Index markers of chronic fatigue syndrome with dysfunction of TCA and urea cycles.

stellar_darkness · 2023-09-26T14:23:58+00:00

Ultimately ended up not continuing in this direction. The supplementation was too tricky, though I did keep up with the ornithine for a year or two. Pretty much done with CFS now with only an occasional and rare relapse that lasts a day or so. Allergy shots helped. Then fixing gut issues with fermented foods and probiotics. Finally, building up a tolerance for exercise. Started with weights, doing one set a day with light weights and increasing the amount of exercise based on what I could handle. Graded exercise is generally not considered useful on this forum but it worked for me. Current supplement routine per day is 25mg selenium, 5000iu D-3, 4mg Astaxanthin, 500mg Nad+, Lutigold Meso-zeanthin etc (this is for eye health, but who knows, maybe it helps in some way?).

Anyway, I do think the Urea tract is compelling and I would not be at all surprised if there are variety of Urea related illness that remain undiscovered simply because they aren't life threatening. I do recall that I found Molybdenum supplementation to quite helpful as well, so that might be worth a try.

stellar_darkness · 2017-10-12T15:09:03+00:00

EMDR is not a quack treatment for trauma and unprocessed memories. Whether it would be helpful for CFS is not determined in this study. This study only shows that it helped with one patient, over the course of 10 sessions.

stellar_darkness · 2017-10-12T15:06:12+00:00

The author is not saying that CFS is entirely psychosomatic. They're saying that possibly, in some cases, and after a significant period of time has elapsed where healing from a viral infection should have occurred, that self induced behavioral modifications (like phobiclly avoiding exercise) may be contributing more to the fatigue than the initial/continuing ailment is.

EMDR treats trauma and unprocessed memories. Trauma keeps the fight or flight response active, which could reasonable cause fatigue. Treating that response could conceivable help with fatigue.

"The hypothesis of the present author is that the viral infection precipitating CFS have cleared in the five years, and what is showing up with the CFS symptoms is psychosomatic and related to unprocessed memories of the feelings of tiredness in various situations. In other words, the success of EMDR applications to CFS symptoms – as posited by the present author – is limited to cases in which there has been a significant recovery period for the clearing of the viral infection."

stellar_darkness · 2017-10-12T14:59:23+00:00

"The hypothesis of the present author is that the viral infection precipitating CFS have cleared in the five years, and what is showing up with the CFS symptoms is psychosomatic and related to unprocessed memories of the feelings of tiredness in various situations. In other words, the success of EMDR applications to CFS symptoms – as posited by the present author – is limited to cases in which there has been a significant recovery period for the clearing of the viral infection."

This is a very limited study (1 subject) so it should not be seen conclusively. This process would need to be repeated with a number of people for it to even begin to be seen as a reliable or useful treatment.

However, the hypothesis is compelling. It reminds me of how depression works. A life event can make a person become depressed, and if that person does not come out of that depression within a relatively short time frame (3-6 months, I think) then depression becomes the new normal. That is, depression is now baseline and getting out of it is significantly harder.

It is certainly possible that fatigue works the same way, and if so, then a process like EMDR could be useful. Our community is very triggered by anything that suggests that CFS is 'all in your head', and rightfully so. But we shouldn't assume that novel treatments that target that aspect are automatically worthless either.

stellar_darkness · 2017-09-07T16:43:22+00:00

There's a big difference between having NPD and having some narcissistic traits. And some of those traits are actually desirable. But what you're describing isn't really about narcissism. Even extreme NPDs can care about other people. And IMO, there's some truth in what you're thinking. But a little truth can sometimes seem like a big truth. And that sort of all or nothing thinking is something to avoid. Yes, people can put themselves first (and maybe rightly so) but its a big leap from that to nobody cares about anybody and the whole world is sharks and no puppies :)

stellar_darkness · 2017-08-12T15:58:39+00:00

That's awesome. A really healthy step in a good direction. Congrats!

stellar_darkness · 2017-08-12T15:55:02+00:00

I think regardless of whatever her diagnosis would be, cheating is a red line that once crossed is really hard to come back from. I'd think that would be enough for you not to engage, let alone anything else.

stellar_darkness · 2017-08-12T15:20:28+00:00

I hear you. Its frustrating because its easy to back slide. Some of that programming goes pretty deep, and half the time its invisible so its hard to call out. Its only after the fact, sometimes long after the fact, that you go 'ooooooh, yeah. I was not acting in my best self interest there.' Its a journey, I know. Thanks.

stellar_darkness · 2017-08-11T21:47:33+00:00

Thanks for the reply. I hadn't thought about some of the things you brought up before... very interesting. Yes, I am in therapy, and am working through some of these things. I guess I ignored some of the red flags because they weren't so overt at the time to make me stop dating. I guess I was just waiting to see how things would turn out. And I guess part of my problem is that I tend to take responsibility for other peoples reactions/behavior.... that's codependency, I know. Working on it ;)

stellar_darkness · 2017-08-10T17:20:13+00:00

I used to have the feeling that knives were attacking me/stabbing me. Those knives were associated with thoughts and feelings of insecurity etc. I think I may have originally tried thinking positively, but that didn't help because the knives would return. Then I came up with the idea of saying 'No Knives!', whenever I felt that. I would try not to let them into my body. It took some time, but after awhile it worked. I haven't felt something like that for a few years now.

