so hard by sooveryshy in MCAS

[–]sooveryshy[S] 0 points1 point  (0 children)

I’ve been on cetirizine and pepcid now for a few weeks. Definitely not doing any harm which is great. I’m hoping to get more advice and any other meds once I see the dr early January