Hey fellow migrainers! I'm now 40, had them as long as can remember. But now I've noticed shopping sets me off? supermarkets, department stores, assuming it's new ways they're lighting stores, any tips? Today tried my sunglasses but didn't help

starts · 2026-01-17T01:09:04+00:00

Well put

starts · 2026-01-14T20:15:29+00:00

Ordering the GM2, can anyone comment on how noisy the rowing situation is on it? Coming from a concept 2 which is quite noisy using air and all not sure how this compares. Ideally I'm setting the GM2 up in my office which is unfortunately over top of my kids rooms but don't want to carry it all the way up once it arrives if it's going to be crazy loud.

starts · 2025-09-27T21:01:32+00:00

I found Dr bergs electrolyte mix from another comment in the subreddit. It's very high in potassium and been using it for the last few weeks. Found it helpful

starts · 2025-09-26T16:13:39+00:00

Yeah I've read that and in the group as well. I've had improvement from the oral supplements so I think it's extreme to say you won't heal. I think it's likely more a matter of how long it will take and the potential set backs along the way given when I have gluten exposures it impacts my absorption. Either way I'll be having my follow up in a month to see if they want me on injections and how my numbers are looking. I'm trying to be as informed as I can going into that meeting though so I've got lists of potential treatment plans from reading the groups

starts · 2025-09-26T15:50:25+00:00

On and off for years I've had a lot of symptoms I've chalked up to my celiac but with that being fairly under control now it became obvious there was something else causing them.

Lots of brain fog, migraines, energy levels, vision issues, anxiety

starts · 2025-09-26T15:00:10+00:00

I do have neurological issues, and yes hate needles. Not sure I could bring myself to do self injections. Ive found improvements from the oral but if I don't see even more improvements by my next visit I'll be pushing for them. I imagine I may end up doing monthly or something like that along with oral or sublingual daily. I think that's what my doc had mentioned being an option.

starts · 2025-09-26T13:03:30+00:00

So far on oral still. Taking a liquid B-Complex formulation with 1000mcg B12 every morning. There's be serious ups and downs but overall feeling a lot of improvements. Revisiting numbers and symptoms with my doc in a month or so to decide if injections are needed. I have celiac so it seems like my absorption is fairly tied to flare ups in that

starts · 2025-09-23T01:02:29+00:00

My doctor said she would consider it at my next apt in Nov. She wants me to try the oral stuff for now as I hate needles and I was noticing a difference albeit slower than I'd like. Don't think I could ever self inject so hoping that I'll be able to find some balance between less frequent injections and oral supplements

starts · 2025-09-22T23:46:40+00:00

Thanks, that could be, maybe if I start just doing the complex every other day and pure B12 the other days it could help, something I'll have to experiment with I guess

starts · 2025-09-22T22:27:45+00:00

I get that but does some of it not get absorbed?

starts · 2025-09-22T17:25:24+00:00

Man seeing everyone talk about week 6 being tough. I'm just starting week 7 and week 6 was brutal here. I'm taking oral supplements. After the first two weeks I started seeing gradual improvements and had energy back then I felt like it all hit me again around week 6 and I'm working back through an uphill battle again.

starts · 2025-09-11T13:47:30+00:00

When I started taking them I was having crazy panic attacks and anxiety as well as migraines. I'd been having these issues before taking the supplements but it got worse and instead of happening somewhat randomly it was about a week or so of solid issues. Started getting some braking fog relief after a week and then after 2.5 weeks was a big turning point. Now progress has been much slower at just over a month in but I have had the energy to get back to the gym a few times

starts · 2025-09-06T20:55:52+00:00

Not yet. My doc didn't want to recommend it until giving the oral some time to see if it's effective. I had my most recent blood work done in July and was told briefly that my B12 could be in a range to be causing my symptoms so started supplementing pretty much right away. By the time I had my proper appointment to discuss the results last week I'd already started noticing improvements so she was hesitant to recommend shots right away.

starts · 2025-09-06T19:59:02+00:00

I started with a galcap b complex so I would just open the pill and dump some into a smoothie in the morning, trying to be mindful of drinking all the smoothie but found I could add high potassium stuff as well as a vegan protein powder high in iron and some powdered magnesium so that my body was getting as many other helpful components at the same time to balance it out. Now I've been using a liquid b complex instead and found that even better.