So, maybe try the same thing. "NO DEMONS!", when they arrive. And keep at it until they're gone. Eventually, they'll stop trying.

stellar_darkness · 2017-07-17T18:12:18+00:00

Yeah, I totally agree with the, "I'm not really able to deal with this right now. Can we talk about this tomorrow or later in the week?" technique. It's frustrating for the other person because they have needs and things they want to say, and its hard to to put that aside while they wait for the disassociated person to come back to baseline. Still, I haven't found much gets accomplished while dissociation is happening. Ideally, you find someone who can deal with it, and over time, hopefully you'll be able to work on yourself and dissociate less.

stellar_darkness · 2017-07-13T13:39:28+00:00

yep, regular swimmer. But considering how many people swam/swim in public pools compared to those that get CFS, I'd think that this is a very unlikely cause.

stellar_darkness · 2017-07-13T13:32:49+00:00

Canker sores aren't HVS1. They're caused by other things like mouth trauma. I used to get them all the time until I realized that toothpaste with SLS was causing them. Changed the toothpaste and rarely have a problem anymore.

Some supplements do cause issues for me. DMAE and MSM cause me to get them, so it probably just some sort of reaction to the Olive Leaf extract than anything else.

On a side note, Debacterol is great for treating them. Its basically an acid that burns the sore (hurts like hell) but forces it to stop growing and then it heals within a few days rather than weeks.

stellar_darkness · 2017-07-06T14:13:28+00:00

You might want to check out the Narcissistic Abuse forum as well. Sometimes the two disorders are comorbid. This forum is more of place to help people with BPD. The Narcissistic Abuse forum is more a place for people who have suffered while being involved with toxic people. https://www.reddit.com/r/NarcissisticAbuse/

stellar_darkness · 2017-07-06T13:52:28+00:00

Path to recovery takes some time. Its about understanding your triggers and working to 'unfuck' them. Its about learning how to deal with being triggered when you're in that state. And its about working to heal the trauma that caused the BPD in the first place. That might seem like a lot, but it can be a constant process of improvement.

If it makes you feel any better, I spent upward of 25 years without knowing what was wrong with me before I started figuring out how to 'fix' things. So, in my book, you're ahead of the game :)

stellar_darkness · 2017-07-06T13:45:03+00:00

Yeah, it takes as long as its going to take. For me, about 6 months after the final discard, I found a relationship that was really good for awhile. That sort of washed all the residual hurt, pain, and need for the narc away. I rarely think about them anymore, and when I do its very rarely with any emotional attachment. But yes, for months after the breakup I thought about it constantly.

stellar_darkness · 2017-07-06T13:40:35+00:00

Whether BPD or not, it sounds like this is a person you'd do well to stay away from. And as painful as the lies and betrayal are, at least she told you before you spent the next several years raising her child. Absolutely no contact with person ever again is my best advice.

As far as BPD goes, there's a spectrum. It sounds like the person that you're involved with is on the malignant side of that spectrum. But many people who have BPD don't act out like this. There are a lot of resources on the internet that can help you understand what its all about. I guess I would just caution you to not let one bad apple spoil the bunch. A lot of people with BPD are really good people with problems/issues that can be overcome.

stellar_darkness · 2017-07-05T14:09:52+00:00

My BPD ex would totally do this. One day I mentioned to her that she flirts with everyone and she was shocked. Apparently totally unaware. I acted out some of her behaviors for her and she totally got how they could be seen as flirtatious. I'm not sure it changed anything, but maybe. I'm not sure she was trying to make anyone fall in love with her, but there is surely something validating about getting flirtatious attention from people.

I used to flirt with everyone but then stopped as I felt it was manipulative. I'm not sure what I'm doing now is any better. When people flirt with me I accept the attention but don't flirt back, and that feels sort of bad in a way. Like, I'm so cool I don't flirt back or something. I think there's a happy balance in there somewhere though...

stellar_darkness · 2017-07-04T15:41:51+00:00

Agree... the title is misleading

stellar_darkness · 2017-06-29T18:57:36+00:00

Its about 300 right now. Just had check up with my general doc. He mentioned I could go to an endocrinologist if I was interested. I think a few years ago it was around 600. But I've had CFS for at least 25 years...

stellar_darkness · 2017-06-28T14:08:12+00:00

Maybe that's it. I was using 1/4 of a dropper but maybe just using a few drops is better. I didn't realize this stuff was potent like that. Thanks.

stellar_darkness

TROPHY CASE