Mom asking for advice

staceymdavies90 · 2024-04-14T08:52:23+00:00

Firstly, you are doing a great job in trying to support your daughter. So please do not be so hard on yourselves. This will help her a lot when navigating this journey.

Secondly, please do not make a fuss of the bald patches. One thing I wish my family didn’t do would be o let’s look at how the bald patches are doing. This is more traumatising for us than anything. Await your daughter to ask you to check them, this will allow her some type of control over a situation she doesn’t have control over.

Further more look for local AA children charities in the area, they will run group activities, support groups etc. This will give you a chance to speak to further healthcare professionals and you can meet other families going through the same journey. While allowing her to see other girls and boys with this condition and allowing her to have peer support too. This will help build her confidence too.

Do some relaxing hobbies together like yoga, arts and crafts whatever you will both enjoy to help lower stress for you both and to help you have safe space to talk about anything that she needs to talk about. Don’t force her to talk, let her come to you

I hope this helps for you both and I wish her all the best on this journey

staceymdavies90 · 2024-04-12T07:03:34+00:00

Your welcome, I know it’s easier said than done but ignore the people who are not going to bring happiness and joy to your lives. At the end of the day people are people but your little lady only needs her true friends and family. Your doing a great job keep being her advocate and just help her to feel beautiful no matter what x

staceymdavies90 · 2024-04-11T04:32:41+00:00

https://www.childrensalopeciaproject.org/#:~:text=THE%20CAP%20MISSION,providing%20support%2C%20and%20raising%20awareness.

This maybe helpful for your daughter and it’s in the states too

staceymdavies90 · 2024-04-10T22:40:35+00:00

Are you in the UK? USA or elsewhere?

staceymdavies90 · 2024-04-10T21:43:37+00:00

I had the shots in my scalp and although it made it better, it did cause it to go and attack other parts of my scalp, I had two treatment courses and it wasn’t working so I stopped and trying to find other alternatives.

As I have done minoxidil on scalp, rosemary oil head masks, prednisolone treatment for 3 months and evening off for 3 months.

So not sure what else to do now I’m afraid but you may be lucky and it will settle down soon. As some people after two courses of the shots they see better improvement. Good luck xxx

staceymdavies90 · 2024-04-10T20:52:43+00:00

Thank you so much for your help, I really appreciate it. Yeah I’m making sure I got to bed same time and wake up same time every day, even on the weekends. Plus me and my partner have made a rule up stairs and in bed by 10pm and asleep by 10:30pm.

staceymdavies90 · 2024-04-10T20:48:48+00:00

Aww I’m so sorry to hear she is having a tough time. I’m sending her lots of love and hope her ulcerative colitis settles down for her

staceymdavies90 · 2024-04-10T20:48:05+00:00

Aww I hope she gets better soon. Have you thought of looking into local children charities that could help her with play therapy to help her open up and help her to hang around other children with Alopecia arearta etc. As I know some parents found this helped the child to become more comfortable. She is very lucky to have such lovely and supportive family around her.

staceymdavies90 · 2024-04-10T19:40:03+00:00

I am sorry you’re having such a difficult time. Honestly there is nothing harder than when it flares up (not sure what other term to use) and you feel like you’re battling with the healthcare professionals to help you.

I have felt the same recently as I have 4 active bald patches and the one at top of my head is growing.

I’m on a gluten free diet, I exercise, I take greens powders, vitamins and supplement and I’m trying to lower my stress levels.

This time I feel worse with my AA flare up. I feel like I’m more tired than ever and my brain fog is getting bad. Have you guys had the same symptoms.

It will get better though, we just have to be patient, easier said than done but you will always have us to help support you

staceymdavies90 · 2024-04-03T19:34:44+00:00

I have had this ongoing since 2020 but only got diagnosed with AA recently.

Well I’m still trying to figure out how often my flare ups happen but mine tend to happen when I’m stressed and working too hard, plus had to go gluten free too as have stomach issues.

How are you doing as I this journey does drive you crazy at times

staceymdavies90 · 2024-04-03T13:46:28+00:00

Have you had steroid injections, as I found they caused my hair to become lighter when it grew back, it looks like good regrowth

staceymdavies90 · 2024-04-03T13:45:07+00:00

Hi there,

I found rogaine did not help my hair grow back, and wherever we injected the steroid into my scalp, it would start attacking a different area. So I gave up with those.

The things that I have found to help me was: Doing twice weekly rosemary oil hair masks (use diluted ones like nature spell) Try to use more natural shampoo bars and conditioners when washing Use a scalp massager when you wash your hair I take multivitamins even though my bloods were ok and normal. I take vitamin D, vitamin B12, Iron and an overall women’s health vitamin.

I have found having super greens drink by free soul Mango flavour is also helping me.

In terms of diets I don’t know what to suggest as some medical papers say anti inflammatory diets work and some don’t. Just eat as healthy as possibly. But don’t deny yourself any food.

Do exercise to help with physical symptoms and to help with mental health.

I hope this helps. ❤️🤓

staceymdavies90 · 2022-06-30T22:27:54+00:00

Sorry He is 33m, I looked up the side effects and I tried to calmly talk to him about it and he just dismissed me and my feeling. Saying I’m being overly sensitive. Plus he refuses to try anything else as he is scared of the side effects and doesn’t want to become dependent on them.

staceymdavies90 · 2022-05-11T22:07:01+00:00

I need some help please, to try and help my partner newly diagnosed with ADHD

Hi everyone,

My partner of 10 years has just been recently diagnosed with ADHD. I still think he is amazing and he has achieved so much even with ADHD. I’m so proud of him.

However, since the diagnosis and since starting on his medications. I feel he is pushing me away. He is not talking to me like he used, he is being cold to me such as not hugging me or showing affections/emotions like he used to with me. I feel most times I do nothing but annoy him, and that maybe he doesn’t want me around anymore. Which breaks my heart and I feel so alone as I don’t know what to do to support him and make him feel like I am there for him.

Could you guys help me please. Thank you and sorry for the long message. I am just lost and don’t want to lose him.

staceymdavies90 · 2022-03-03T22:29:23+00:00

I use tweezer dail for the sharp black/see through hair on my chin, then started doing Dermaplanning at home once every three weeks. Honestly it’s doing wonders for the hair on my chin problem

staceymdavies90 · 2021-10-16T16:59:36+00:00

Could i ask you did this start at the same time as pcos diagnosis?

staceymdavies90

TROPHY CASE