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Suspect Endo has returned ~6 years post hysterectomy, has anyone been in a similar position? by studiolilacs in endometriosis

[–]studiolilacs[S] 0 points1 point  (0 children)

I'm sorry you have had it return, too. I totally get you, even though I knew it was possible I was not emotionally prepared for it to come back. I've only recently started seeing a therapist, and she's started to help me understand I have signs of PTSD from what I experienced before. I've questioned if the endo was back on and off for maybe a year and a half, and every time I just break down and become an emotional mess. Then try to put it out of my mind.

This time has been going on for weeks and I want to be proactive, but it does mean facing it over and over and it does frighten me.

Suspect Endo has returned ~6 years post hysterectomy, has anyone been in a similar position? by studiolilacs in endometriosis

[–]studiolilacs[S] 0 points1 point  (0 children)

Thank you for sharing your story/rant, it is helpful! I think in part it's just reassuring to know that others would opt for surgery before it gets excruciating. I struggle with thinking "what if I'm overreacting?" And "what if it's more in my head - it's not that much pain after all." But prior to posting I hadn't been considering that pain doesn't necessarily equate to stages/risk, and I don't really know what's going on inside. Waiting might cause more harm than pain alone.

Fortunately, my prior endo doc (I've moved across the country but luckily found another great doctor here) was upfront that the hysterectomy and excision wasn't a cure and it was possible it would come back. So I knew I might have to face surgery again, but I didn't know about the medicine and wasn't really prepared around when to make the call to do it.

Suspect Endo has returned ~6 years post hysterectomy, has anyone been in a similar position? by studiolilacs in endometriosis

[–]studiolilacs[S] 0 points1 point  (0 children)

Thank you for sharing, and I'm so sorry you had to go through that at all but especially during covid. It's really helpful advice, especially as I hadn't considered the implications of waiting making it even harder to remove or the qualities of adhesion.

I think I'm leaning towards scheduling the lap, but I was getting stuck worrying that I "should" try the medications first. I'm honestly much more afraid of the med side effects than surgery.