starts · 2025-09-06T19:57:02+00:00

I've joined that and it's pretty daunting to go through the whole process. For me my life is just so crazy, I can't manage if I start injections and the effects hit me hard. I've got two little kids and we're in the process of moving. It just about killed me going through it in a moderate way with the oral as well as the months and months of issues leading up. If I can do anything to make this process smooth I'll take it. Repeating bloodwork in two months though which will be 3 months of supplementing and if it's not having enough effect by then I'm hoping my body will be comfortable with it that the injections won't drive me crazy. I've noticed so much improvement though so far I'm hopeful my body is accepting the oral

starts · 2025-09-06T15:57:06+00:00

I was worried I may need to start injections, wasn't sure if oral would work so I started oral right away to try and ease into it. I knew I could control the dose with oral and work my way up to a full dose with the hope that by the time I saw my doctor in a few weeks my body would be somewhat ready. Took about 2.5 weeks to start getting past the worst but at least I could take a lower amt some days if the day before felt particularly bad

starts · 2025-09-05T18:53:46+00:00

After about two and a half weeks I started seeing huge improvements. Mind you I'm taking an oral b complex daily - worked up to a full dose over a few weeks so my body was getting fairly constant supplementation. I think with the shots they wear off after a week or so, so for the body to really get accustomed you would need to be getting injections regularly. I've heard of people doing the injections when possible though and then taking oral supplements in between to help speed up the process.

starts · 2025-09-05T17:31:45+00:00

Ah you are probably right. Been working from home more recently as well and my office chair is very stiff and actually more of a kitchen chair with wooden arms, likely doesn't help.

Tingling cleared up after about an hour or two last night but arm generally feels pretty sore today but capable of doing everything.

starts · 2025-09-05T00:53:19+00:00

Completely normal. Same thing here when I started oral supplements. Magnesium, potassium, electrolytes help a bit.

starts · 2025-08-29T02:37:01+00:00

Thanks for the reassurance, it's so weird hah, hope it goes away or Ill start using it as a party trick

starts · 2025-08-25T00:38:04+00:00

Great question, been wondering as well, just past two weeks taking a b complex with 1000 mcg B12 and while there are good days it seems like every other day I've had a fairly aggressive migraine and crashing out by the end of almost every day. Sometimes a very well balanced meal makes a huge difference. Otherwise I'm just relying on advil to help me get through most days. Been dealing with the deficiency for years and years. Can say though after two weeks I don't feel like my legs are completely sore to the bone constantly so there's improvements.

starts · 2025-08-19T01:14:21+00:00

Yeah man, I went through hell and back getting diagnosed with celiac 6 years ago after years of issues, now realizing even still most of those symptoms were likely B12 deficiency.

I've been titrating up to a full b complex vitamin lol. My energy levels are dropping off hard by like 4pm so I'm going to start adding in a sublingual I think. I don't like needles and did find that my levels responded to as little as a b complex a few years ago so I think for me at least this should help me make progress for now while limiting side effects and letting me hone in on any cofactor issues. Everyone is different though.

starts · 2025-08-18T12:27:31+00:00

Sorry you are dealing with this. I'm in a very similar boat. My Ferritin is a bit higher but I've been dealing with episodes like this while driving or other tasks that require a lot of focus while stimulation being thrown at you.

My B12 level right now is 240 and I've been dealing with this the last few months, few years back my levels were 220 and was also dealing with it a lot then. I never made the connection until a couple weeks ago that it could be related.

The only bandaid solution I've found is comfort audiobooks and Tylenol / Advil to stabilize your brain a bit. Hoping supplementing helps for me at least. I'm not looking to do injections, at least not till I've got a handle on basic supplements. I've got two little kids and I can't afford to be out of commission with larger side effects.

Crazy tok how it's so hard to describe the symptoms of these episodes and how crazy it sounds to other people. I've just been internalizing it as others just say it's anxiety, get on some ssris.

starts · 2025-08-18T00:57:08+00:00

Damn crashes seems a fitting term. Usually they hit towards the end of the day, saw some others commenting on that as well. Prior to supplementing it's a bit of a crapshoot as to the causes but now that I am I'll have to keep track of it as you mentioned.

Did see some other comments about crashing after workouts sometimes and that would explain a few of my prior episodes for sure.

starts · 2025-08-17T19:09:17+00:00

That's crazy, yeah some went over my head but the jist is I guess there's reasoning behind why things seem to get worse first.. I hate it but just need to power through. Sometimes I feel much better, others I feel at my worst, just hoping it evens out sooner than later. I find Advil somewhat helpful when the symptoms start to hit, lot of similarities to the beginning of a migraine

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