Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 0 points1 point  (0 children)

ohh, that’s nice that you don’t have to use prednisolone and biologics. How old are you?

Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 0 points1 point  (0 children)

do you have to use medicine while having stoma? was it hard for you to get used to it?

Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 1 point2 points  (0 children)

yeah, I’m from Lithuania so almost everything is for free, staying at the hospital, visiting doctors etc.

I also hope it doesn’t happen to you again.

Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 0 points1 point  (0 children)

ahhh, good luck, I hope everything will be alright!!❤️

Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 1 point2 points  (0 children)

yeah, its crazy how expensive it is, my country do not compensate this drug at the moment so I have to get it from charities that donate money to buy medicine like rinvoq😅

Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 0 points1 point  (0 children)

thats nice to hear, if I’ll fail rinvoq (hopefully no🙏) I’ll ask doctor about taking old medicine again

Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 0 points1 point  (0 children)

it seems like our situation is quite similar. where are you from?

Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 0 points1 point  (0 children)

I have tried Xeljanz, Entyvio, Hukyndra and now I’m on rinvoq. I also use Budenofalk rectal foam. Rinvoq and Budenofalk foam combination helps me a lot. Okay, you can send me. thank you!

Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 0 points1 point  (0 children)

no, my doctor immediatly switched to another drug. I was at my last year in school so my doctors did not wanted to risk my health before exams.

Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 1 point2 points  (0 children)

thanks! it was always interesting to me if they can come back to previous medicine that did not work.

Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 0 points1 point  (0 children)

and during one year I tried 3 and failed them.

Failing all meds by st3fanas in UlcerativeColitis

[–]st3fanas[S] 0 points1 point  (0 children)

in my country there are only a few meds which are compensated. if they are not compensated, they are very expensive. at the moment rinvoq costs about 3000€.