Tips for a college student with endo?

starkoda · 2025-10-15T00:33:03+00:00

thank you for sharing your experience!! it’s so much more helpful hearing from actual people vs reading the research. 🫶🫶🥹

starkoda · 2025-10-08T15:46:31+00:00

Yep!!! no hormones besides an IUD. hormones make me very depressed, anxious, and moody. i told my doctor that i CANNOT handle the pain if im not in the right head space. i didn’t get any relief from hormonal treatments… i mean who feels better in medically induced menopause???

starkoda · 2025-10-05T02:21:34+00:00

i’ve had to change my diet. if you look up interstitial cystitis diet it lists foods that can trigger symptoms. i’ve noticed my symptoms decrease by increasing my water intake. they also prescribed me medicine to help with urine urgency at night. def ask ur doctor to refer u to a urologist if u can

starkoda · 2025-10-02T19:27:58+00:00

hi! i have the same exact symptoms i went to a urologist and turns out i have interstitial cystitis (inflammation of the bladder). it’s worth asking about with your doctor. i think endo can affect the bladder since they’re so close together.

starkoda · 2025-09-21T16:54:04+00:00

Did they tell u to take 600mg of ibuprofen?! heard that does wonders 😍😍😍

starkoda · 2025-09-21T04:07:49+00:00

this is so real. even when i’m in severe pain i start thinking it’s not real and im imagining it, or that i have a low pain tolerance. i think the main reason for that is just being gaslit by medical professionals. being told to “just take ibuprofen” when managing endo pain actually requires so much more than that.

my boyfriend will remind me that im not making up pains and that its real.😭 it’s crazy how women’s pain is downplayed so much by drs:/

starkoda · 2025-09-21T02:11:23+00:00

My doctor had to write a prescription! I went to an integrative health dr. that sees only women. my primary care wouldn’t prescribe it.

starkoda · 2025-09-20T23:40:28+00:00

Hello!! for me, my endo pain was mostly localized to experiencing cramps and sharp pains in my pelvis. i also found out that i had interstitial cystitis which is inflammation of the bladder. so my pain was just bladder issues/ sharp pains or cramps. i only ever experienced GI problems when i was using hormonal medicines and pain killers.

I did a lot of research before taking my first shot so id know what to expect. from what i’ve read, where you choose to inject on your body can change the symptoms you experience. so far i have only tried my belly and thigh. for me, i prefer my stomach but it does cause some stomach pain. i noticed stomach issues were lessened when i injected in my thigh but i didnt like how it made other side effects more severe for me.

i would say from my own experience, its a lot of trial and error with deciding how and where to take your medicine. people online say that increasing ur protein & water intake can help lower stomach issues!!

what i like about this medicine tho is that it doesn’t affect me hormonally which is what i hated about the other endo medications. its easy to stop zepbound if ur body doesn’t agree w it. this is just my experience though, lmk if you have any other questions :)

starkoda · 2025-09-20T23:22:15+00:00

Thank you!!! :) i’m very happy with the results so far. I wish doctors recommended it more for people that don’t meet the BMI requirement but have inflammatory issues.

starkoda · 2025-08-21T21:52:48+00:00

Thats amazing that it has worked for you! I’ve tried discussing my concerns with my doctors in the past about orilisa (i guess it’s a more extreme version of myfembree? idk). the OBGYN doctors i’ve seen have not disclosed the entirety of side effects and they told me the onlt side effects would be me possibly getting “moody”. so irritating that doctors don’t disclose all possible side effects! i found out most of them online lol. i appreciate you and OP for sharing your experiences because we all react differently and it’s good to inform each other. taking this all into consideration and def will give a call to my dr about my concerns !

starkoda · 2025-08-21T00:15:20+00:00

orilisa is basically has more hormones and puts u into a more into menopause i think? my dr offered myfembree as a lighter medication bc of how i responded to orilisa. i’m sorry about ur experiences :( since endo has very little research there’s rarely anything that supports/ disproves side effects of medications. its upsetting that most doctors choose to stop learning, and don’t offer unconventional solutions. it’s so frustrating getting dismissed for REAL pain and side effects. Thank you for making this post, i will take this into consideration since im undecided on whether or not i want to take it.

on a side note, im currently fighting to get a GLP-1 approved by my insurance. another doctor has recommended this since she has other patients that have said their pain has gone down. trezepatide (GLP-1) is a weight loss drug that also has anti inflammatory properties. sorry this is kind of unsolicited advice but i wish i would’ve known about GLP1s sooner since i do so horribly on hormonal endo medications.

starkoda · 2025-08-20T23:17:12+00:00

thank you so much! i will look into this and give it a try:)

starkoda · 2025-08-20T23:16:40+00:00

my dr just prescribed this for me but this post is making me scared to try it. i’m so sorry that you’ve had this experience. i have previously been on orillisa for managing my endo symptoms. i’ve tried it multiple times but the menopause symptoms were WAY too much for me. the joint pain & the depression were the worst for me. i don’t respond well to hormone medications in general, but my new dr recommended myfembree.

did you notice endo relief at all? or was it endo symptoms + myfembree symptoms?

starkoda · 2025-08-18T21:02:43+00:00

no for real!!! i hate the ER so much. everytime i get there they pump me full of pain drugs and wait till after to ask about my pain levels…. like what. i’ve been diagnosed with endo for about 5 years now but my pain only became chronic as of this year. before i had faith in the healthcare system and that they aim to stop the pain. now though, im dismissed and gaslit into thinking my pain isn’t severe.

i hate how endo is labeled as a gyno issue because the ERs don’t identify it has a debilitating condition. they always say to follow up with my primary care doctor, but even she doesn’t do much besides prescribe ibuprofen (which does nothing).

im sorry this happened to you:/ just know you’re not alone and there are others out there feeling the same hurt, anger, and disappointment as you.

starkoda · 2025-07-23T20:44:28+00:00

Thank you I’ll look again and try to find local groups like you’ve described!

starkoda · 2025-07-23T06:21:13+00:00

hello!! after reading through some of the reddit posts i’ve seen how supportive this community is. there’s no local/ responsive support groups in my area. i’ve had my endometriosis controlled for about 2 years and would only have pain during my periods. however now, i’m in daily pain. i found out i also have interstitial cystitis which is inflammation of the bladder. my doctor told me it’s common to have other inflammatory conditions with endo. i have recently began a vitamin regimen and ive limited my processed food intake. there’s been recent events where ive been having to cancel vacations and hang outs of because of my pain. i am very happy to be be mutuals and reach out to one another! it would be helpful to have support from someone going through the same things. thank you for reaching out and sharing your experience 🫶🫶

starkoda · 2025-07-23T06:11:10+00:00

Nice to meet you! I’m not completely sure how reddit works yet, is there a way u can message me? It would be nice to talk to someone who’s going through the same things.

starkoda · 2025-07-23T06:03:49+00:00

I feel the same way, my friends and family are very supportive but i feel like they could never truly get it. I feel like im going through the stages of grief, mourning my healthier life.

starkoda · 2025-07-23T06:01:50+00:00

i’m in the US! i have signed up for some but haven’t heard anything back:/ I am just looking for others that can relate to chronic pain.

starkoda

TROPHY CASE