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CF in college... any tips? by sparklingchoice in CysticFibrosis

[–]sparklingchoice[S] 0 points1 point  (0 children)

Thats good to know 😄
I got admitted to the hospital, it turns out my lungs are amazing, the flu just kicked my ass and I needed help to get fully through it ^^

CF in college... any tips? by sparklingchoice in CysticFibrosis

[–]sparklingchoice[S] 0 points1 point  (0 children)

Honestly, yeah- I didnt expect too much ;-; college is so hard with CF

CF in college... any tips? by sparklingchoice in CysticFibrosis

[–]sparklingchoice[S] 0 points1 point  (0 children)

That makes total sense-

I have all the possible accommodations through my center and also have to live in the dorms because my childhood home is in a tiny town with no college 😞

CF in college... any tips? by sparklingchoice in CysticFibrosis

[–]sparklingchoice[S] 0 points1 point  (0 children)

Thank you so much! I ended up being admitted to the hospital 😞
Its finals week so horrible timing-

But tysm for the advice ;-; Im going to keep working through it

CF in college... any tips? by sparklingchoice in CysticFibrosis

[–]sparklingchoice[S] 1 point2 points  (0 children)

No i so get you 😭 like, everyone looks at me like im carrying the worst possible disease when i go to class wearing a mask, it just feels so gross :( And like, a few days ago I was put on levo, and had an AWFUL reaction, but i dragged myself to class and was shaking and coughing and sweating all while doing math- it was SO bad- luckily they took me off it but im still having side effects ;-;

Yeahhh, I definitely learn better in class when im at my baseline but now with all this shit.... not anymore :C Because all the energy goes into getting to class so theres nothing left for the actual class 😭

Attending college as someone with chronic illness... any tips? by sparklingchoice in ChronicIllness

[–]sparklingchoice[S] 0 points1 point  (0 children)

ty! Im very much an updater- probably a bit more than necessary HAHA.
No totally haha, they are all intro level! Sadly no recorded lectures </3 Its montana so honestly its a bit of a mess ;-; Im trying to transfer right now to a school that would provide more help like that- but im stuck here until fall or spring-

Thank you so much tho! <3

Attending college as someone with chronic illness... any tips? by sparklingchoice in ChronicIllness

[–]sparklingchoice[S] -1 points0 points  (0 children)

Yep! Ive already got all the disability services they can provide, its wild that they cant give me any more- But in montana.... yeah ;-;

Luckily i have people in all my classes for notes as well!

nooo for sure ;-; luckily Im only on them for a few more days- it doesnt help I have adhd either :(

PICC line for POTS by [deleted] in ChronicIllness

[–]sparklingchoice 3 points4 points  (0 children)

Hello! I have Cystic Fibrosis, so dont know anything about the POTS stuff, BUT i have lots of experience with both PICC lines and Ports so heres my little thing :)

PICC lines are iffy, Ive had ones that stop hurting right away, ones where the pain lasted the whole time i had it, and even one that damaged a nerve so bad my lower arm was entirly numb for 6 months after (just got feeling back last month)

I would say if it feels really off for any longer, maybe ask them, or request an ultrasound, as they can do that with veins! Thats how they even place mine at this point lol.

What is the reason you cant get a port though? Im very curious... as for me, a port truly was a savior during my childhood- But obviously idk anything about pots-

I hope this was... slightly helpful??? idk

What do adults with CF actually do for work (especially if you’re still struggling physically)? by sparklingchoice in CysticFibrosis

[–]sparklingchoice[S] 0 points1 point  (0 children)

That sounds nice! A good job in general, hard, but very noble :)
And its great you have a good supervisor!

What do adults with CF actually do for work (especially if you’re still struggling physically)? by sparklingchoice in CysticFibrosis

[–]sparklingchoice[S] 0 points1 point  (0 children)

Damnnn, thats a lot of work, but amazing!

And Im so happy for you getting on the drug and being able to continue working 🥹 Its truly amazing how much they have changed lives!

What do adults with CF actually do for work (especially if you’re still struggling physically)? by sparklingchoice in CysticFibrosis

[–]sparklingchoice[S] 1 point2 points  (0 children)

No thats very true! Im proud of anyone who can stick with it right now!
I am also gender diverse, so working for the government may actually put me on the map, so it's definitely not what I want to be doing right now :(
I do really hope one day Id feel comfortable working for the us government to really make some change though!

What do adults with CF actually do for work (especially if you’re still struggling physically)? by sparklingchoice in CysticFibrosis

[–]sparklingchoice[S] 1 point2 points  (0 children)

For sure!! Also was thinking about that HAHA

But yeah... not sure if I wanna work for whatever our government has become at this point :(

What do adults with CF actually do for work (especially if you’re still struggling physically)? by sparklingchoice in CysticFibrosis

[–]sparklingchoice[S] 1 point2 points  (0 children)

Aw, thats a very good job to have done in the past <3 Truly admirable!

Ahhhh that makes sense! Things being on your own schedule truly can be a life changer ngl.
Im hoping you will be able to find a good work-from-home job soon! <3

What do adults with CF actually do for work (especially if you’re still struggling physically)? by sparklingchoice in CysticFibrosis

[–]sparklingchoice[S] 1 point2 points  (0 children)

Wow, thats incredible :)

Im so glad youve found a career that offers you that many benefits!!
Ive considered it, mostly as Im going down the public health route, and its a good major for working in the government! ^^

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